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57 newbie trying to make the hysterectomy decision 57 newbie trying to make the hysterectomy decision

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  #1  
Unread 05-20-2021, 10:01 AM
57 newbie trying to make the hysterectomy decision

I am 57, it's been a year since my last period so I guess I am officially post menopausal, yet my stomach cramps continue to come fast and furious. My uterus shows adenomyosis but according to everything I have read, the pain should have stopped after menopause. After a zillion tests, docs and I are assuming IBS. My obgyn is encouraging a hysterectomy to eliminate my uterus as the source of my pain. And she says I might as well take out my ovaries as well. A hysterectomy feels like a huge step for a "maybe this will work" attempt. And should I take out my ovaries as well? Got a second opinion and they agreed that I should go for it, but I am so torn. I can't continue with this pain, being stuck in the bathroom all the time, but if we are not sure of the cause, should I really have the surgery?
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  #2  
Unread 05-20-2021, 03:32 PM
Re: 57 newbie trying to make the hyster decision

why would your dr want to do a hysterectomy if he thinks its IBS? have you seen a specialist that deals with IBS? as for your ovaries, they continue to provide you will small amounts of beneficial hormones even after menopause. sorry but i would run from this dr. don't assume it's IBS, get a definite diagnosis.
  #3  
Unread 05-20-2021, 03:54 PM
Re: 57 newbie trying to make the hyster decision

Dr is suggesting hysterectomy because tests show that my uterus has clear signs of andomyois, so they said it could be the source of pain and then they said at my age they recommend taking the ovaries as well.
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  #4  
Unread 05-20-2021, 04:15 PM
Re: 57 newbie trying to make the hyster decision

i personally would see an IBS specialist and try treatment for IBS to see if the pain goes away before i would have a hysterectomy. do your own research on removing healthy ovaries....there are only positive benefits to keeping them.
  #5  
Unread 05-21-2021, 03:46 AM
57 newbie trying to make the hysterectomy decision


Regardless of what your doctor is recommending, no one can operate on you without your consent, so I suggest telling your doctor that you're not consenting to a hysterectomy until you've been evaluated by an IBS specialist and an adenomyosis specialist. As you're waiting to be evaluated, I recommend the Low FODMAPs Diet, a plan that targets IBS symptoms by identifying and eliminating foods high in fermentable carbohydrates, which are among the biggest culprits; keeping a food/symptom diary while you're doing this can help to provide the IBS specialist with more information on which to base a diagnosis. Best wishes for figuring this out soon, and for whatever you decide to do about it!
  #6  
Unread 05-21-2021, 08:23 AM
Re: 57 newbie trying to make the hysterectomy decision

thank you! I'm on day 9 of the fodmap diet. Fingers crossed!
  #7  
Unread 05-25-2021, 05:36 PM
57 newbie trying to make the hysterectomy decision

Glad to hear you are doing the FODMAP diet as Tiger-Eye mentioned. I agree with her. I hate to throw more your way, but you never know what might lead to a solution. I know nothing about the uterine condition you mentioned. However, from what you said, I also wonder if you’ve been tested for autoimmune disease: perhaps celiac? I’m 56 and am a few years past periods so post menopause too. During the “change” I went into my gyno with a list of 20 symptoms & thought menopause was kicking my butt! She noticed my thyroid was enlarged & ordered tests than diagnosed me with Hashimoto’s disease. The reason I bring it up is because symptoms you thought were menopausal could be symptoms of autoimmune disease. And the IBS symptoms could be symptoms of autoimmune disease. I would hate to have you go through surgery then find out you have celiac or another Autoimmune disease that was causing most of your pain.
That aside, if you decide to have a hysterectomy, and you have to decide on ovaries out or in; all my research and information that my Dr gave me made me deduce that it’s a 50/50 choice for our age group. Here are things I learned. Post menopausal ovaries make less hormones and do change size- like a grape to a raisin. Removing Fallopian tubes radically reduces the chances of ovarian cancer. Removing ovaries too, of course, eliminates the chance. Most experts remove ovaries for women over age 58. I chose to remove ovaries & it turned out to be the best decision because post surgery analysis showed there were cysts, calcification, and other issues that didn’t show up in ultrasounds.
Prior to surgery, I kept a mindset of, “ hey, ‘the factory’ is closed and since I don’t need it anymore it might as well come out”. However, this surgery is major. I’m glad you are doing your research and due diligence. Try Google Scholar for trusted medical research & science journal info. Type in “Google scholar”, click on that and you will be in a new search engine. You can filter results to more recent year’s info too. Wishing you the best of luck and sending positive thoughts your way.
  #8  
Unread 06-04-2021, 06:12 PM
57 newbie trying to make the hysterectomy decision

Hi, "Newbie"! I had a total hysterectomy (took uterus, cervix, tubes, ovaries) at age 58. I have not regretted it for a second. I was having bad pain in my back and hips, and that is gone. I had so many fibroids that my surgeon didn't know how many there were. My ovaries were a mess, and there was endometriosis. They would not have known this if the surgery has not been done. Ask your doctor to do a vaginal ultrasound, but if a hysterectomy is indicated, don't hesitate. It can help you feel so much better!
  #9  
Unread 06-15-2021, 01:01 AM
Re: 57 newbie trying to make the hysterectomy decision

I had adenomyosis also and the pain and just had robotic hysterectomy. Adenomyosis grows inside the uterine walls
  #10  
Unread 06-28-2021, 08:34 AM
Re: 57 newbie trying to make the hysterectomy decision

I am 57 too, and I am faced with similar-same situation. It is tough to decide. Go with what your head tells you, not what your heart tells you? Do you know if your uterus is enlarged? If yes, then it could be pressing on or pushing your bowel and causing the problem. Same with bladder
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