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25 years old, fibroids regrew after myomectomy, now possible hysterectomy 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

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  #11  
Unread 04-22-2014, 07:27 PM
Re: 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

I was not in the same situation you are but I had been bleeding for nearly 8 months after I had my IUD out and my Essure implants put in. My doctor tried hormonal treatment to stop the bleeding (which has left me with some hormone issues I'm still dealing with now) and after the hormones didn't work (I tried for 6 months and just bleed worse) I was given a several different treatment options that would have been possibly effective but might not have worked. I ultimately went with hysterectomy. I was 29 and had my uterus, cervix, and fallopian tubes removed and it's great! If you can have robotic surgery, you're up and walking around a few hours after surgery. You're not running a marathon but the nurses had me up and walking within 8 hours. I was only in the hospital overnight and then went to stay with my mom. She would walk me up and down her street once or twice a day so as long as you take it easy and don't push yourself, you can get back to normal faster. Like you, I wanted to avoid major surgery but after trying the last set of hormones that actually made me bleed worse, I thought that I couldn't deal with the treatment roulette anymore. Since I had already make the choice to get fixed, the hysterectomy suddenly didn't seem so bad because it would give me almost instant relief. Aside from the hormone issues I'm still dealing with, the hysterectomy was the right choice. The other plus side of an early in life hysterectomy, no more periods! It's like a get out of jail free card for the next 20-25 years
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  #12  
Unread 04-22-2014, 07:42 PM
Re: 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

I would just want to get it all over and done with if the dr said hysterectomy was inevitable Im sorry you have gone through so much. I had no choice but I am glad its done and over with I wish you the best of luck on your journey to health and happiness
  #13  
Unread 04-22-2014, 07:53 PM
25 years old, fibroids regrew after myomectomy, now possible hysterectomy

I had my surgery in January this year and recovery was 6 weeks. I was able to go to the gym at 6 weeks. Doctor has approved. I train 4 times a week, no weight lifting restriction. Go for it!!

gym
  Quote:
Originally Posted by 01232014 View Post
Hello,

I am 25 years old and recovering from a laparoscopic myomectomy in January. For a little background, when I was diagnosed with multiple large submucosal fibroids in 2013, I had been bleeding 24/7 for several weeks and the volume of my uterus was twice that of normal. I had a myomectomy earlier this year, and appeared to be recovering well. My first post-surgery period lasted 3 weeks and I was treated in the ER after I started blacking out. I am now on oral progesterone to manage my bleeding, but my bleeding has not stopped completely. An MRI taken 10 weeks post-op has revealed that new fibroids have already grown and that my uterus is greatly enlarged. Before the symptoms of my fibroids became too difficult to manage, I was very physically active with training for marathon running. I have been unable to run or exercise for a year as physical exertion causes me to bleed heavily, which is extremely disheartening.

The original treatment plan was to place a Mirena IUD after I had healed from the myomectomy as the progesterone would slow or possibly prevent new fibroids. With the rapid regrowth of my fibroids, my doctor has explained my options are now: 1) uterine artery embolization; 2) Lupron injections; and 3) hysterectomy.

I am open to having a hysterectomy as I do not want children, however I would like to avoid major surgery if possible. I am wondering if anyone else has experienced such a quick regrowth after a myomectomy, and if anyone has had success in treating multiple large submucosal fibroids. It has been difficult finding other women my age to speak with about hysterectomies. And if anyone is very physically active, how has a hysterectomy affected your ability to exercise and train?
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  #14  
Unread 04-22-2014, 07:53 PM
25 years old, fibroids regrew after myomectomy, now possible hysterectomy

  Quote:
Originally Posted by 01232014 View Post
Hello,

I am 25 years old and recovering from a laparoscopic myomectomy in January. For a little background, when I was diagnosed with multiple large submucosal fibroids in 2013, I had been bleeding 24/7 for several weeks and the volume of my uterus was twice that of normal. I had a myomectomy earlier this year, and appeared to be recovering well. My first post-surgery period lasted 3 weeks and I was treated in the ER after I started blacking out. I am now on oral progesterone to manage my bleeding, but my bleeding has not stopped completely. An MRI taken 10 weeks post-op has revealed that new fibroids have already grown and that my uterus is greatly enlarged. Before the symptoms of my fibroids became too difficult to manage, I was very physically active with training for marathon running. I have been unable to run or exercise for a year as physical exertion causes me to bleed heavily, which is extremely disheartening.

The original treatment plan was to place a Mirena IUD after I had healed from the myomectomy as the progesterone would slow or possibly prevent new fibroids. With the rapid regrowth of my fibroids, my doctor has explained my options are now: 1) uterine artery embolization; 2) Lupron injections; and 3) hysterectomy.

I am open to having a hysterectomy as I do not want children, however I would like to avoid major surgery if possible. I am wondering if anyone else has experienced such a quick regrowth after a myomectomy, and if anyone has had success in treating multiple large submucosal fibroids. It has been difficult finding other women my age to speak with about hysterectomies. And if anyone is very physically active, how has a hysterectomy affected your ability to exercise and train?
I'm a bit older than u...but had a similar situation. I had iud...huge fibroids. When dr told me based on my age the fibroids would grow back and said that the myomectomy was just as invasive with as long a recovery. I opted for the hyster since I don't want kids either. No bleeding anymore...which is great. I am currently having stomach pains based on ibs my Gyno tells me...which may just be my diet which I'm changing. I'm glad so far I made my decision...no more pregnancy concerns or periods. It's been over a year for me.
  #15  
Unread 04-22-2014, 08:39 PM
Re: 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

I had massive fibroids at 37, and my womb was the same size as a 5 month pregnancy. After bleeding for months, I was advised if I didn't want kids ( I am childless ) my best bet would be surgical but that removal of the tumours only would likely end up in a hysterectomy within a year. I opted for a hysterectomy and had to go on Lupron to reduce the tumor size prior to surgery, and the side affects were not good. Hot flashes and menopausal symptoms. I opted for hysterectomy because they told me my chance of conception would be so low due to possible scarring from the myomectomy, and now gratefully I at 43, I have no menopause symptoms ( kept ovaries ) and have a thriving and fantastic sex life, and am enjoying my 40s pain and period free. If you don't want kids and at 25 you are already at this point, I can only tell you my experience was very positive choosing for aN Abdominal TAH. My aunt had a vaginal hysterectomy and has tons of issues with her bladder. Look at all your options and do what feels right in your heart, but I'd say if you don't want kids for sure, a hysterectomy can have a fantastic outcome if you have a good surgeon and can avoid complications.
  #16  
Unread 04-22-2014, 09:20 PM
Re: 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

I'm 53 yrs old, had a myomectomy to remove a grapefruit size fibroid 15 years ago. I had regrowth starting about 6 years ago and was going through menopause so no bleeding impact until late last year. I am physically active, have run 5Ks through half marathon. I experienced slight bleeding last fall immediately after a short run which led to ultimate hysterectomy 6 weeks ago. I had three fibroids and as it turned out "a lot of polyps". My surgery was LAVH with three tiny incisions. I was cleared to normal exercise at my two week post op appointment. I started the beginning of my third week and did fine, a little easy on the abs at first just to ease into it but I had no problems at all. I was back to full exercise with weights and full ab crunches etc. in my 4th week post surgery. I feel so much better now and if I had known fibroids would grow back and that I wouldn't have any children I would have had a hysterectomy 15 years ago!
  #17  
Unread 04-22-2014, 10:32 PM
Re: 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

  Quote:
Originally Posted by sisterduke View Post
Fibroids will grow with progesterone.I have read over and over of progesterone therapy causing continuous bleeding. Did you have a hysterscopic myo ? I had UFE for an intramural fibroid and it worked great! You seem very young to have a hysterectomy. My two cents..
I had a laparoscopic myomectomy, with five small incisions on my abdomen. I had five submucosal fibroids ranging in size from golf ball to softball, and my uterus was enlarged to twice a normal size. My bleeding with these new fibroids is under much better control while taking oral progesterone. It is hard to say whether the improvement is because of the progesterone alone or if these fibroids have a different placement than my first ones.

Depending on the size and location of these new fibroids, I may or may not be a good candidate for UFE. My doctor wants to discuss hysterectomy with me because of how quickly new fibroids grew after surgery and because of the type of fibroids I tend to grow. My doctor described her findings during the myomectomy as my uterus being entirely filled with fibroids; there was no unaffected uterine tissue found inside of my uterus, it was all fibroid surface. So on the one hand I am very young to have a hysterectomy, and on the other I am prone to rapidly growing fibroids that have resisted treatment.
  #18  
Unread 04-22-2014, 11:50 PM
25 years old, fibroids regrew after myomectomy, now possible hysterectomy

I refused progesterone therapy because it did not make sense to add a hormone to one who was a hormonal wreck. Plus my fibroid was growing rapidly.

Our situations are completely opposite. I grew one giant intramural, meaning it is in the lining, fibroid measuring 22 weeks. It was shaped like a pineapple and stretched across longways. Its fruit equivalent was a small pineapple. Had horrible edema, bleeding, cramping. Last period before UFE lasted 2 months and three weeks. I was anemic and my hair was falling out. I had ufe because I wanted to try a lesser alternative first and I did not want a surgical menopause. Because my fibroid is in the lining I have to wait for my body to absorb tissue which takes longer. I'm 22 months post. My uterus is at 8 weeks , maybe at berry size and I feel so good. My hair is soft, my iron restored, and I'm getting my body back. Orgasms are so intense without the fibroid.

I'm part of another support group. The same day I was embolized for my pineapple, she was embolized for her "fruit bowl". Like you her uterine cavity was covered with submucousals. While I never bled due to mine being in the lining, she had extremely hard periods since her uterus was able to reject them. By 6 months she was significantly healed where I am significantly healed at 22 months. My point is placement makes a difference with ufe and you actually have the advantage because your fibroids are in the uterine cavity.

I'm sure you will decide and be very happy. Good luck to you!
  Quote:
Originally Posted by 01232014 View Post
I had a laparoscopic myomectomy, with five small incisions on my abdomen. I had five submucosal fibroids ranging in size from golf ball to softball, and my uterus was enlarged to twice a normal size. My bleeding with these new fibroids is under much better control while taking oral progesterone. It is hard to say whether the improvement is because of the progesterone alone or if these fibroids have a different placement than my first ones.

Depending on the size and location of these new fibroids, I may or may not be a good candidate for UFE. My doctor wants to discuss hysterectomy with me because of how quickly new fibroids grew after surgery and because of the type of fibroids I tend to grow. My doctor described her findings during the myomectomy as my uterus being entirely filled with fibroids; there was no unaffected uterine tissue found inside of my uterus, it was all fibroid surface. So on the one hand I am very young to have a hysterectomy, and on the other I am prone to rapidly growing fibroids that have resisted treatment.
  #19  
Unread 04-25-2014, 02:55 PM
Re: 25 years old, fibroids regrew after myomectomy, now possible hysterectomy

Thank you everyone for sharing your experiences. It's very encouraging to hear that treatment means that I won't have to give up on my running and exercise goals. If I have a hysterectomy, the surgeon who performed my myomectomy will be able to do it laparoscopically and robotically-assisted, and I had a very good experience with her the first time around. My appointment to discuss what treatment may be best is next week, and I am looking forward to finding a solution.
  #20  
Unread 06-13-2014, 08:20 PM
25 years old, fibroids regrew after myomectomy, now possible hysterectomy

  Quote:
Originally Posted by 01232014 View Post
Thank you everyone for sharing your experiences. It's very encouraging to hear that treatment means that I won't have to give up on my running and exercise goals. If I have a hysterectomy, the surgeon who performed my myomectomy will be able to do it laparoscopically and robotically-assisted, and I had a very good experience with her the first time around. My appointment to discuss what treatment may be best is next week, and I am looking forward to finding a solution.

Hi. I know this is an older thread but I'm 29 and just had a robotic assisted hysterectomy. It went well. I'm only 3 days out of surgery and I feel great. I hope you find relief soon. I had mine because of a serious prolapse and no one could believe I could be having a hysterectomy so young but I'm so thankful I did it. I am still in pain but I feel better already. Best of luck to you.
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