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Total Hysterectomy in Feb. 2021 - increasing anxiety, night sweats, and sleep disruption. Total Hysterectomy in Feb. 2021 - increasing anxiety, night sweats, and sleep disruption.

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  #1  
Unread 09-14-2021, 01:10 PM
Total Hysterectomy in Feb. 2021 - increasing anxiety, night sweats, and sleep disruption.

I had a total laparascopic vaginal assisted hysterectomy and endometriosis excision surgery with a major complication in February. The complication was that in the process of trying to separate my only remaining ovary from my ureter the ureter was damaged. The damage did not become apparent during surgery, so it took a couple of weeks to convince people something was wrong. I had 2 abdominal CTs and they didn't see it. It took testing the 4 liters of abdominal fluid and some bladder and ureter and kidney procedures to figure it out. I had a nephrostomy tube for 7 weeks until my right ureter reimplant and bladder moved up and a psoas hitch.

It's been a very long year to say the least. I turned 35 in August. I went back to work full-time 4 weeks after the repair surgery in mid-May. I had fatigue and soreness a lot, but that seemed normal. Finally 4 months after my repair surgery I can vacuum and do some light work without paying for it in extreme soreness. In June/July I developed lymphedema, which I'm still dealing with and might have to forever - I'm meeting a Mayo physician in October to discuss it.

Towards the end of July and into August I noted ever-increasing anxiety. I've been in therapy 10 years and know my issues, but I started seeing someone new who assessed me as having severe anxiety and PTSD and moderately severe depression.

I decided to go off of caffeine and met with my functional MD about my thyroid meds bc in the past that has been a contributing factor. We dropped my dose a bit and I thought for sure that would alleviate my symptoms. Instead, I have started night sweats and increased frequency at night. I probably sleep about half the night. Over the first weekend in September I had very bad breast pain on both sides and horrible anxiety. Racing heart going to bed, racing heart waking up. My new therapist listened to me explain and said it sounded almost chemical or hormonal so I called my pharmacist and my functional MD who manages my thyroid.

Aside from the breast pain possibly being cyclical, I do not know where I am at in my cycle. I used to feel ovulation and know when it was happening, but I feel like I've lost my cues and maybe I'm not ovulating. They noted a cystic structure a few months ago, but ovarian cysts, including hemorrhagic cysts have always been a problem for me before. My ovary has clearly been traumatized, especially by the recent February surgery (I had 2 surgeries in 2019) because they had to work at it to separate it from the ureter preserving as much tissues as they could. It seemed like the ovary kicked back on and I was trucking along ok until the last month or two.

Today I had my thyroid and estradiol and progesterone tested. Estradiol seemed ok, my TSH is suppressed, my Free T4 is low, and my Free T3 is the lowest number in range, so I guess we need to increase that dose again. Progesterone was <=.21 which is less than the post-menopausal range, which is <=.73

I'm very confused as it seems my body is producing estrogen, but maybe I'm not cycling/ovulating right now, or anymore, to create progesterone? Once you notice something is off and you can't follow a cycle do you supplement progesterone continuously and ignore the cycle?

The functional MD would use bio-identical transdermal I believe based on what I know about her practice.

Then today I noted a breast lump higher up by my sternum - I'm going in tomorrow to see if it's another breast abscess (I had one last year in the other side).

I'm just so tired!!

For supplements I am taking an herbal tonic morning and lunch (this has things like rhodiola, ashwaganda, etc in it), some probiotics, turmeric, multi, fish oil, magnesium, and vitamin d drops. My natural desiccated thyroid prescription, and low dose naltrexone are the only medications I take.

Looking for people with similar experiences with low progesterone with an ovary (or two) after hysterectomy and the approach you took. Or, if you have any insight in general.
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  #2  
Unread 09-24-2021, 09:39 AM
Re: Total Hysterectomy in Feb. 2021 - increasing anxiety, night sweats, and sleep disruption.

FYI: for anyone else. I started on 100mg progesterone nightly 9 days ago and am starting to feel a bit better! More sleepy at night and not as hot and while I've had sleep disruptions definitely less so!
  #3  
Unread 09-24-2021, 09:59 AM
Re: Total Hysterectomy in Feb. 2021 - increasing anxiety, night sweats, and sleep disruption.



Thanks for taking the time to update on how you are doing. Your experience may help someone else in the same circumstances.

Did your doctor prescribe the progesterone to use cyclically or will you be using it continuously?

I hope you continue to notice improvements!

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  #4  
Unread 09-24-2021, 10:30 AM
Re: Total Hysterectomy in Feb. 2021 - increasing anxiety, night sweats, and sleep disruption.

Hi! I will be taking it continuously as I feel I do not have good cues as to my cycle anymore. I used to know when I was ovulating all the time before my hysterectomy, but maybe I'm not ovulating much anymore and that's why my progesterone is lower? I also have some breast pain, but I have fibrocystic breast changes I believe, so I really have no clue anymore about my cycle! So, I'll take it continuously.
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