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Back from the castle ... Back from the castle ...

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Unread 05-08-2003, 11:25 AM
Back from the castle ...

Sending prayers, good wishes and lots of love your way. Now go do what you've been taught as a good princess: get plenty of rest, drink fluids, let others do for you. Sometimes I cry when I think of what my poor body has just been through. But it's o.k. It's over now and I'm getting stronger every day. You will, too!

God bless!
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Unread 05-08-2003, 01:16 PM
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I will pray that the pathology reports everything b9. I will also pray for a speedy recovery.
Unread 05-09-2003, 02:23 AM
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Thank-you so much for your very kind replies. I know not all of you would necessarily agree with my decision about surgery, yet you are all so supportive nevertheless. This board is special.

Siren Song - I think the 4 - 6 weeks before another surgery is mandatory because that is the minimum amount of time needed to heal enough for the first surgery before another can be undertaken. I certainly hope that another surgery won't be necessary, but I know that in cases where the cancer is found quite unexpectedly, a second surgery is done and people survive and thrive. I would just have to go through it, and with a surgeon who will be bursting to say "I told you so"!

Audrey - what exactly is an endometrioma? Can they turn cancerous and if so how? I would be very interested in anything you can tell me about them. I did a search but couldn't find anything.

Maureenie - I am trying to be a good princess but finding it frustrating at times as I am normally the maid of all work / governess and feel more at home below stairs. The prince is struggling manfully in his new role as cook general and boot boy with nursing duties thrown in, but undermines his efforts by making me laugh so much that my staples threaten to burst!
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Unread 05-09-2003, 09:28 AM
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An "endometrioma" or "chocolate cyst" is, according to Emedicine:
When the ovaries are involved [with endometriosis], they can become enlarged with cystic blood-filled spaces that on gross examination are termed chocolate cysts or endometriomas. Endometriomas can become large and multilocular. The lining of endometrial cells can become obliterated over time, making the pathologic distinction between endometrioma and hemorrhagic cyst difficult in some cases.
In short, complex cysts, filled with a fluid that looks like engine oil (yucky visual, I know!). Luckily, mine didn't rupture with removal, as usually they do. Also, elevated CA-125 levels are quite common with severe endometriosis, making the picture look very much like cancer until path results are back. My CA-125 was 200, not hugely high, but worrisome. Except that I knew I'd had endo for years, so I was not particularly surprised.

I don't recall if you've had any endo "experience", but if you have, you'll want to be especially vigilant about your GYN care from now on. My doctors told me that, having formed the giant cyst I wound up with, that I was at higher risk to have it happen again...or of having it "convert" into something malignant. As I was 47 at the time of my surgery, not planning on more children, and had severe adeno as well (endometriosis, only internal to the uterine walls), we did "go the whole route" in removing everything. As it turned out, it all was so fused together from 30+ years of endo that they could not have salvaged anything -- and I am convinced that I probably would have been back in sooner rather than later for recurring problems.

Most ladies do go on to have no problems at all. But do pay attention to your body...if you start experiencing any symptoms, you need to have them checked out promptly. I do hope this is the end of it all for you! If you have questions about repeat surgeries, do a search for posts by Felicitea, who had two surgeries eight weeks or so apart and posted about that. Hopefully, however, yours turns out to be the endometrioma and thus "benign" -- and that your travails are over for good .

I had to smile about your description of your DH (he does sound like a "dear"!) and your normal roles in the household. Post-op, I did find that I could still fulfill my "governess" role (was able to volunteer at my DD's school, feet up, by the third week). Unfortunately, my DH's cooking skills are sub-optimal and he shows no real signs of being particularly train-able . I was really hoping that our "new" post-op roles would continue to hold, but at a year out, no such luck...I think he's going through his own depression issues and perfectly content to have me doing most of the work again. He does do laundry, however, and hasn't shrunk anything in at least two months!

Best wishes to you for an excellent outcome on that final pathology report. It strikes me that things must be OK, though -- for most surgeries, the doctors do a "frozen section" during the time of surgery, which gives somewhat instant results and enables them to plan what to do further. And, if the results said "old endometrial tissue", that's compatible with the appearance of endometrioma. I'd bet you caught it in time!

Enjoy the -hood while it lasts!


Unread 05-11-2003, 01:37 PM
Back from the castle ...

Thanks, Audrey. You are a fund of information. I have read many of your posts to others and learned a lot. It was a total surprise to me that I had endometrial tissue round that left ovary. Apparently I didn't have any anywhere else. I have never had symptoms of endometriosis, and very few with the fibroids. I think if, like you, I had suffered a lot the decision to go for a tah / bso would have been easier.

I'm still waiting for the histology results - maybe tomorrow or the next day. I had my staples out today though: yipee!

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