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Hysterectomy with excision surgery at 45? Hysterectomy with excision surgery at 45?

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  #1  
Unread 05-01-2021, 11:13 AM
Hysterectomy with excision surgery at 45?

Hello everyone!

I’m 45 and considering hysterectomy with my endometriosis surgery. This will be my first surgery for endometriosis for diagnosis. I also have submucosal fibroids and my specialist thinks some of my pain could be related to my uterus. I’m trying to decide if the benefits out weigh the risks.

I would hate to have a second surgery to remove my uterus if my pain doesn’t resolve with excision alone. I’m also worried about early menopause with hysterectomy even with keeping my ovaries. From the research I’ve done ovaries can fail within 2 years of hysterectomy starting menopause. Maybe this isn’t a big deal in my case since I’m 45 and maybe already having premenopausal symptoms (sleep issues, irritable which could just be from pain too). I wonder about others experiences and more research on post hyst early menopause.

Thank you!!!!!
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  #2  
Unread 05-02-2021, 03:52 AM
Hysterectomy with excision surgery at 45?


Please be aware that a hysterectomy does not necessarily cure endometriosis, nor does removing your ovaries; I recommend getting a second opinion from an endometriosis specialist, who has the specialized training to properly identify and excise all adhesions and scar tissue. For your fibroids, in addition to consulting with a fibroid specialist, I suggest consulting with an interventional radiologist about a uterine artery embolization, a less invasive procedure that can shrink your fibroids while sparing your uterus. I had fibroids, the largest of which was 10 cm across, which was considered too large for a UAE to work, and my surgery was done by a fibroid specialist; I kept both of my ovaries at age 48, and I went through natural menopause at age 51, as I would have without the surgery. Wishing you all the best for whatever you decide!
  #3  
Unread 05-02-2021, 08:01 AM
Re: Hysterectomy with excision surgery at 45?

Submucosal fibroids can be removed via hysteroscopic D&C. This is outpatient surgery and is considered the gold standard to assess the uterus. I had UFE for an intramural fibroid which worked great however 2 years later I had a hysterscopic D&C because the fibroid had shrunk so dramatically. Submucosal fibroids can bleed a lot after UFE as the body rids itself of them where an intramural like mine bled minimally. I suggest you reverse it: remove the fibroids via D&C, then have UFE. Dim or vitex may be helpful with endometriosis too. Frankly the root of your problem could be the fibroids and less from endometriosis. Fibroids are nasty and if treated while small can shrink to virtually nothing. Mine was allowed to grow huge with the recommendation of watch and wait. I was intent on keeping my uterus though as ovary removal was recommended. I know you can opt out of ovary removal but I was not sure what I would wake up to so sought the alternative. At least to start.
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  #4  
Unread 05-04-2021, 07:29 PM
Hysterectomy with excision surgery at 45?

  Quote:
Originally Posted by Smitch26 View Post
Hello everyone!

I’m 45 and considering hysterectomy with my endometriosis surgery. This will be my first surgery for endometriosis for diagnosis. I also have submucosal fibroids and my specialist thinks some of my pain could be related to my uterus. I’m trying to decide if the benefits out weigh the risks.

I would hate to have a second surgery to remove my uterus if my pain doesn’t resolve with excision alone. I’m also worried about early menopause with hysterectomy even with keeping my ovaries. From the research I’ve done ovaries can fail within 2 years of hysterectomy starting menopause. Maybe this isn’t a big deal in my case since I’m 45 and maybe already having premenopausal symptoms (sleep issues, irritable which could just be from pain too). I wonder about others experiences and more research on post hyst early menopause.

Thank you!!!!!
Hi! I had a TAH 3 weeks before my 46th birthday. I also had endometriosis, adenomyosis, submucosal, subserosal and pedunculated fibroids. In 2002 I had one ovary and tube removed because of endo, and I was basically in constant pain until 2015 when I had my hysterectomy. I also had a D&C, and resection of a prolapsing fibroid in that 13 years. I went into instant menopause after the hysterectomy because my remaining ovary was removed. I came out of surgery and instantly had hot flashes. Because of the endo, I was told that hormone replacement therapy may not be a good idea so I suffered through it. I’m 50 and just celebrated my 5 year hysterversary last December. The only advice I can give is to seriously consider if your quality of life is suffering. I had no quality of life and even with the flashes and occasional emotional spells, I still believe I’m better off now than I was for so many years prior. It’s not an easy decision to make, but I was at the point where I was basically putting bandaids on and those temporary fixes eventually faded. Stay well!
  #5  
Unread 05-04-2021, 08:38 PM
Re: Hysterectomy with excision surgery at 45?

Hi Tiger_eye! Thank you for sharing your story! I will look further into UAE and see if that is an option for my case. My surgeon is a Nook specialist. She will being doing excision for my endometriosis, but she thinks that my uterus might be another source of pain for me besides the endometriosis. I'm glad to hear that with keeping your ovaries you didn't go through menopause until your natural age at 51 that is reassuring.
  #6  
Unread 05-04-2021, 09:06 PM
Re: Hysterectomy with excision surgery at 45?

Hi Sisterduke, I'm in Vancouver WA, grew up in Oregon most of my life! Thank you for your reply and sharing your story! I'm so sorry you were told to watch and wait while your fibroids grew and were in pain. Did you get relief from your procedures?

The first specialist I was sent to recently told me that I had the fibroid, but it was likely too small to be causing me any pain. They were very dismissive in so many ways. I actually didn't think much of the fibroid at the time because I was so focused on endometriosis, but because they were so dismissive I went in search of better care. I found Nancy's nook and my current surgeon from there and she was the first one to say that the fibroid could be causing pain and because its submucosal it might be bigger than it looks on ultrasound.

The other option my surgeon presented was to make a small incision and scope inside the uterus while doing my lap to see if there is anything else that could be generating my pain and treat as necessary. Like so many this has been a long journey and I have ruled so many other things out that I need to know for sure if i have endometriosis. I plan to do the laparoscopy and excision just still deciding on whether or not to remove the uterus. I have another virtual apt next week so I will talk to her about other options for treating fibroids and scoping the uterus. Thank you!
  #7  
Unread 05-04-2021, 09:27 PM
Re: Hysterectomy with excision surgery at 45?

Dmonique, Thank you for your response as well. I am so sorry you endured so much suffering!

Determining my quality of life and if hysterectomy is worth it is exactly what I am struggling with. I have been in so much denial about my pain for so many years. I just push through it, but I'm tired. Most of the time I'm just surviving, not really enjoying life. I work on call and I only work the minimum shifts because I just don't feel good enough a lot of the time. Its hard to even remember what life without pain felt like.
  #8  
Unread 05-04-2021, 10:11 PM
Hysterectomy with excision surgery at 45?

My fibroid shrank by 90% after UFE. My uterus felt like a water balloon though which is why I sought out the d&c. The lining was thinned and sampled for disease, of which there was none. Since a camera was used I got to see photos as well. It was after this I got tremendous relief. It’s my opinion fibroids should be treated when they are small as some will completely disappear but this is not the practice. I had painful periods as soon as the fibroid became prevalent. I think your troubles could be more fibroid and less endometriosis. Mine was truly a nightmare experience! Submucosal fibroids can bleed heavily but they also resolve quickest after UFE. I think you have a sound plan and I wish you very good luck on your journey. Btw: Vancouver is about 20 minutes North of me. 😊


  Quote:
Originally Posted by Smitch26 View Post
Hi Sisterduke, I'm in Vancouver WA, grew up in Oregon most of my life! Thank you for your reply and sharing your story! I'm so sorry you were told to watch and wait while your fibroids grew and were in pain. Did you get relief from your procedures?

The first specialist I was sent to recently told me that I had the fibroid, but it was likely too small to be causing me any pain. They were very dismissive in so many ways. I actually didn't think much of the fibroid at the time because I was so focused on endometriosis, but because they were so dismissive I went in search of better care. I found Nancy's nook and my current surgeon from there and she was the first one to say that the fibroid could be causing pain and because its submucosal it might be bigger than it looks on ultrasound.

The other option my surgeon presented was to make a small incision and scope inside the uterus while doing my lap to see if there is anything else that could be generating my pain and treat as necessary. Like so many this has been a long journey and I have ruled so many other things out that I need to know for sure if i have endometriosis. I plan to do the laparoscopy and excision just still deciding on whether or not to remove the uterus. I have another virtual apt next week so I will talk to her about other options for treating fibroids and scoping the uterus. Thank you!
  #9  
Unread 05-05-2021, 05:14 AM
Re: Hysterectomy with excision surgery at 45?

Hi Smitch26, Please understand that I am in no way trying to convince you to have a hysterectomy. It's the biggest decision I have ever made in my life, especially considering I have no children. I agree with the other sisters when suggesting that you get another opinion. And since this is your first surgery after diagnosis, I wouldn't suggest making such a life changing decision right away. I also had a UAE in 2012, and was told that it may provide relief for ~5 years. I started seeing growth again after 2. Again, my history is pretty extensive: 2002 - surgery to remove a mass (the size of a grapefruit, i've been told) that had adhered to my organs, which in turn caused a removal of my left ovary and tube, and my appendix; 2006 - D&C; 2010 - Removal of prolapsing fibroid; 2012 - UAE; 2015 TAH. My days were nothing more than getting out of bed, going to work and coming home to get back in bed. I also couldn't imagine life without the debilitating pain. Do as much research as you can, along with a lot of soul searching. It's not a decision you can take back, but for me it was a no brainer. My conditions made it risky to even get pregnant, or carry a child, so I felt it was the best decision for me. Sending you love!
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