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Multiple health problems: GI diseases & fibroids - hysterectomy suggested Multiple health problems: GI diseases & fibroids - hysterectomy suggested

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  #11  
Unread 09-15-2021, 07:25 PM
Multiple health problems: GI diseases & fibroids - hysterectomy suggested

I had my hysterectomy due to multiple fibroids, Adenomyosis and pelvic congestion syndrome. I was 43. I thought I did all of my homework. And had enough opinions. I was wrong. I wish that I didn't do the hysterectomy. I wish I would have went to an Interventional Radiologist. I developed many medical problems after my hysterectomy.
I now have Lupus, Fibromyalgia and Chronic Migraines. I felt like I traded one set of problems for another set of problems. Sending hugs your way. I wish you the best of luck whatever you decide to do.
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  #12  
Unread 09-26-2021, 11:27 AM
Multiple health problems: GI diseases & fibroids - hysterectomy suggested

  Quote:
Originally Posted by Annieoldone View Post
I’ve had fibroids and polyps that were surgically removed. The fibroids came back of course. I did opt for the hysterectomy with total removal of all reproductive organs. I was offered to have ablation or an iud with ultrasound and biopsy every 6 months. In hind sight, I wish I hadn’t jumped at the hysterectomy because I was tired of the pain and bleeding and tried the ablation first. I also have ibs-d. Talk to your Dr. as well as get a second opinion so you know all your options and potential side effects.

Good afternoon,

Thank you for taking out the time to share your story and give me advice.
I just had another ultrasound, uterus is now 16cm, largest fibroid is almost 11cm.
I'm 44 and I know I don't want any more children but that doesn't mean I want them to take out my uterus unless its absolutely necessary.
They keep recommending hysterectomy.
I'm sick of hearing them so it.
Last doctor I saw to get another opinion said same thing.
Pain is brutal at times.
Having other GI problems doesn't help the situation either.
I pray for you to get some relief.
I don't know how my body would change after the hysterectomy.
The doctors keep saying I'll feel so much better etc.
Some women do great some don't.
I know when I had the myomectomy that was the worst recovery, pain never stopped, took my several months to feel better.
Now I'd do a myomectomy and they don't want to, say it's too risky because of the size of my fibroids.
Thank you again for your advice and for sharing.
God bless you.
  #13  
Unread 09-26-2021, 11:34 AM
Multiple health problems: GI diseases & fibroids - hysterectomy suggested

  Quote:
Originally Posted by Filly78 View Post
This could have almost been my exact post before my hyster. I have crohns, irritable bowel, POTS, and several other healthy issues (I’m 43) Looking back now I would do it all over again in a heartbeat!
The recovery is no joke and one of the most difficult things to heal from but I can tell you almost 2 years out things now are great! No pain, no bleeding, crohns has calmed down since the hyster as well.
Good afternoon
Thank you for sharing and giving advice.
Just curious your doctors weren't in the philly area or close by were they?
I'm so scared about the procedure. Doctors are more concerned about the scar tissue from my previous surgery and csection being stuck to my other organs also. Said other organs might get cut accidentally.
I don't want that to happen.
I appreciate their honesty.
Don't know if I should try other options first before doing a hysterectomy.
My gynecologist has skipped over any of the other fibroid alternatives and wants to do abdominal hysterectomy.
How has your body changed since the hysterectomy?
  #14  
Unread 09-26-2021, 11:38 AM
Multiple health problems: GI diseases & fibroids - hysterectomy suggested

  Quote:
Originally Posted by Tracey Herlan View Post
You didn't mention why you are resistant to hysterectomy. I had my hysterectomy at age 42 due to large fibroids, pain , and heavy bleeding. I have never regretted it even for one minute. I was done having children and my broken uterus was causing more problems than I wanted to deal with.
Good afternoon
Doctors said I'm high risk for a lot of bleeding because they want to go in through the same cut I had for my myomectomy and csection. They are more concerned about the scar tissue than the actual removal of my uterus. They said the scar tissue is probably stuck to my other organs and thos organs might accidentally get cut when they are going in and while getting to uterus to remove it.
  #15  
Unread 09-26-2021, 03:10 PM
Multiple health problems: GI diseases & fibroids - hysterectomy suggested

  Quote:
Originally Posted by Hibiscusorchid View Post
I’m so sorry to hear about your health issues. I’m not going to say a hysterectomy isn’t your best option, but when there’s a lot of them (fibroids) in there I know a lot of doctors recommend it. I don’t have many health issues, but stress causes my bowels to really act up. My doctors basically told me with my 2 fibroids, one the size of a lemon, the other 1.7 cm and constant bleeding that my best option was hysterectomy since I don’t want anymore children and my periods are always painful. I haven’t had my hysterectomy yet, but I will say that the one thing I always wonder is: why wait so long to have a surgery that can correct some of your health issues? I have spent years in terrible pain every month but no one was willing to help. If you have the time(health wise) get a second opinion. Do some research, and ultimately you have to make the best decision for you. One thing that has helped me through this process was writing down what I’ll gain from this surgery. Like a list of pros and cons to help you sort through what you should do. I hope this post helped, and that you are able to make an informed decision.
Thank you for sharing and advice.
I've been dealing with this for many years.
I had an ultrasound recently and my uterus is around 16cm, largest fibroid a little bigger than before almost 11cm now, other large ones are around 7cm and 5cm. But they say my uterus is full of fibroids.
When I had the myomectomy the recovery was very painful for me, several months before I was able to walk normal, without pain. Also when they placed my uterus back in it was higher than where it should be. When I went back for 6 weeks checkup fibroids were already growing back.
I was able to get pregnant because I took fertility pills, but I bled my entire pregnancy.
The doctors are saying I'm high risk because they will have to cut through the same area in my abdomen as before and the scar tissue worries them.
I've been praying for years about what to do.
I have good days and bad.
When I have my periods I use super pads and go through around 7 a day. At night I put the pad in a pullup so I won't bleed through everything and mess up my clothes and sheets. I usually bleed heavy 4 days then lighter for next few days.
Pain is brutal but I try to stay active, that helps.
I've changed my eating and exercise habits in the past and I think I'll try it again atleast for 90 days to see if I can make a difference.
Last time I stopped eating meat except chicken and fish. I ate fish a few times a week, chicken once a week.
Cut out all junk food, no carbs, no soda, no chocolate.
Walked 2-4 miles daily and exercised.
But I work a physical job so I guess that helped also.
All my fibroids started shrinking and I felt better.
But periods were still difficult.
Now I have other health problems so I can't do what I did 5 years ago.
Its sad.
My life has changed so much because of bad health.
But like I said, I've been dealing with this for many years.
For some women hysterectomy is great others have issues. It's a chance we take.
I'll keep praying, it might be too late for me to make any changes but all I can do is try.
I've never drank many sodas, I usually drink water and green tea.
Also don't really eat too much meat.
I'm going to eliminate milk because of the estrogen.
I'll try that's all I can do at this point.
I scheduled an appointment with USA Fibroid Clinic today. They have locations all over.
Since they specialize in fibroids that's who I want to see now for another opinion.

Since I have crohn's my GI doctors have told me after the hysterectomy they're not sure if it'll help my pain or what.
Also since my bowels are already messed up once the uterus is moved I might go more often. I definitely don't need that. Already go enough as it is.
And the thought of bleeding to much is very dangerous during surgery. Since they have to cut through previous scar tissue there will be a lot of bleeding. My hysterectomy will take longer because of that.
If I have to do it I'd rather them use the robotic equipment its safer and more advanced, equipped with more tools. For instance they can stop the bleeding quickly in certain areas.
I'm not ready to leave my family by choice if something were to go wrong. If it was absolutely necessary then yes I'll choose to do it. So as you can see I have a lot to think about, prayer is so necessary.
Although if I knew 15 years ago that I wasn't going to have any more children, I probably would have had the hysterectomy because I would have been healthier than now. My recovery would have been different.
Thank you again, I appreciate it.
  #16  
Unread 09-26-2021, 03:36 PM
Re: Multiple health problems: GI diseases & fibroids - hysterectomy suggested

I just want to wrap you in a hug. You poor woman. Please seek a second opinion. My doctors did a lavh, but I don’t know if the same is possible when a previous c-section is present. It sounds like you’re doing the right thing and speaking to fibroid specialists. I’ve also read several times on here that a myomectomy recovery is much harder than a hysterectomy recovery, hope that helps if that’s causing you concern. I hope one of your doctors can give you some information that will help you make an informed decision, and that no matter what that decision is you have it done successfully, that you fully heal from it, and that your life is better afterwords. I had to make my decision quickly because birth control caused blood clots in my lungs and I was on a lot of meds, and I didn’t want to chance almost bleeding to death again. I can only imagine your stress and fear, but stay strong. You will figure out what to do and I pray be better for it. Keep seeking the right answer for you and keep asking questions.
  #17  
Unread 10-02-2021, 05:23 AM
Multiple health problems: GI diseases & fibroids - hysterectomy suggested

  Quote:
Originally Posted by Hibiscusorchid View Post
I just want to wrap you in a hug. You poor woman. Please seek a second opinion. My doctors did a lavh, but I don’t know if the same is possible when a previous c-section is present. It sounds like you’re doing the right thing and speaking to fibroid specialists. I’ve also read several times on here that a myomectomy recovery is much harder than a hysterectomy recovery, hope that helps if that’s causing you concern. I hope one of your doctors can give you some information that will help you make an informed decision, and that no matter what that decision is you have it done successfully, that you fully heal from it, and that your life is better afterwords. I had to make my decision quickly because birth control caused blood clots in my lungs and I was on a lot of meds, and I didn’t want to chance almost bleeding to death again. I can only imagine your stress and fear, but stay strong. You will figure out what to do and I pray be better for it. Keep seeking the right answer for you and keep asking questions.
Good morning,
Thank you so much for the hug, that means so much.
I've researched so much on my options and at this point I really don't have many except a hysterectomy. I've reached out to my doctor to see if he can look at a previous MRI I had to see if I have scar tissue on my intestines, bladder etc. Since my gynecologist is more concerned about scar tissue than the actual hysterectomy.
If the scar tissue is stuck on my other organs that will make my surgery more difficult.
Its difficult to get around now, the weight and pain is unbearable.
With my other gi problems I've never been constipated and now I am. Also my sugar levels are staying high.
It's to the point where my uterus is pushing against my other organs and I pray I don't end up having permanent damage anywhere.
I'm scared of the surgery and especially what will change in my body afterwards but I'll keep seeking medical help and praying for the right solution.
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