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Many years Endometrial Cancer survivor with questions Many years Endometrial Cancer survivor with questions

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Unread 05-22-2021, 03:53 AM
Many years Endometrial Cancer survivor with questions

I was a pretty active member on this forum when I was diagnosed with low stage/grade endometrial cancer in 2004. Following diagnosis had TAH/BSO surgery I alternated seeing my Gyn Onc MD and my Gyn MD over the next 5 years, and at 5 years was discharged from the care of my Gyn Onc and have seen my GYN MD annually since from 5 years to present. I guess about 3 years ago vaginal cuff smears were no longer recommended for long term survivors, so from there on my annual exams consist of a look see, and a bimanual to feel for masses, as well as a rectal exam and then on am sent on my way. I am planning to retire after a 44 year nursing career this coming February and following my husband and I will be relocating to Florida, so I asked my GYN MD which I had my annual the other day if I needed to continue to see a GYN MD in Florida being so many year past diagnosis and surgery. And he said if I had a benign hysterectomy he would say no, but in all good conscience he recommends me to continue to have annual gyn exams the rest of my life. Just curious if there are any long-term endometrial cancer survivors who faced the same dilemma and was told something different from their doctor. Not that it is a big deal for me to continue with these annual exams, but am curious to know if others like me have been advised to or chosen to follow another path. Thanks in advance for any response.
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Unread 05-25-2021, 08:13 PM
Re: Many years Endometrial Cancer survivor with questions

I had a different type of cancer, but I think the general consensus for those of us who've had hysterectomies due to gyn cancers is to continue exams based on consultation with your doctor. Not terribly helpful I know, but that's my understanding. Otherwise, big congratulations on your survivorship! Here's to many more healthy, happy years!

Unread 06-28-2021, 11:42 AM
Re: Many years Endometrial Cancer survivor with questions

I had a similar diagnosis to yours in 2008 and have continued to see my gyn onc. I was told I didn't need to see a gyn onc after 5 years but if I wanted to continue my yearly exams with her, I could. And I have.
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Unread 06-29-2021, 03:12 AM
Re: Many years Endometrial Cancer survivor with questions

I had Grade 1 Stage 3 in 2010. After 5 years when frequency dropped to once a year, I was seeing my gyn onc annually until I moved to another state. The VA here refuses to refer me to a gyn-onc for follow-up like the other VA was doing :-( Since I don't like the only gyn the VA has here and would much rather have follow-up with gyn onc, I might have to pay for non-VA gyn-onc out of my own pocket. Missed 2020 follow-up due to covid :-( My PCP says I still need annual follow-ups, just like I need annual follow-ups for my thyroid cancer (1988 and 1990).

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