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8 Months post op and very scared... 8 Months post op and very scared...

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  #1  
Unread 05-19-2003, 07:31 PM
8 Months post op and very scared...

I am 8 months post op now from a TVH.Went to the ER last night because I was experiencing some spotting and cramping. I had also been experiencing a lot of bowel pain in the last couple weeks. When the ER DR examed me last evening he said it looks as though I may have granulation scar tissue on my cuff and that I would have to be referred to my previous specialist who performed my hyst. When he was doing the exam and taking a swab I was in soooooo much pain I almost flew off of the bed! He said the area in question is what was being touched when the pain occured. At this point he stressed that he did not know for certain what the area on my cuff was. I have been reading the boards about something called a prolapsed tube and was wondering if this could in fact be what he sees on my cuff. If it is simply scar tissue, how do they remove it, how painful is it to be removed, and how long will I be out of commission, if at all. As far as the bowel problems, he said to keep an eye on it for a bit longer, if the pain persists, come back in to see him and he can order some tests to see what the problem is. I'm really scared right now. I truly thought that once I had the hyst I would be healthy and happy again. To have this setback is very worrysome to me. It will probably take a couple months before I even get to see anyone and I think the waiting and not knowing what the problem is, is the toughest. Any suggestions would be greatly appreciated. Thanks so much for your time.
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  #2  
Unread 05-19-2003, 08:14 PM
Pain

I can understand why you are scared. I was about 7-8 month post-op total hyst when I started suffering pain and bleeding. I was sent to a specialist who did a laproscope and burned some scar tissue that occur from my hyst. The scar tissure had connect to my bowel which cause pain and had cause bleeding. It was hard to believe that scar tissue can cause so much trouble. Hang in there! It will get better.
  #3  
Unread 05-19-2003, 08:15 PM
8 Months post op and very scared...

I don't have any bleeding but I did see a pelvic pain specialist (gyn) and when he touched my vaginal cuff scar it was so painful. He said I have either neuromas along the scar or neuralgia. Another exam showed several small lumps along the scar. Touching the scar causes pain throughout my pelvis.
The pelvic pain specialists treatment is to try antidepressant meds to reduce the nerve pain and then inject something in the neuromas to dissolve them (it is very painful as I understand).
I noticed that there is some information on the internet about this under "Post Hysterectomy Syndrome". It sounds like another treatment is to resect the scar.

The bleeding you have may be from granulation tissue which I understand can be treated with silver nitrate. I don't know if granulation tissue is painful or not.

I am not a doctor but thought my experience may ease your mind.

I wish you the best.
Sblumen
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  #4  
Unread 05-19-2003, 08:15 PM
8 Months post op and very scared...

Hi Donnalee, I am sorry you have such a startling ordeal last night. Exactly what type of pain do you have associated with your bowels. Also, did they remove your ovaries or do you have them both still??

I had granulation where my cervix was after my hyst and they used silver nitrate. It was not that bad and it was an in office procedure and left feeling fine. I can not tell you if that is exactly what you have because it could be one of many things, but I just wanted to pop in and give you a BIG

Most of the Sisters here thought that after their hysterectomy it would all be fine, just in turn to find out down the road that we suffer from problems we never thought existed. There are alot that have no future problems, but there are many, including myself that now have lifelong problems.

Whatever it is, we are all here for you for support!!

Hopefully you will get some answers soon, please keep us informed as to what they find. We all care!!!

  #5  
Unread 05-19-2003, 08:24 PM
8 Months post op and very scared...

I have kept both my ovaries. The bowel pain in extreme. Though it doesn't happen alot, when it does, it is excruciating. It starts very suddenly with a very painful lower abdomen. I don't know if it is more like a contraction or a spasm. No matter what I do, I can't relieve it on my own, it just takes it's course and it's gone. I normally DO have to have a BM shortly afterward. I had suspected dairy products as being the cause of it, but it happens with such variations in foods that it's definately not dairy related.
Thanks so much to all of you who have offered me support and advise. Means the world to me to find friends here who understand how hard this is to go through. Thank you sooo much
  #6  
Unread 05-20-2003, 06:28 AM
8 Months post op and very scared...

Donnalee,

I hope that you are feeling better this morning. I know that pain w/o answers can create a bunch of anxiety. Pre hyst I had bleeding with intercourse and my (then) gyn attempted to "fix" it by using silver nitrate on my cervix. If that is how they take care of granulation tissue then you can rest assured that it is merely uncomfortable and not painful at all. It's done in the office and there are no restrictions once you leave.

As far as the bowel pain is concerned....when I have not had a BM in a day or two I will get pain in my lower abdomen like someone is stretching something that isn't suppose to be stretched. Having a BM does make it go away...and it's the ONLY way to make it go away. My gyn says when she did the hyst my bowel had adhesions on it. She says that is probably what causes my discomfort now as well.

All that being said, since we are each different and I am definitely no doctor, your best bet is to continue to address this with your healthcare team. Good luck!
  #7  
Unread 05-20-2003, 06:51 AM
8 Months post op and very scared...

(((Donnalee))),
I'm sorry to hear about the pain & complications I had 2 Silver Nitrate treatments between 7-9 weeks Post-Op, It was uncomfortable but not too painful. It sounds like yours is a lot worse w/ maybe something else going on as the Dr suggested Here is some good info on Granulation Tissue along w/ Fallopian Tube prolapse that will hopefully be of some help to you:

http://www.medal.org/docs_ch26/doc_ch26.09.html
http://www.drcook.com/adca4.html

Laparoscopic management of fallopian tube prolapse:
http://www.biomedcentral.com/1472-6874/2/2

http://www.icsoffice.org/publication...0FLOOR/142.htm

adhesions on cuff:
http://www.angelfire.com/mt/nashrose/opobgyn.html

Incapacitating pelvic pain:
http://members.aol.com/EndoRama/hysterectomy.html

vaginal cuff:
http://www.dukeuroandgyncare.com/questionare.pdf

rebounding pain:
http://www.cgmh.com.tw/heal/journal/gr0206.htm

Fallopian Tubes and Ovaries - ... after hysterectomy:
http://www.library.uthscsa.edu/ms2/P...520Ovaries.doc

post hyst prolapse problems:
http://www.wdxcyber.com/wwwboard/messages/6804.shtml

Pelvic Pain Assessment Form:
http://www.pelvicpain.org/pdf/FRM_Pa...stionnaire.pdf

Gynecologic Causes of Pain - External: In Vulva or Vagina:
http://www.obgyn.net/displayarticle....ndman_gynpain2

Vaginal Problems:
http://www.wdxcyber.com/mvagina.htm

Adhesions/scar tissue following hysterectomy:
http://www.wdxcyber.com/wwwboard/messages/7068.shtml
http://www.wdxcyber.com/wwwboard/messages/7071.shtml

Pre-Op - Post-Op Resources: <--contains various post op concerns

https://www.hystersisters.com/vb2/for...daysprune=1000

Granulation Tissue:

http://www.infectioncontroltoday.co...s/191feat3.html

http://www.medinfosource.com/expert/exp3052499g.html

http://www.reproductivecenter.com/simplified.html

What is Granulation Tissue:

http://www.obgyn.net/ah/ah.asp?page=/ah/ATE_0201


Good Luck I hope you are able to find some answers & relief soon..pls keep us posted...((hugs))
  #8  
Unread 05-20-2003, 07:57 AM
8 Months post op and very scared...

Donnalee:

Just wanted to send a your way and make a few comments. [I thought that about now would be a good time to see a success story.]

I assume since you are concerned about tube prolapse that you still have at least one ovary. I still have both of mine and the girls have been causing me trouble. Luckily for me, my is a genius and he's fixed me again!!!

I was having pelvic pain on both sides, around my incision scar, at the top of my vagina during intercourse, pain for days after intercourse, pain before bowel movements and probably some other stuff I am not remembering as well. I charted all my pain for 2 months before seeing my doc and he said that at least some of it appeared to be cyclical and that suppressing ovulation might help.

Well B I N G O ! I started BCPs and my symptoms seem to be well under control for now. The first week and a half on the BCPs was rough, but once over that ... I feel great! [For the last several months I was starting to think that I would never feel great again ... but, I do]

I highly recommend charting your pain. It really paid off for me. By charting, I mean write everything down. The more info your doctors have about your the symptoms the easier their jobs are. I know it can be depressing to see it all on paper, but it might get you a quicker fix!

Hang in there and I hope you are back to feeling great soon!
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