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Back from uro, bladder diversion now! Back from uro, bladder diversion now!

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  #1  
Unread 05-20-2003, 08:15 PM
Back from uro, bladder diversion now!

Hi Everyone,

Thanks for all the advice. When my dh came home from work I asked him to take me to the catholic hospital to check it out. I was feeling better. Beautiful hospital, everyone so nice. Taken to the floor where I would be & toured with charge nurse. From Chicago where I am originally from or at least close. Private rooms have pullout sofas for guests. 1 nurse for every 4 patients. Left there feeling good. Went to uro just around the corner. Was taken in immediately & told all my records had arrived. Dr ,young & nice. Saw my bladder for the first time in photos from big hospital. Not in good condition.

We chose to have a bladder diversion. Will be fitted for permanent cath just above waist. No pain, no medications, normal life after 30 day recovery. Dr. gave me choice of hospital because next to catholic hospital is a larger newer one. I chose catholic. Bad news if bladder needs to come out because it will give me problems then vaginal cuff may have to be shortened. No sex! Dh didn't waiver & still said bladder diversion is our choice. The only other option would be to fly to St. Louis & see a professor there but iffy operation.

If things weren't bad enough, gyn faxed mammogram interpretation & nurse brought in & told uro he needed to see immediately. After that it was all about my cluster in left breast. Uro made appt with general surgeon, we went right over. General surgeon & uro will coordinate date for next week. My cluster is dimpled which is a sign of cancer (small percentage). They will do biopsy first & bladder diversion second. Uro said he could do surgery in 1 1/2 hours but will take 3 1/2 because he wants to be thorough (thought that was strange) I said by all means take your time.

Just got home because dh took me to dinner, said first time in 6 months I haven't looked sick & I didn't. Had 2 glasses of wine & suffered all the way home. Leaked, spasmed & groaned but still the best day in 6 months.

Oh, as for supra I said do I need it back in & uro said do you want it back in. NO! I will just leak until surgery. He said since it has done nothing but cause pain I should have had it out long ago. He also said this is not new fistula but same old fistula. Said should have been fixed first time but so scarred & mutilated not worth trying to fix unless I wanted risky surgery. I hope this makes since because I am tired but wanted to let you guys know I am fine. Uro said he is not the best surgeon for a special case like mine, I should be sticking with the uro that was supposed to do surgery today in big city but certainly understands why I am not.

Anyway off to bed feeling good & at the moment not doubting the decision I have made. I only wished I had seen my bladder in the beginning as it would have made a difference. If bladder remains I will have sloughing off of bad tissue for the rest of my life but not too nasty to live with! I don't know if I am making sense now.

Good night & I do love you all!
Terry
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  #2  
Unread 05-20-2003, 08:44 PM
Back from uro, bladder diversion now!

Hi Terry!!!

I am so glad that you are rid of the catheter for now and able to rest! I am also very happy to hear that you found a hospital and Dr's that you feel comfortable with.

I have no clue as to what your surgery entails, but I that it all goes well. It sounds like they got you in very quickly and are prepared to do what it takes to help you.

I will be praying that the breast tissue comes back benign and you dont have to worry about that. Please let us know when your surgery date is so we can all say an extra, extra special prayer for you sweetie!!

Get some rest and hopefully you can breathe a little easier now that all is under way!!

  #3  
Unread 05-21-2003, 10:02 AM
Back from uro, bladder diversion now!

{{{{{{{{{{Terry}}}}}}}}}}}}}}



I am so glad you are finally at a point where you have made a decision that makes YOU comfortable. So happy you are in tune with new URO and the hospital sounds great!! You are in my prayers and please get some rest and soooo glad the supra is out as I know how annoying they are!!

You are a special person to have endured all of this and you certainly have earned the special award..

PLEASE keep us posted as to your progress/surgery date etc. so that we can be right with you holding your hand!!!
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  #4  
Unread 05-21-2003, 10:07 AM
Back from uro, bladder diversion now!

((((((Terry))))))

It sounds like you have a game plan that you are comfortable with...and I want you to know that I will keep you in my prayers.

I'm glad you had such a great time with dh last night...you certainly deserve to have a little fun dear sister.

Sending you many S
  #5  
Unread 05-21-2003, 11:26 AM
Back from uro, bladder diversion now!

(((Terry))) I'm so glad to feel that you are at peace with your decision. That's something you haven't had in a long time, it must be such a big relief

s,
-Linda
  #6  
Unread 05-21-2003, 01:30 PM
Back from uro, bladder diversion now!

Thanks again everyone,

I can't stay off potty today or quit changing diapers but feel better. I slept late this morning & just took a nap for a couple of hours. I have joined a couple of websites for stoma people & have spent some time reading up on the surgery. I have a lot of questions yet for my dr but he did tell my I will be meeting with therapists that will show me different types of equipment & will take into consideration my lifestyle, clothing etc. They will help me decide which type of bags will benefit me the most. It is ironic that the national ostomy foundation is located in Kansas City & my former uro & partner are one of the founding leaders. I have a lot to learn.

Terry
  #7  
Unread 05-22-2003, 03:33 AM
good luck

Hi redapple,

glad that you finally have some answers... sending and will be thinking off you from this side of the pond.

sluggy
  #8  
Unread 05-22-2003, 11:59 AM
Back from uro, bladder diversion now!

Terry,

I was so upset yesterday when I read your post I couldn't even respond. I am SOOOOO sorry that this is happening to you. You sound like you have a positive attitude and that is good. I know how hard it is to stay positive and I'm sure you have good days and bad days.
I just wanted to give you HUGS and tell you that I'm here for you anytime.
Please take care,
Renee
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