PAIN every day... Sick of pills....

I am a new sister and am so thankful for all of the information and support I have found so far. Is there anyone else like me who is waiting for surgery and is incredible pain every single day? I take a cocktail of different pills just to be able to function, and hormones to manage my endometriosis. I've had two laps so far and neither helped for long and my LAH is not scheduled until DECEMBER! I feel so alone and sometimes I don't know how I'll ever make it that far... Is there anyone else out there like me who is in agony every single moment of every single day...? How do you cope? Is there a light at the end of this tunnel?

Sadly, Clementine

Oh sweetie! I feel your pain! I have been off work for almost 3 months and I have been on so many pills.......I was just where you are now. SICK OF PAIN AND PILLS! The thought of taking another pill made me want to puke. My pain level was high. All I did was eat pills and sleep. Some life,huh?! I finally went to my doc and begged for something that was non narcotic that would work. Believe it or not ultram did it! I was able to get off of the percocets and function. I have a high tolerance to pain meds and most only work a few days with me so I was not expecting much from ultram. It worked!!! I was thrilled to be able to control the pain and get back to life. I know there is a rainbow under all the clouds! Keep your head high and dont give up!!

Oh, Clementine,
I am so sorry that you are suffering so. Can you tell us why you have to wait so long? Have you bluntly asked your surgeon to move your date up or call you if he/she has any cancellations?

I am going to pray for you to have relief in the short term and a sooner date at the castle and a great recovery in the long term.

What activity gives you joy? Do it. What people are a pleasure to be with? Call them up. How do you enjoy serving others? Help somebody. Give something away.

Distraction, Distraction, Distration. Diversion is the best pain relief when nothing else works.

I'm going to the castle tomorrow. I'll pray for you while I'm there, and I will look for an update from you when I get home.

"Never give up, never, never, never."

December? Why so long?

Thank you all for your empathetic replies... it helps to know that other people care. I have to wait until December because my gyno is booked until mid-July... my DH will be out of town for all of July and I can't do it w/o him because I'll need his help, as will our two young children. Since I teach college and return in late August I cannot do it in early August and still have recovery time. Early December leaves me with 6 weeks to recover without losing my job (I am not in a tenured position). I am on a waiting list for May and June, but am not hopeful... I don't want a different gyno because mine is a specialist in endo, a wonderful laparascopic surgeon, and I trust him. I just try to take things one day at a time. I wish I was teaching because at least that helped me keep my mind off the pain. This site helps me tremendously. My immediate family (not including DH) is unsupportive of my surgery decision and my friends try to be sympathetic, but I look "normal" and "fine" so I feel like I'm living with a horrible secret nobody else understands. Thanks for listening and caring, sisters.

Clementine

I know exactly how you feel and I am so sorry you are going through this. I have been in pain on and off for 13 years and this past bout started 6 months ago and has been going strong since. I had to quit my job and move from Denver to San Francisco where my parents live to have them take care of me. Now I have made the decision to have a hysterectomy and I only have 3 more weeks to go. But the road here has been really rough I feel like I have been waiting for this day since I was 12! Sometimes I don’t know what is worse the pain or the way the morphine makes me feel. My best advice to you is try to get yourself out of the house everyday. I try to go see movies, go to the beach, or even just go for a drive. Just keep on focusing that in December this will all be over and you will finally be out of pain! Please pm me if you want to vent I really do know where you are coming from.

(((Clementine)))
Yes hon I do understand. I am in pain every minute of every day, even with the percocet. I take them every 4 to 6 hours, but the pain never truly stops. It just eases enough to let me function. Some days it seems absolutely unbearable, as though it is not worth going on. But I know in my heart it is only a matter of time until this is taken care of.

I'm so sorry you have to wait until December. I've had mine booked for almost 3 months and still have 3 weeks to go. It is so hard to wait. I just want this thing out of me NOW!!!

How do I cope? Well, I sleep alot. Sleep is my body's way of escaping. My heating pad is my best friend. It's with me always when I'm at home. When I'm at work I wear those Playtex "heat therapy" pads on my back, because the heat gives me comfort. It does nothing for pain, but it does give me comfort. I read alot. That helps take my mind off pain. It is very frustrating and mentally draining to deal with chronic pain. People can't seem to understand that because you look ok on the outside. They can't see that every movement causes sharp knifelike pain in your abdomen. They can't see that your back never stops burning and aching.

I've had alot of illnesses in my life. None have ever made me feel as helpless and hopeless as my endo and adeno. Other illnesses I have been able to manage. But this one has taken over who I am. I hate it.

Not much I can offer but a listening ear and a big . Know that I understand.

Tam

Clementine --

First, I'm so sorry that you're suffering and that you have to wait so long for your surgery. I did notice that you're from Rochester -- I am too! One of your posts mentioned that you see an endo specialist. Is it Dr. F. H. at Strong by any chance? (We're not supposed to mention doctors by name here.)

I am waiting on pins and needles to find out whether Dr. H will be able to do my surgery. It's a long and sordid story -- see my post titled "could use some prayers and positive thoughts." Dr. H operated on me in 2002 and I am praying he'll be able to do my hyst next month as I had originally planned.

If you'd like to e-mail me, please do. It would be nice to have someone local to commiserate with.

Best wishes.

Susan,

YES, we DO have the same gyno. I would love to write to you but have been unable to contact you through this site. Please send me a pm or e-mail if you would still like to correspond. And good luck on your visit to the Castle.

Warmly, Clementine