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Now I have Addisons Disease Now I have Addisons Disease

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  #1  
Unread 05-08-2003, 09:59 PM
Now I have Addisons Disease

Hi everyone

I so upset. After a long bout of being sick and so very tired the doctors have finally, after numerous test, declared that I have Addisons disease.

Its a disease of the Adrenal system. I will have it for life, and if I dont take my steroid pills I will , as he so nicely put it,
"YOU WILL DIE"


Im so down, I had my MRI Done on the 16 and it came back that there is swelling to one side of my Pituitary gland, said he would check it again in 12 months to see if its growing,

Im so scared of all this. Seems to be my lot in life to be always sick. Im living on Morphine as it is, for pain. (Wish I wasnt) but its that or living in agony. As the doc said what do you want quantity or quality.

Im sorry for venting but im so upset.,and I have no close friends I can talk too. My family are 200 kilometers away. I have found this site to be a comfort at other times.

thanks for letting me vent

chelle
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  #2  
Unread 05-08-2003, 10:55 PM
Now I have Addisons Disease

Chelle:

You're in excellent company -- John F. Kennedy suffered from this disorder too.

I'm sorry you've been given this diagnosis, but OTOH, steroid treatment is definitive for this...and you FINALLY have some answers to how lousy you've been feeling!

You will need a good endocrinologist to keep track of you...and there's lots of information to be had on the net. I found one site, in fact, based right there in Oz! Australian Addison's site .

What I do know of Addison's would seem to point to making sure that you have a MedicAlert bracelet or the equivalent, along with a letter from your doctor that you carry at all times explaining that you have Addison's. Did they do the cortisol stimulation test to find it? I've been tested for it twice, each time was borderline but told that I didn't have it. But that experience has made me intensely interested in the syndrome.

Good luck to you. The key to living with this, just as any other chronic disorder, is to stay in good communication with your doctor -- and your own body. And make sure that you educate yourself as much as humanly possible...you are your own best advocate the better informed you can be!



Audrey
  #3  
Unread 05-08-2003, 11:18 PM
Thankyou

thankyou Audrey

Yes I did have the test you speak off, plus numerous others.
Thankyou too for the website I will check it out.

My endocrinologist is the best in the State and is very nice and helpful but to see him I have to travel 200kms. So the first stop is my local doctor. I have a medic alert bracelet but now it needs updating so will do that this afternoon. Thanks for reminding me.

again thankyou , its nice to have encouragement when your feeling down,

Chelle
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  #4  
Unread 05-09-2003, 07:10 AM
Now I have Addisons Disease

Chelle!!

I am so sorry you have had all of this happen to you.. I sometimes wonder if I have something strange going on myself with my OVERLOAD of symptoms. I also have meds I will have to take for life and I know how much of a shock it is.

They say God only gives you what you can handle, sometimes I wonder though.. It is very hard to keep the faith when everything around you feels as though it is crashing down on you.

We are all here for you and come anytime to vent. We are great listeners.

  #5  
Unread 05-10-2003, 09:13 PM
Now I have Addisons Disease

I too have trouble with "god only gives us what we can handle" even tho Iam a Christian. As you said its hard to fight the hard fight of the faith at times.

I do have many spiritual christian friends who sympathize with me but can do little else. They dont understand the problem.

This is my hardest fight ,, to date,, my last was my Hyst.

I once read, never give up on the power of prayer, and I believe that , he hears us even though we are just dust on the scales.

thankyou for bringing my attention back to basics, when under pressure you tend to forget the one who can help us most.

chelle
  #6  
Unread 05-31-2003, 09:34 AM
Now I have Addisons Disease

CHELLE was wandering if you found out about addisons, because I am being tested for low cortisol blood levels, as I have low blood sugar low blood pressure, cant gain weight and mostly am not hungry but i eat. Did you have these symptoms. I get shaky , and crave salt that helps me when im shaky. And the doc wanted to know how I knew to eat something salty when i get shaky, I said i dont know just do and my body feels a little better. I also take vitamins
  #7  
Unread 05-31-2003, 07:19 PM
Addisons Disease forum

This is a forum for people with addisons that I found. It has been extremely helpful for me.

http://www.healinglight.com/cgi-bin/addisons.pl


I do not have alll the symptoms, but from what you described sound like you may. But only the tests will confirm , so dont take my word for it. Have you been tested britsbird? What test are they doing . they did cortisol test., synactin, ACTH. with me.

Chelle
  #8  
Unread 05-31-2003, 09:01 PM
Now I have Addisons Disease

Hi they only did the cortisol test so far(blood Test) am waiting on more when I go back in june. thanks for the website
  #9  
Unread 06-13-2003, 08:05 AM
Now I have Addisons Disease

Hello, the cortisol test came back ok, now it will be the 24hr urine test, next who knows. angie
  #10  
Unread 06-13-2003, 06:58 PM
Now I have Addisons Disease

thats good news

chelle
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