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Vulvectomy for cancer Vulvectomy for cancer

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Unread 04-27-2004, 04:17 PM
Vulvectomy for cancer

I just need to vent. I just need to scream. I have gone through the 2nd set of biopsies and now have to make the decision if or when to have this procedure. Has anyone else had to go through this??? Help!!!!!!!!! Anyone!!!!!!!!!!!!
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Unread 04-27-2004, 06:31 PM
Vulvectomy for cancer


I'm so sorry to hear your situation! You must be feeling very nervous and overwhelmed. Cry, scream, and kick your feet. You deserve to do that--this is totally not fair!

I had part of my perineum removed along with part of my vaginal wall (at the vaginal entrance). My labia and such were not involved.

How extensive is your cancer? Is it at an early stage? Is radiation an option? How large is the area of involvement? We have had a few other women come through here with vulvar cancer. Perhaps others will be along with their stories.

Sending 's and 'ers your way. Please let us know how you're doing and what you decide to do. And remember, we're open 24/7, so feel free to ask all the questions you want, or just come looking for support. We're with you all the way!

Unread 04-28-2004, 03:29 AM
Vulvectomy for cancer

My cancer is ovarian but I just wanted to send you a .
You've come to the right place if you want to scream or vent. We understand.
Ruth S
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Unread 04-28-2004, 07:11 AM
Vulvectomy for cancer

I am so sorry for what you are going thru. Sounds like you have been thru the ringer and back again. I will add you to my prayer list and hope that every thing goes okay.

I am sure that the others that have had vuvlar cancer will be on here shortly, to chat with you.
Unread 05-19-2004, 05:16 PM
Re:Posts to my Vulvectomy for Cancer

I just want to thank you girls who sent a response to this particular post. After much soul-searching, a letter from my oncologist guaranteeing my death if the surgery is not performed and "new & wonderful lesions" appearing, my surgery is scheduled for May 24th. While I cannot stand the thought of having it done, the images of the mutilation are too much to bear, the thought of dying is even more unbearable. I DO NOT KNOW HOW, but someday I'll get through this!!!
Thank you sisters!!!!!!!!!
Unread 05-19-2004, 05:57 PM
Vulvectomy for cancer

Jazinol, You are in my prayers. I have not been on the site as much lately I'm not sure why, but today I went to see my skin Dr. for a yearly check-up (family history of melanoma and bout of skin cancer a few years ago) anyway, I mentioned after the exam that I had cancer and treatments since my last visit and he said that it was very important to tell him and asked if I was being closely watched by a gyn/onc I said yes and he said the isotope (spelling) radiation treatments makes squamous cell vulva cancer a possiblility I almost fell off the table he said keep checking for any rough spots down there. I want to SHOUT THIS AT THE TOP OF MY LUNGS and I wanted to call all the doctors but I just couldn't bring myself to do that, then I thought maybe I should just get online and let all of my sisters know.
Again you will be in my prayers
Unread 05-19-2004, 07:41 PM
Vulvectomy for cancer

Hi Lorianne,

I have not had a vulvectomy, but I have had a partial, radical vaginectomy. In Feb 2004, my Gyn/Onc told me I was in complete remission. I am glad I had the procedure done. Life is worth going through tough times.

Unread 05-19-2004, 08:10 PM
Vulvectomy for cancer

Hi, Lorianne. Just want to let you know that you're in my thoughts and prayers. I agree with you totally... if the option is my own demise, well, it certainy makes the decision easier. And you will get through this. I think sometimes that it's really our fears of the unknown that really rock our world.

Good luck on the 24th. At least you don't have to wait that long before your surgery.

Let us know how you're doing.

God bless.
Unread 05-20-2004, 01:01 PM
Vulvectomy for cancer

Hi, Lorianne.

I don't know anything about the surgery that's been proposed, but I agree that you should probably go through with it, especially given what your doctor had to say. MariaCoo, another member of this board, recently went through a massively invasive surgery; you might want to search for some of her recent posts. She has made it through with flying colors, despite a few complications. And she is happy to be alive, despite the changes that she's had to undergo.

It's amazing what we are all willing to do to survive. The human spirit is so strong!

I hope God brings you through your surgery on the 24th with flying colors, and that your recovery is swift. Exercise helps you recover, so when you can walk a bit, do try to. We'll be thinking about you! s!
Unread 05-21-2004, 07:55 AM
Vulvectomy for cancer

You will be in my thoughts and prayers! I also do not know a lot about the type of surgery you have to have, but it sounds like it is mentally challenging you quite a bit.

I think we all need to be reminded from time to time how powerful our minds really are. If your mind can think of your surgery as mutilation, then it can also think of it as re-shaping your beauty. The brain is all about preservation of the body. Use it to your advantage!

Do something nice for yourself today!

Keep us posted.


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