I'm new, but my endometreosis is not

Hi there. I've had endo since what feels like the beginning of time. I've had a few laparoscopies, been on every bc there is, had an ablation and fairly sure I have PMDD

Basically my hormones and uterus are out to get me.

I went to the dr a few weeks ago for pain and TONS of pelvic pressure. They did a few tests to make sure no bladder infection and scheduled me for a ultrasound the following week.

I didnt make it that far and ended up in the Emergency Room in such a severe amount of pain if I could have done a hysterectomy on myself, I would have youtubed it! no joke!

Anyways - Surprise! I am now the proud owner of a 2 cysts on my ovaries. I got some vicodin and got sent home. Took the next day off of work cuz I was hurting!

I also made a follow up appointment. She prescribed Naproxen, nuvaring and sent me a referral to a pain clinic.

I hate being on hormones, bc, lupron.......its makes me emotional. But I tried Nuvaring. She said it wuld be easier because the hormones would stay closer to my uterus. In 2 days I was crying about commercials on TV.

I'm livid. I hate being ignored. I hate being in pain and most of all I hate being brushed to the side. I cant exercise, have sex and basically I am hunched over all the time.

Then I ask for my ultrasound results. In it the radiologist mentions a hetereogeneous uterus. Well I didnt know what that meant...so I googled it. Takes me right to a fibroid and adeymosis website.

And best part? I got my appointment for the pain clinic....Its November 1st.

So basically I'm looking for a little help, a shoulder, some advice......anything at this point will be helpful. I'm not sure if I can post my emails from the NP and MD here or my ultra sound stuff.....but how can I get taken seriously?

Hi, and

Your journey sounds a lot like mine. I have endometriosis, too, and it took ages to get the right diagnosis and treatment.

One thing that really helped me was finding an endometriosis specialist -- not an OBGYN who does a little of everything, but a gynaecologist who primarily specializes in endometriosis. The specialists are the ones who have the right experience and skills to carry out the best treatment.

Using myself as an example, my regular OBGYN was the one who diagnosed my endo last year during a laparoscopy. However, he didn't have the skills to do a thorough job of removing the lesions -- he only skimmed off the superficial layer, which basically did nothing for my symptoms. He also said that any further treatment would require a total hysterectomy and removal of my ovaries. The endo specialist, however, was much better at removing the deep lesions, many of which were in anatomically dicey areas and thus required great skill to excise without damaging the surrounding structures. I was also able to keep my ovaries, which at my age (36) was a great relief.

Anyway, in summary, the right doctor is usually the key. I wish you all the very best of luck!