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Endometrial cyst -  Has anyone experienced endo coming back after surgery and how to manage it  without hormones? Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

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  #1  
Unread 11-12-2020, 12:45 PM
Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

I’m one year post op and recently learned I have an endometrial cyst in my right ovary. I’ve been experiencing pain for months that my surgeon was dismissive of and told me was not endo so she wouldn’t order tests. I saw a new doctor who ordered an ultra sound so now we know what’s wrong. Birth control has given me ovarian cysts in the past and unfortunately has made me suicidal so that is not an option for treatment. I didn’t know I had endo before surgery so I’m not really educated well on it. Has anyone else experienced endo coming back after surgery and what ways have you managed it that aren’t hormonal?
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  #2  
Unread 07-18-2021, 08:49 AM
Re: Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?



How are you doing now? It's been a while since you posted and you haven't received any replies, so I've moved your thread here to the Endometriosis Support forum. Hopefully someone who can relate will see your thread in this forum and respond.

While you wait for input, there is a wealth of information in the Endometriosis Articles for you to use.

  #3  
Unread 07-27-2021, 04:29 PM
Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

Hey there, my sister and I both have endo. I got to be the lucky one who also has pcos. From my understanding and experience endo is reoccurring. We both had trouble getting pregnant but the only time my pelvic trouble went away was when I was pregnant. About a year later after pregnancy my pelvic pain would return. My sister ended up getting full hysterectomy and went into menopause at age 35. She no longer has any endo problems. I had a partial hysterectomy (1ovary left) and this is enough for me to keep producing hormones which stimulates the growth of endo. Sadly I have done two “cleaning” surgeries to remove endo since (about two years in between). My surgeon said as long as I am creating hormones the endo will continue to grow back. I don't want to go through menopause yet so I will stick with my one ovary. Birth control was recommended to me as well but I have similar side effect you do. Wishing the best for you. Pelvic issues suck!
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  #4  
Unread 07-27-2021, 04:48 PM
Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

I have the same thing! A year after hysterectomy I started having pain in my right ovary. Took me thousands dollars in doctor visits and 7 months before i finally went out of network again to get someone to take out my right ovary. And my left ovary has pain now too. So ill have to have another surgery to take that one out. But of course, not until i am ready to kill myself or someone else. I too am on anxiety meds now because everyone thinks im crazy. Why don’t we have better womens health in this stupid *** country?
  #5  
Unread 07-27-2021, 11:04 PM
Re: Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

My advice would be seek out an endometriosis specialist and get specialist advice.
  #6  
Unread 07-28-2021, 08:36 AM
Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

Because i lost both ovaries due to endo, i am in very early surgical menopause and on hrt. Its been a year since and no endo issues. An endo specialist is your best bet. Due to my age my surgeon wanted to keep my ovaries but because of the endo cysts they were destroyed. I am somewhat relieved tho because with endo and hysterectomy and leaving ovaries in, can sometimes cause endo to continue to grow and cause future complications. Since she cleared out all of the endo and i no longer have ovaries
I do not expect to have endo regrowth.

  Quote:
Originally Posted by ashleybart View Post
I’m one year post op and recently learned I have an endometrial cyst in my right ovary. I’ve been experiencing pain for months that my surgeon was dismissive of and told me was not endo so she wouldn’t order tests. I saw a new doctor who ordered an ultra sound so now we know what’s wrong. Birth control has given me ovarian cysts in the past and unfortunately has made me suicidal so that is not an option for treatment. I didn’t know I had endo before surgery so I’m not really educated well on it. Has anyone else experienced endo coming back after surgery and what ways have you managed it that aren’t hormonal?
  #7  
Unread 07-28-2021, 11:40 AM
Re: Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

I had an endo. cyst on my left ovary that prompted the surgery. However, because I had gone years before diagnosis, the pain continued. Four ob/gyns later and no endo. could be found.
My surgeon never put me on hormones after surgery, before surgery hormones made things worse. I did not know then, but do now but estrogen feeds endo. So it is a good thing that you cannot take birth control.
Many doctors don't think there is a diet for endo. but there is. First, avoid foods that cause or worsen inflammation (sugar, chocolate, caffine, soft drinks etc). Second, avoid foods with estrogen. A lot of our foods have hormones added, so avoid those. But also all fruits/veggies have natural estrogen in varying amounts. I found out the hard way when I ate flax and got very sick. Research of 6 different articles said that flax is very high in natural estrogen and our bodies can use it. So it was feeding the endo. That was how I found out that estrogen feeds endo.
Soy and gluten also have high amounts of estrogen. I am already celiac, so I have to avoid gluten. My various ob/gyns have put me on different diets, not counting gluten free. one dr put me on a low fiber diet and to cook my fruits/veggies which kills the estrogen. Another ob/gyn put me on an anti-inflammatory diet (omega 3, etc) and that diet has helped the most.
Nothing cures endo. but if you can tame the inflammation, that will help.
  #8  
Unread 07-28-2021, 03:03 PM
Re: Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

I had it for years. It is aggressive and painful. I am hoping my recent surgery(total hyst + ovaries on July 1) ends my long battle. I totally agree about the phytoestrogens and those trigger foods. Caffeine always made my pain worse. I had help controling the pain at times with Tumeric, dim, and calcium d glucarate. The tum is anti-inflammatory and the other 2 help with reducing and eliminating estrogen from your body. Endo is an est dominate disease.
Also adding nac for liver support. Best help I received for controlling it came from naturopathic docs. Might see if you can find one on your area.
  #9  
Unread 08-09-2021, 12:51 AM
Re: Endometrial cyst - Has anyone experienced endo coming back after surgery and how to manage it without hormones?

While I am not in your exact situation, there is a management technique that might work. An herb called vitex is prescribed to address endometriosis in some countries in Europe. It is inexpensive and generally considered safe. You can buy it in drugstores or online.

I tried vitex awhile back for PCOS-related issues and it worked wonders.
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