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Unread 10-26-2003, 11:35 AM
ovarian cancer questions and concerns

Hi all... I'm old and new around here. I found great support here 2 years ago when I had a TAH/LSO. Naturally HysterSisters was the first place of support I thought of when I saw my doctor last week. I'll explain, and I hope you can share your thoughts and ideas.

I've had diarrea problems for about a year now. I've dealt with it and put it off, and tried to put it out of my head... but in the past 2 months it has become quite hard to deal with publicly. I never know when the diarrea will hit me, and I always need to know if there is a bathroom nearby in case it hits me FAST. I finally decided to see my doctor about it last month. She ordered an abdominal ultrasound, which found a 10 cm thick-walled mass where my right ovary is.

She ordered another transvaginal ultrasound, which confirmed what the pelvic ultrasound saw. She ordered a ton of blood work, which isn't back yet. I asked her if she was doing a CA125 test and she said that CA125s are not accurate in women under 50 years of age.

She wants me to see a gynecologist about the lump, but my appointment isn't until November 17. My right side *is* somewhat tender if I push on it, but on a day-to-day basis it really doesn't interfere with my life. The diarrea is the biggest problem. Oh, and my armpits too. For some bizarre reason my armpits are very sore to pressure of any sort. Whether that is related or not, I don't know.

Should I be concerned about having to wait so long to see the gyn? My biggest concern is that I have to wait until November 17, then what if I have to wait longer for more tests? Is ovarian cancer a type of cancer I should be worrying about? Do I have time on my side, or should I be pestering anyone about seeing a specialist sooner?

Any thoughts or suggestions would be MOST welcome! Thanks so much!

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Unread 10-26-2003, 01:22 PM
ovarian cancer questions and concerns

Catherine, just wanted to post that my thoughts and prayers are with you. I can't offer much but I can tell you that I'm 45 years old and we (my doctors and I) are following my CA 125 level. It was elevated before my surgery (in the 267 range). After surgery, chemotherapy and radiation, the last test (that I have the results for) was 9.

Keep asking questions and God bless.
Unread 10-26-2003, 02:02 PM
ovarian cancer questions and concerns


There is no point in fretting/stressing about "What if"? - so!

I strongly urge you to demand your doctor for the CA 125 test, and take it from there. Insist upon it, based upon your ultrasound report. If the number is even one number over 35 (35 is the top of the normal reference range), get a referral to a gyn/onc.

Get it this week; it might be the first thing that the gyn. at your Nov. 17 appt. might ask for, so do it now.

I have never read that CA 125 tests are not accurate in women in your age group, but then I am not medical. Ask your doctor where she found that info, and share it with us, please.
Unread 10-26-2003, 02:10 PM
ovarian cancer questions and concerns

s Kate

Forget that appt with the gyn. Make an appt with a gyn/oncology doctor as soon as possible. To see a gyn first may waste valuable time. I would call a few gyn/onc offices and see who could see you the soonest.
Ca 125's are not perfect. But they can prove to be a valuable indicator before and after removing the mass. I too would insist upon having one checked. If you regular doctor will not, I am sure the gyn/onc will.
About the underarm tenderness, you do not feel enlarged lymph nodes in your axilla, do you?
Stay in touch.

Unread 10-26-2003, 03:14 PM
ovarian cancer questions and concerns

As Always, Karenann gave you great advice. Get an appointment with a gyn/onc as soon as possible. Let us know what he/she says.

Ruth S
Unread 10-26-2003, 07:15 PM
ovarian cancer questions and concerns


I really cannot add anymore than has already be said. Everyone said it all and I certainly hope that you take their advice.

My ca125 was 454 before my surgery for ovarian cancer and it is now 9. To me, that low low number means that all is well inside me, for now and hopefully forever.

Please keep in touch and follow everones advice.

Unread 10-26-2003, 07:23 PM
Karenann Said it All

Get to a gynecologic oncologist, not a plain GYN. The CA125 test isn't perfect, but it will give an indication of what may be going on when used in combination with a pelvic/rectal exam and the ultrasound. Gyn/oncs are the experts!
Unread 10-27-2003, 07:13 AM
best wishes

Dear Catherine,
Everyone here has given you very good advice. A gyn/onc will know best. Thoughts and prayers to you during this time. It is hard waiting to know what's going on.
Unread 10-27-2003, 07:42 AM
ovarian cancer questions and concerns


Dont make my mistake and feel you have to be under your gyne as you have known him/her for years and years. You need to see a gyn/onc even if your gyne says otherwise.

take care
Unread 10-27-2003, 01:17 PM
ovarian cancer questions and concerns

Thanks everyone for your good advice.

I phoned my regular doctor today and insisted on a CA125 and I had it done at noon today. Does anyone know how long it will take to get the results from the CA125?

How do I find a gyn/onc? They don't seem to be listed that way in my yellow pages.

Should I phone my hospital?

Also, should I be bothering an oncologist if I don't know for sure whether my lump is malignant or not?

Hope I'm not being a pest... I really HAVE been scouring this site and all the others I can find on Google.


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