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Brand New Second Opinion? Brand New Second Opinion?

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  #1  
Unread 05-05-2003, 07:59 PM
Brand New Second Opinion?

Hello, A co-worker told me about your site. So I thought I'd come and check you out. I had made an appointment with a DR that was in with my PCP to have a Pap Smear done. Well I told her I've not had a period in 2 yrs and that once in a while I spot to where I tinge the toilet paper. It doesn't flow or get on my underpants. Well she ended up doing an endometrial biopsy on the 16th of April. She called on the 29th of April with the results telling me I am pre cancer, some spots cancer, early cancer, and uterine cancer. I have an excess of Estrogen, my overies are normal and she wants to do a hysterectomy on the 9th of June. Well needless to say this threw me for a loop. what do you do when someone tells you that.

Do you think it's a good idea to get a second opinion? One more thing can you tell how the overies are through a blood test or the endometrial biopsy?

Help any feed back will be greatly appreciated.

Pam
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  #2  
Unread 05-05-2003, 08:45 PM
Second Opinion

Pam,

That certainly must have taken you by surprise. Hearing that out of the blue -- not expecting it.

I don't have gyn cancer experience, but I know you should see a gyn oncologist for a second opinion and any surgery and treatment you MIGHT need. It's their specialty. They are the experts.

Others will be along here who can give you more info.

Good luck.

Mary D.
  #3  
Unread 05-05-2003, 08:59 PM
Second Opinion

You always have the right to a second opinion. I'd suggest it be with a gyn/onc, who'll be the best person to be in charge of any surgery in which cance is suspected.
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  #4  
Unread 05-05-2003, 09:11 PM
Brand New Second Opinion?

Hi Pam! Great questions! I am a firm believer in second and even third opinions not only from Dr.'s but pathologists too. After a D&C in October to remove polyps I was told the pathology report came back stage 1 cancer. The first gynecologic oncologist I saw said that I needed to schedule a full hysterectomy within the week and my head was spinning!

I went with my gut and decided to get another opinion. I had the slides sent to another hospital and saw another gynecologic oncologist there. The pathologists at the second facility disagreed and said I was at a pre-cancerous stage and I was given more treatment options than just a radical hysterectomy.

I even got third opinion (Heck if two could differ what would a third say?!)!

I agree with Mary D.'s post that you should see a gynecologic oncologist. If you do have cancer and you do need a hysterectomy it is my understanding that they will want to check lymph nodes in that area too. My ob/gyn has stressed that while she does lots of hysterectomies an ob/gyn is not trained to remove lymph nodes and that gynecologic oncologist are well trained to do so.

There is a blood test called CA-125 that is used as an indicator of ovarian disease. It is not fool proof though. There are benign conditions in the body that can result in an elevated result of this test. Do you know if your Dr. ran this test for you? I don't know if endometrial biopsies can give any info on ovaries or not but Dr.'s do feel for anything unusual when they do a manual exam. I've had vaginal ultrasounds and a CT scan done too.

Press on Pam!!! Knowledge is power!
-Steph
  #5  
Unread 05-06-2003, 06:01 AM
Brand New Second Opinion?

{{Pam}},
Welcome to Hystersisters. It's a great place to get information and group cyber hugs.

I also received a biopsy for uterine cancer which came back positive for cancer. Fortunately, it was early and I only needed surgery.

Definitely get a second opinion. Ask you gyn for a referral to a gynecological oncologist. As previous ladies said, they're trained for this type of surgery and will examine everything they can get their hands and eyes on.

Be sure to keep posting so we know how everything is going.
s,
Laura
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