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Pelvic/ bladder ache - adhesions? Pelvic/ bladder ache - adhesions?

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  #1  
Unread 06-14-2021, 08:02 AM
Pelvic/ bladder ache - adhesions?

Hi All -
I had a full abdominal hysterectomy in 2005 (I remember specifically because I watched all the Hurricane Katrina coverage during my recovery).I had set up a HysterSisters account back then but can't remember my login info, so started a new account--so glad you all are still here!

Anyway, since February, I've had a continuous dull ache, intermittent with bladder pain, or some stabbing pains in my lower abdomen. Initially my primary diagnosed it as a bladder infection, gave me several courses of antibiotics, which didn't help, and she sent me to the local urologist. He did a cytology (? scope in bladder) and saw that my bladder was somewhat inflamed, so gave me an anti-inflammatory for 3 weeks. But he basically said he has no idea what's causing it. My pain eventually receded for a couple months (more or less)...but...

Now for the past 2 weeks or so my whole pelvic area is aching again. It almost feels like menstrual cramps but I don't have any parts anymore. I finally went to the ER a couple days ago and the ER dr said he thinks it's adhesions from my abdominal surgeries (first in 2001 to remove an ovary, and then 2005 for the full hysterectomy). I am seeing my primary today to discuss this and hopefully get referred to somebody to hopefully DO SOMETHING. I can't keep on like this. The ER doctor gave me a couple days' worth of Percocets which help, of course, but I can't take that all the time, nor can they prescribe much of it.

My question is - have any of you had experience with adhesions, specifically in the pelvic area? And if so, how did they resolve it?

Thank you! (owwweeeee!)
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  #2  
Unread 06-16-2021, 03:41 AM
Re: Pelvic/bladder ache - adhesions?

and welcome back, though I'm sorry to read of the issue which brings you back to us. I've moved your post to The Road Less Travelled since your question is about adhesions. Most past posts on adhesions can be found here.

I've had an adhesion, though not pelvic or bladder. I didn't even know I had one until it caused intestinal blockage for which I needed emergency surgery. When it first hit, pain was delirium level and I was throwing up almost continuously. Hospital thought it was only a partial blockage and wanted to see if it would resolve itself, but after two days of not eating and still throwing up, the urgent care doctor pushed for surgical intervention. The ER surgeon (excellent care, btw) found the blockage was caused by a single band adhesion choking off passage from the small intestine. It broke away as he probed, and he removed it via adhesion lysis. That was 3 months ago.

The problem with surgical release of adhesions is that surgery can lead to adhesions! I'm well aware of that myself, although in my case, not having surgery for the blockage could have been life threatening.

Something mentioned in one of our articles, Interstitial Cystitis vs. Adhesions is the Wurn Technique, a particular physical therapy method designed specifically to address adhesions after surgery or injury. There's only a few clinics in the country which do it, established by the founders of the technique, and it's a morning and afternoon session over 5 days. I'm sure there's a significant price tag for such an intensive - probably less than surgery, but would insurance cover it?

If I were in your place... I would contact your gyn (since you still have your cervix), or seek a uro-gyn with in depth knowledge of both urology and gynecology. When my doctor of 25 years retired two years after my hysterectomy, I opted for a uro-gyn with skills in laparoscopic surgery and also someone who I could "grow old with" in case I ever have bladder issues. Rule out anything which may be related to your cervix or bladder, and if it seems to point to adhesions, discuss options. It may be that standard pelvic floor therapy could help.

  #3  
Unread 06-16-2021, 04:55 AM
Re: Pelvic/ bladder ache - adhesions?

Hi Cussette - thank you so much for your informative reply! Since I wrote my initial post, I've seen my primary and a GI/Gastro specialist and both have just prescribed medication to see if the pain can be controlled with that first (gabapentin; amitriptylin). I also have a OG/GYN appointment in a week. The doctors have all said what you said--more surgery means more possible adhesions.

I'm so glad they found your intestinal blockage and got it repaired. That sounds horrible!! I sure hope you don't develop the adhesions again from this latest surgery!

I've never heard of the Wurn Technique, so I'll start researching that. Thank you for pointing me in that direction. Meanwhile, I'll take all these meds and see the GYN next week and hopefully something will start to work. Maybe it's my imagination, but today the pain doesn't seem as bad, so maybe the meds are working (?).
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  #4  
Unread 06-17-2021, 05:32 AM
Re: Pelvic/ bladder ache - adhesions?

Keep us updated on this thread. One thing I found in doing my own search for experiences is that not too many of our Sisters follow up and it leaves you hanging, wanting to know the "rest of the story".

That's why I've journaled my recovery from this, even though it wasn't surgery to specifically address adhesions.
  #5  
Unread 06-17-2021, 05:44 AM
Re: Pelvic/ bladder ache - adhesions?

Hi again - Well, today, I have to say, my pain is much better! The meds are actually working I guess. I'm amazed and cautiously optimistic, but still a work in progress (ob/gyn appt next week).
  #6  
Unread 08-03-2021, 11:17 AM
Re: Pelvic/ bladder ache - adhesions?

Good to read your pain improved. It's been a few weeks since posted so your issue may have been resolved. After multiple surgeries and aseptic peritonitis, I have adhesions also leading to similar issues as you describe and learned my diet had an influence on the pain. If I stick to a whole-food-based diet avoiding simple carbohydrates and sugars my digestion improves and pain resolves or becomes very manageable. Constipation is a sure-fire pain trigger.
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