Too good to be true ?!?!?! (Bit long)

Hi,
I have posted here many times and always appreciate your thoughtfull opinions!!!!! After 9years of chronic pain and 4 diff. obgyn's, I was finally diagnosed with endo. Implants were taken off my pelvic cavity and an endometrioma ( chocolate cyst) 3/4 the size of and ovary, removed from my left ovary. I had relief for 2 days after the surgery, then everything went back to the "norm". Chronic pain!!!! When I talked to the dr. who preformed my scope, he kept telling me things will be better and to come back in 3 months. I kept telling him things are still horrable, and he kept saying the same thing.
After poking around on the internet, I found a repro. endocrinologyst and OBGYN who specialises in pelvic dissorders.( he has a web page) After contacting him by e-mail with a list of my symptoms over the last nine years, he quickly responded with a list of other possable pelvic disease's that my current dr. won't even look into. ( current dr. won't check for adeno, since taking out my uterus isn't an option for me!!! Don't I have a say?!?!) I responded to my "e-mail" dr about wanting a sub-total hyster since I feel it's the only thing in my heart that will help me, and that I won't be persuaded into any other methods of therapy. ( i'm 27 and don't want kids) He commented that I might regret a full hyster, but that he could deff. help me and to contact him. I called his office and spoke with the nurse who couldn't stop telling me how wonderful this dr. is. I have an apointment with him at the end of the month.......... He knows that I want a sub-total hyst. and I won't consider other treatments..... he sounds like he really wants to help....... does this sound too good to be true?!?!?

Help!!
Star

I'm so glad you found a doctor that will listen to you and be a "partner" in your care!

Star,
I too am happy that you found a DR who will listen and seems to really want to help you.
As far as wether it's too good to be true or not only time will tell...but I hope for your sake he's the real deal. Keep me informed. I'll keep you in my thoughts.
Jennifer

Hi Star,

I'm so sorry for your suffering. This doctor may be a wonderful fellow, but... If you're asking yourself if it's "too good to be true?".... sounds like you're thinking maybe it is, or maybe at least a red flag. I'd say, "Be very careful." My humble reasoning is ... if a physician/surgeon uses extensive marketing (i.e. websites or commercials) to obtain patients, there may be a reason the practice is looking for patients. Many reputable offices do offer some website patient information, but I personally feel an office website for 'patient info and education' is completely different from web advertising and soliciting.

The GYN's in my Dr's group are booked months in advance and would not have time to be answering emails. (I'd *love* it if they would, but the practice is busy/successful enough with actual patients, so there's no room for recruiting cyber patients.)

Again, my heart goes out to you with your suffering. I know from experience how painful and disruptive endo can be and I know you are (understandably) looking for the light at the end of the tunnel. Use caution to be sure that light isn’t from an oncoming train. I know you’ve seen multiple GYNs but your health is worth another opinion after you have this consultation. Good luck, dear.

Best wishes and s,
Beth

starbella, I am skeptical. I would like to know how many doctors with any kind of practice have time to answer email that detail and respond to your personal history prior to even seeing you. I have never met a doctor who does this. Sounds like this person is good at meeting your emotional needs for finding someone to listen. Don't equate that alone with competence. This sounds pretty random to me. I think word of mouth is a better and safer way to find a doctor!

Thanks for the replys on my first post!! One of the posts wondered why a Dr. would recruit patients by the web instead of word of mouth.
When I came upon this Dr., I was researching pelvic diseases and dissorders. This Dr. came up as one of the most "educated specialists" in this area. From there, I went onto trying to contact him. So, it wasn't his office trying to "recruit" patients..... I went in search of him. He suggested that I contact him directly so that he could further assist me with my situation, but I have decided to meet with him directly for a consultation just So I can "read " the type of person he is. I realise that people can feed you a line of crap over the phone, but have a harder time being more convincing in person. Of course I'm not rushing into anything since I haven't meet him yet, but I will deff. be using my "womens intuition". And at this stage of the game, he is the only obgyn out of the 4 i've seen in the last 9years, that thinks it might be more than just endo. If he's willing to put his " money where his mouth is" , all I can do is give him the benefit of the doubt.!
Thanks!!!
Star

Hi (((Star))),

I am so sorry that you are having a hard time. I have been in a possition similar to yours, where I was looking for a Dr. I found a Dr who was extremely friendly, seemed to take the time to understand my situation, and claimed to see things that the other Dr's missed. He is now no longer practicing medicine because of all the complaints filed against him. He can't get any insurance to practice.

I am not saying that this Dr is bad. Only that I hope you are very very careful. It takes a lot of complaints and a lot of hurt people to get the rare bad Dr out of medicine.

I sincerely hope that you are able to get the answers and treatment that you need for your problems. One thing that you could do easily before your appointment is check with the AMA and make sure he is liscensed with them?

s,
Kay

Starbella, Who is calling him "one of the most educated specialist" in the area? Other doctors (in his field), affiliated with university medical center, or his own web site? What is his area of education, and from what university? Highly educated specialists do not have to promote themselves this way and usually don't.

I think a better route to go is to ask your doctor, who he/she would go to if they were having the same problem. Who and where?