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Large fibroid, adenomyosis, scared.
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10-06-2015, 08:43 AM
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HysterSister
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Posts: 14
Hysterectomy: November 6th, 2015
Ovaries: Undecided
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Large fibroid, adenomyosis, scared.
Hi, I'm new here, and super-scared. I just had an ultrasound done, scheduling a uterine biopsy, then my new dr. Is supposed to let me know my options. I was in the er this past friday with frightening menstrual flooding. I really know nothing about this dr. because I don't have any close friends around here, and I'm sure he is going to tell me what all my past drs have told me: that a hysterectomy is the only thing that will solve my issues. I'm terrified of surgery bc I had a horrible experience with my gallbladder, and I'm terrified to have another period. I feel trapped, and scared out of my wits. Deep down i think i know i need this surgery, I've been in denial and put off getting anything done bc of my fear.
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10-06-2015, 09:45 AM
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HysterSister
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Posts: 70
Hysterectomy: October 5th, 2015
Surgery Type: LAVH
Ovaries: Kept 1 or both
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Re: Large fibroid, adenomyosis, scared.
It is okay to feel scared. I was too after the news I needed to have a hysterectomy. For me it was the only option left and we have a family historyof ovarian CA.If you are unsure of your doc, may I suggest getting a second opinion? I think you would feel better and someone else may have a different approach for you. Let me know if you just need to chat. I am one day post-op and glad to have been through the surgery.
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10-06-2015, 10:49 AM
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HysterSister
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Posts: 14
Hysterectomy: November 6th, 2015
Ovaries: Undecided
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Re: Large fibroid, adenomyosis, scared.
Sakpik, Thank you for your reply . I'm so glad you feel better after your surgery, you're super brave!
I had a uterine artery embolization that didn't work from a past dr. who no longer takes my insurance, it was my, "take a chance, it's not as scary as a hysterectomy" option. They said it probably failed due to the adenomyosis. This is my third opinion or so. That visit to the er really shook me up. The crazy thing is, if I could know that all would be well, I would get it tomorrow if I could because of the symptoms .
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10-06-2015, 11:22 AM
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HysterSister
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Posts: 70
Hysterectomy: October 5th, 2015
Surgery Type: LAVH
Ovaries: Kept 1 or both
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Re: Large fibroid, adenomyosis, scared.
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Quote: |
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Originally Posted by christina1234
Sakpik, Thank you for your reply . I'm so glad you feel better after your surgery, you're super brave!
I had a uterine artery embolization that didn't work from a past dr. who no longer takes my insurance, it was my, "take a chance, it's not as scary as a hysterectomy" option. They said it probably failed due to the adenomyosis. This is my third opinion or so. That visit to the er really shook me up. The crazy thing is, if I could know that all would be well, I would get it tomorrow if I could because of the symptoms .
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I understand... May I ask where you live? I can see if my doc has anyone your way to see (one never knows until you ask is what I have learned.) You have a fellow sister here and many others... just let me know if I can help. I know the ER was scary.... I had a similar experience many years ago and held out this long til I got out of the military. Whatever you decide is right for you and you have friends here to talk with at a minimum. Sending hugs of hope for you.
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10-06-2015, 11:45 AM
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HysterSister
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Posts: 14
Hysterectomy: November 6th, 2015
Ovaries: Undecided
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Re: Large fibroid, adenomyosis, scared.
Thanks so much for the reassurance and hugs! I'm southwest of Pgh PA. dr. that I saw yesterday is <Name of doctor removed per website TOS.>. It's more of a rural area here, the acclaimed women's hospital out here is UPMC Magee in Pittsburgh. I had been seeing a dr there 'til UPMC stopped accepting my insurance, that's also where I had gotten the embolization. When I went to the local er this past Friday, I got the referral for follow up with < >.
I think I'm feeling more lost because of having to see a dr that I'm unfamiliar with, but at the same time I feel like it's better to have someone close to my home bc it's about a 2 hour drive to Pgh. So maybe I'm better off at the hospital that's close... I'm usually such a rational person, but this is my Achilles heel. My little sister asked around on her facebook - (She's 15 years younger than me, so hysterectomies aren't in her circle :/). Got some positive feedback from ppl regarding C-sections, which made me hopeful, but I haven't had success in findng any reviews online.
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