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Not sure what to do Not sure what to do

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  #1  
Unread 08-12-2020, 09:55 PM
Not sure what to do

Hi, I had some post menopausal bleeding a year ago so they did a D & C (I had the choice of that or a biopsy so I chose the D & C so I would be asleep for it). They found unusual cells but no cancer and told me to call them if I get any more bleeding. I'm 56 and have been in menopause for two years now. I have one grape sized fibroid on a stalk, otherwise haven't had any issues otherwise. Well, tonight I felt like I was having menstrual cramps and found a tiny amount of blood. I'm scared they will tell me I need a hysterectomy but will make an appointment. Is it better to just get the uterus out than have more D & C's or biopsies (I heard biopsies hurt so I'd rather not get those). What have other people done when faced with this..a friend of mine had had a similar problem and eventually was operated on for cancer (she's ok now) ..so I'm really worried.
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  #2  
Unread 08-12-2020, 11:17 PM
Re: Not sure what to do

I did not experience this but if I had a risk for cancer I would choose to have a hysterectomy. I would rather have surgery to help prevent cancer rather than getting cancer and having that to deal with. Thats just my thoughts on it, but definitely weigh your options and opinions with your doctor.
  #3  
Unread 08-13-2020, 09:55 AM
Re: Not sure what to do

did you have biopsies taken while you were under anesthesia for the d & c? i had a hysteroscopy and d & c under anesthesia (done at the same time) before i needed a hysterectomy.
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  #4  
Unread 08-13-2020, 02:12 PM
Re: Not sure what to do

The bleeding could be from the fibroid. Fibroids make us bleed a lot! I believe a hysteroscopic D&C is the gold standard for excluding cancer and you shouldn’t need a biopsy after this as d&c tests the entire uterus. The abnormal cells could be fibroid cells as these cells are not normal. I was embolized (UFE) for my fibroid and never bled again. I was 51. Once the bleeding from the fibroid was controlled I felt so much better and my tumor slowly shrank by approximately 90%. You may want to speak to an Interventional Radiologist to see if this procedure is available to you.
  #5  
Unread 08-15-2020, 08:03 AM
Re: Not sure what to do

Welcome!

My opinion? Wouldn't your rather have one surgery and get it all over with instead of have to have multiple procedures due to fibroids and unusual cells? You said you've been postmenopausal for two years, so it's not as if you'll be using your uterus for anything.

For the record, I'm 52, 10 weeks post-op, and getting up to speed. I went in to have my fibroids removed, but because of the adhesions, they had to take everything.
  #6  
Unread 08-18-2020, 10:26 AM
Not sure what to do

I had the same issue, period after menopause. Had a biopsy, was told I had CAH. Had my hysterectomy (took everything) yesterday. Now I don’t have to worry about cancer and am thankful of my doctors recommendation. A large percentage of individuals with CAH have cancer at hysterectomy.
  #7  
Unread 08-18-2020, 05:07 PM
Re: Not sure what to do

Hi Carolyn, I had a similar occurrence, I had little bit of bleeding a couple of times since menopause which was at 50 (61 now), since menopause I had two D & Cs, a biopsy, a second opinion due to abnormal cells, not cancer at this point, and I went ahead with a total hysterectomy. It has been two years since and so relieved to have had taken care of things. Now I don't even have to think about the bleeding or cancer - just getting on with things. I had a vaginal hysterectomy with pretty easy recovery from that. Did get a nicked bladder which was unexpected an a little longer with a catheter but all in all very glad its behind and I can enjoy the 60s with better health. Hope the same for you.
  #8  
Unread 08-18-2020, 05:12 PM
Not sure what to do

  Quote:
Originally Posted by Carolyn M View Post
Hi, I had some post menopausal bleeding a year ago so they did a D & C (I had the choice of that or a biopsy so I chose the D & C so I would be asleep for it). They found unusual cells but no cancer and told me to call them if I get any more bleeding. I'm 56 and have been in menopause for two years now. I have one grape sized fibroid on a stalk, otherwise haven't had any issues otherwise. Well, tonight I felt like I was having menstrual cramps and found a tiny amount of blood. I'm scared they will tell me I need a hysterectomy but will make an appointment. Is it better to just get the uterus out than have more D & C's or biopsies (I heard biopsies hurt so I'd rather not get those). What have other people done when faced with this..a friend of mine had had a similar problem and eventually was operated on for cancer (she's ok now) ..so I'm really worried.
Hi. I was 3 weeks from turning 57 when I had my complete vaginal hysterectomy back in June of 2020. I was scared to have the surgery and almost cancelled, but some very good friends (and my husband) convinced me to see it through. I’m so glad I did!! I feel so much better and my bladder issues (incontinence) have improved.

I was still not in menopause (was having severe bleeding and cramping every 7-8 months for the last couple of years. This past new year’s eve I spent in the ER because of 3 days of severe bleeding and cramping. I didn’t know when it would stop. I was finally granted (from the insurance company) an approval for a hysterectomy. Because of COVID, had to wait until June for the surgery.

Turns out I had a condition called Adenomyosis (not endometriosis). You can google it to see the symptoms and see if this might be you? My doctor took out everything and all of it tested negative for cancer (PTL). My uterus weighed in 148 g. My doctor told me most uteruses weigh between 60-70 g. She said my bladder should be a lot “happier.” Lol. It is.

This is a long way to say if you think you should have a hysterectomy ... don’t be scared. I agree with my friends, it was the best thing I ever had done. I’m 9 weeks out and feel better than I have in 5 years.
  #9  
Unread 08-18-2020, 05:47 PM
Re: Not sure what to do

Hi, I have had multiple biopsies very tiny sting not painful for me. I also had abnormal cells in my uterus. I was scared, I choose to get a hysterectomy in Feb. I chickened out the first time in Nov. It was very easy for me My dr cleaned up my cysts on my ovaries took tubes and they found a two pound fibroid behind my uterus growing up into my stomach. I had been to 6 Drs for painful periods and they did not find this large one. It was hidden. I feel great and have no more scary thoughts of cancer. I can tell you, 6 drs later, interview and look up Drs. The Dr I choose made it pain free. I walked out of hospital 2.5 hours from surgery. Read Vitals Yelps and do your research. He was a miracle Dr. I was walking day one tpainfree 5 miles 1 week post op never had pain didnt take pain meds only tylenol and motrin for a few days. And it was very easy because of the Dr I choose. Hospital called day before to go over things asked me who my Dr was. Oh you are so lucky his patients wake up totally different than the rest. It was the truth not just trying to calm my nerves. you got this......
  #10  
Unread 08-18-2020, 06:41 PM
Re: Not sure what to do

I found out I have been living with fibroids since my young age, with the bad monthly cramps and heavy flow. Then in my late 40, my GP told me to see a gynae specialist after finding CA125, marker reading, high. You might want to keep that in your annual check list. Hopefully you will find a good gynae too. Fibroids are not always malignant, just a thought.
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