Anyone have painful "lumps" in Vagina | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Anyone have painful "lumps" in Vagina Anyone have painful "lumps" in Vagina

Thread Tools
Unread 05-16-2003, 08:35 PM
Anyone have painful "lumps" in Vagina

Today I saw a urologist as a result of previously seeing a pelvic pain specialist who thought one of my problems was interstitial cystitis. I have never considered my bladder a problem but thought I should find out for sure. This urologist specializes in female issues.

Well... the urologist also doesn't think my bladder is a problem. In fact, the area that is so painful on my right side (which the pelvic pain specialist thought was my bladder/ureters) the urologist thinks is coming from a hard, sizeable lump he felt in the vaginal wall (At least that is where he thought it was). I feel pretty confident that he felt something because when he said he was touching the lump it reproduced the pain on my right side... he was also able to find the exact spot again later.... He also noted several smaller "lumps" on the left side up at my scar that also reproduced pain I have all the time. There were no visible lesions just lumps that he said he could feel under the surface.

So, I was just wondering if anyone else has heard or experienced something like this. It seems somewhat hopeful because if he could feel a definate spot where the pain seemed to be coming from (for the most part anyway), it does seem like that lump could be removed or treated somehow. I did have a passing thought wondering if it could be endometriosis but it seems you would see some evidence (like a blue area) but maybe it is growing from the outside of the vaginal wall to the inside? The urologist mentioned maybe neuromas or scar tissue.

ANyway, just wondering if anyone else has been told something similiar and what you found out....

Thanks bunches!!

Sponsored Links
Unread 05-17-2003, 12:34 PM
Anyone have painful "lumps" in Vagina

I have not had any experience with the lumps you are referring to but I just wanted to send you a great BIG and let you know I hope they find out what it is soon and are able to get you some answers.

I hope someone here has some ideas and info for you. Please keep us posted on what they find..

Unread 05-19-2003, 11:35 AM
Anyone have painful "lumps" in Vagina

((((Shirley)))))) I'm so sorry you're having these problems

I haven't had this particular problem but wanted to send some s your way and this back to the top. Hopefully, someone will come along with some insight.

Did you discuss your next step with the urologist? Who should you now see (your gyn) to deal with these painful lumps?

Sorry to not have answers, only questions Please keep us posted.
Sponsored Links
Unread 05-19-2003, 01:11 PM
Anyone have painful "lumps" in Vagina


First thought when I read your message was why the pelvic pain specialist did not find these lumps? So the pelvic pain specialist who is supposed to be finding the cause of your pain misses them and the urologist who is looking for bladder problems finds them.

You seem to be taking this remarkably well. Could you send some of your patience this way

Just a comment on endo. I believe the thinking on that is still that they have to diagnose that via looking through an incision of one type or another. They can not know for sure just by manually examining you. Even with my long history of endo, my doctor says that there is no way if he can tell me for sure if my problems are endo or not without surgery involved. We can suspect it, but not know for sure.

Back when I first started down the endo path, I did have scar tissue between my vagina and rectum that was caused by endo (verfied by laparoscope) that could be felt and it was described to me by my gyn as feeling like knots or lumps.

I hope you find answers soon and can start treating the problem!

In the meantime ....
Unread 05-19-2003, 01:26 PM
Anyone have painful "lumps" in Vagina

Thank you for the response.

I was also wondering why it took a urologist to find this "lump". I have had this area of pain since at least 1999. My one thought is that it is only about an inch inside and directly to the right ... most of the time when the GYNs do the pelvic exams they "seem" to be looking higher up (if you know what I mean). The urologist was palpating to feel my bladder so he was much lower down. Well... we shall see if the GYNs can find the "spot".

The most interesting problem that is becoming apparent about this area of pain is that when it becomes "irritated and angry" it messes up my bladder. I had a pelvic exam on 4/21 after which my pain became much worse and my bladder went haywire for about 3-4 days... The same thing happened after the urologist examined me last Friday... I have felt a constant need to go to the bathroom which continues 24 hours a day - it makes getting to sleep very difficult. I picked up some Detrol from the PCP to help with that today.

Michelle, I am glad you think I sound patient. I thought that was funny. I don't think my husband would describe me that way. I have however recently discovered a love (and apparent talent) for pastel painting ... this keeps my attention away from the pain and has been very helpful. I don't want to waste energy on being annoyed or frustrated (even though I am sometimes) because I want to save the energy for my painting. I recently entered my first Art show and had two paintings accepted. Maybe that is my "secret" right now.

Michelle, Did the scar tissue you mentioned that felt like a knot or lump feel quite painful? Was the doctor able to fix it?

Unread 05-20-2003, 08:57 AM
Anyone have painful "lumps" in Vagina


Oh, yes .... It hurt to have the scar tissue touched during an exam in exactly the spot where they felt the knots/lumps. Had 3 docs stick their hands up me. The gyn who found it .. .the specialist he sent me to and his resident/intern who "needed" to feel "this". [Glad I could help in his education, but dang it hurt].

The scar tissue was removed by laparoscopy as part of my endo treatment which also included Synarel (like lupron, but in a nasal spray rather than a shot). I have continued to have problems with endo over the years. But, that is another subject. Right now ... today... I am feeling great.

I was on Detrol LA a few months back, but don't need it any more. I think my bladder just went nuts for a few months and just needed to be "reset" (as my doctor termed it). Worst side effect for me was dry mouth/eyes and that was fixed by lowering from 4mg to 2mg.

So glad you have found a new love in painting! Sounds wonderful. I also have a new love: horseback riding. I don't think I have a talent, per se... but, I do love it and it seems to help me stay happy.

Just remember we are all here for you anytime you need to vent your frustration or if we can help answer any questions.

Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
4 Replies, Last Reply 01-18-2007, Started By chrystalsun
5 Replies, Last Reply 11-28-2005, Started By coffeelover
4 Replies, Last Reply 05-10-2004, Started By Max46
6 Replies, Last Reply 01-20-2004, Started By endoplusadeno
1 Reply, Last Reply 10-15-2003, Started By NIC
19 Replies, Last Reply 10-28-2002, Started By gidge
5 Replies, Last Reply 01-09-2002, Started By Lady L
3 Replies, Last Reply 10-30-2000, Started By graceb
5 Replies, Last Reply 07-09-2000, Started By SusanL
7 Replies, Pelvic Floor and Bladder Issues
5 Replies, Hysterectomy Recovery (post hysterectomy)
7 Replies, Pelvic Floor and Bladder Issues
6 Replies, Pelvic Floor and Bladder Issues
8 Replies, Pelvic Floor and Bladder Issues
1 Reply, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, Hysterectomy Recovery (post hysterectomy)
9 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)


Hysterectomy News

September 27,2020


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing