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A Little Off Topic Here...But I Need Your Help With Eczema A Little Off Topic Here...But I Need Your Help With Eczema

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  #11  
Unread 05-22-2003, 08:23 AM
A Little Off Topic Here...But I Need Your Help With Eczema

WOW! Thanks for all of the info/tips sisters!!! You are all very much appreciated

Audrey...I have always wondered if eczema and endo were linked because when I started getting the eczema...that is when I started having daily pain from Endo. I know this, because it all started shortly after my Dear Dad passed away (within a year). Audrey is petrolatum anything like petroleum? If so, I've been using the white petroleum for a while now...and it is not as greasy as you would think. When my skin is dry and cracked this is my only saving grace (on my feet and shins too where I have little patches of something related to eczema) I am so sorry that you and your dd have this so bad. My sis also has it on her feet and hands...she has struggled with it for years...and in our family we fondly call it the "Star Trek" disease.

I will be sure to try some of your ideas. Some sound very soothing.

Things are looking up for me. I have an appointment with the Dermatologist on June 10th - I called yesterday in a burning/itchy bad mood, and received the call while I was at my GP'S. Poor guy could barely look at my hands. He's been treating me for the last few years (for the eczema) and the creams have worked fairly well up until this winter. He prescribed "Celestoderm/Betamethasone" Cream, and I can tell you that after one dose last nigt, I can already see a difference. The bubbles are bigger, but not as widespread....And there are even areas that are dried out that weren't yesterday

As for so many things...stress is a biggy when it comes to my Eczema. My doc also said that I need to look at what other things trigger an attack. I can tell you that I ate a lot of banana's over the long weekend...so perhaps that is one of my triggers - figures as I adore them.

On a side note, I awoke from a dream sisters where I was having a very bad period...and no one could figure out why as I had had the hyst already. The dream was so vivid...and I can tell you that I do not miss those days at all! I did wake up in pain though as I was 3 hours late for my meds.

So thanks again my dear friends. I will make some notes and get DH to take me out shopping.

S to all of you for replying...
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  #12  
Unread 05-22-2003, 08:51 AM
A Little Off Topic Here...But I Need Your Help With Eczema

{{{Judy}}}
I don't have any experience with eczema, but wanted to send some major s for you! I'm sorry you are having to deal with this on top of everything else. I have broken out in a terrible rash on my belly, it's been there about a week but I don't think it's eczema, just an awful rash.

I did see a commercial yesterday for a new treatment that is out. I can't remember the name of the cream but I will watch for the commercial again and will write down the name of it.

More s and a big for you my dear friend.
  #13  
Unread 05-22-2003, 09:31 AM
Endo and eczema

Jude:

The link between atopic disorders and endo had never occurred to me until I read the NIH study that was done in conjunction with the Endometriosis Association. This was one of the findings, quoted from their website:
  Quote:
Allergic and atopic conditions such as asthma and eczema were higher. 61% of the endometriosis sufferers had allergies compared to 18% of the U.S. general population, and 12% had asthma compared to 5%. If a woman had endometriosis plus an endocrine disease the figure for allergies rose to 72% and to 88% if she had endometriosis plus fibromyalgia or chronic fatigue syndrome.
Kind of eye-opening, isn't it ? But it confirms the suspicion that endo's basic mechanism is something in our own immune systems that "sees" ectopic endometrial tissue as "foreign" and mounts an attack, creating the inflammation and biochemical changes that are its hallmark.

And I think that most of you know about my fears for my DD: she's had three intestinal surgeries, with known adhesions, and severe eczema AND asthma. All I can do is that they come up with some systemic answer for endo before she has to go through years of suffering...and that somehow, she is spared...

Jude, it is the white petrolatum that the dermatologist recommended. And no, it's not greasy at all,which was a real surprise to us. But then our skin is so dry, it just soaks the stuff right up...in fact, the small one-ounce tubes last Rebecca and I less than a week.

Kim, I'll bet the ad is for Elidel. I'm surprised, Pam, that the dermatologist is using Elidel and Protopic together...they're in the same class of medication (and non-steroidal, BTW). But just like the steroids, you can develop a tolerance to them (Rebecca did, to Protopic) and then they no longer work.

Jude, good luck with the doctor's appt in June. I'm glad the Betamethasone works, but don't forget to take that week off steroids every three! You'll get a lot more mileage out of them that way. I so know that miserable itchy hand thing...it comes for me with very busy patient days, where I've been scrubbing a lot. I used to get it when I worked at another childrens' hospital. When you go into the newborn ICU, you typically have to scrub for three minutes, and their soap had something in it that I was allergic to. This hospital where I work now isn't so bad...and, thanks to my back problems, I no longer am scrubbing daily. That has made such a difference!

Cutting back on stress (oh, sure, just like "cutting back" on cookies, or coffee ) DOES make a difference for me. So does getting enough sleep, and eating well (so, Jude, try giving up bananas and avocados...and, if that does work, take a look around you for sources of latex, as they are related).

Great big group hugs to everyone who has to deal with this. I can't count the number of times they've called us from a new school to say that our DD has "chicken pox". And my father has needed steroid shots for his entire life, just to get some control over his wildly overactive auto-immune system. It probably led to his heart disease! Thank goodness, treatments are getting better all the time.

Audrey
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  #14  
Unread 05-23-2003, 02:16 PM
A Little Off Topic Here...But I Need Your Help With Eczema

Sisters,

Well, I see from ((Audrey's)) info and the thread that ((Sheri)) posted that this whole eczema thing is all linked to the other illnesses that I have like the Endo/CFS/FMS/IBS/CTS/Raynaud's...Possibly the nerve damage...and I know there's more but I can't remember

Gosh...I knew that there was an immune link...but it's like a big light just went off in my head. I am seeing an Endocronologist this Monday...so that should be interesting.

Kim...I'm sending you some major S right now! I'll bet your rash is somehow connected...and I hope it clears up soon my friend.

I hold you all in my heart, and prayers. Thanks so much sisters...xoxo Jude
  #15  
Unread 05-23-2003, 03:02 PM
One more piece of advice...

...and THEN I'll shut up!

In our community, the water is heavily treated with chlorine and bromine ... fluoride is also related to these chemically.

We have a water filter on our showers, and find that, when it's running out, our eczema gets worse. Sure enough, when we replace the filter, it's often "full" before its expiration date. We also drink unfluoridated bottled water and for a while, I used non-fluoridated toothpaste (and yes, it did help back then!).

Just another piece in this complex jigsaw puzzle...



Audrey
  #16  
Unread 05-23-2003, 04:17 PM
A Little Off Topic Here...But I Need Your Help With Eczema

((((Audrey))))

Please don't ever 'shut -up.'

I have learned more from you, and the other sisters, about eczema - in this thread...then I have from any dr. So, I say keep talking and "THANK - YOU."

This last 'outbreak' was the worst it has ever been...which is why I was prompted to post about it. I have always been curious if other sisters have this problem, and I like the idea about posting a poll.

I appreciate the info a great deal...S
  #17  
Unread 05-27-2003, 04:25 PM
A Little Off Topic Here...But I Need Your Help With Eczema

This may or may not have to do with anyone here, but this is my experience:

My doctor diagnosed me several years ago as having eczema. I was given everything under the sun. I was referred to a dermatologist who prescribed me a ton of corticosteroids, etc. None worked.

My dh just happened to have a case of athletes foot and was taking Trosyd for it. This med is for that and also ringworm.

Ringworm, what the heck is that? I just happened to be speaking online to someone who had ringworm and filled me in. The symtoms: red rash, itchy like crazy, sometimes gets scaly-looking, can spread alarmingly, heals from the center outward and sometimes looks like a bullseye.

Often affects the parts of the body where moisture collects (although it can occur elsewhere). Most common spots: skin creases, such as in the neck, inner elbow, behind the knees, groin/leg crease, etc.

Is also mildly contagious, so other family members may have it. Is not caused by a worm at all, but by a fungal infection.

Well, it didn't take me long to figure out that is what I had (and to think several doctors missed this!!?)

I started taking the Trosyd as directed on the package and my rashes healed up in record time.

I'm not advocating that this is what everyone here has, only that it might not be eczema in all cases. Worth checking out if these symptoms sound familiar.

Good luck!
  #18  
Unread 05-29-2003, 07:54 AM
Judester, you are the last person I'd ever label a "wimp"

Just think about it....all you've gone through, and you still have it in you to reach out and help others (like me, of course, but all the other Sisters, too).

As I wrote to you offline, almost every dr. I've seen about endo has commented that it's related to my Hashimoto's thyroiditis - autoimmunity to my thyroid that has left me hypothyroid since at least age 19. The theory is that many women may have excess tissue in the pelvis - especially those with severe cramping; contractions literally force the tissue backward through our fallopian tubes and into the pelvis. However, women whose immune systems are normal send "helper" cells (please correct me if I've misnamed them) to destroy the tissue, PAC man-like, as I read somewhere! But immune impaired women's systems can't do this, so the tissue stays there, takes root, bleeds, scars, and
you've got endo.

About the severe cramping: This is why I tell any friends with young daughters to take it seriously if they start missing school etc. due to disabling cramping once they start menstruating. I say, get them on the Pill asap, and never mind your moral concerns about it - that you can talk about separately. Many drs do believe that the Pill, taken early enough, can prevent endo, or at least, endo as severe as so many of us have. I know this entails risks in re hormonal exposure, impaired libido (when the time is right), etc. I can't speak for everyone who's tried the Pill, but I was well into my 30's before I ever tried it, and noticed the drop in libido within the first few cycles. My gyn said there was nothing to be done about it but live with it; for me, at the time, it was a worthwhile tradeoff - I had 3 glorious years of only slight pain only at the time of my very light periods (on Alesse, before it stopped working or my endo recurred - we don't know). Maybe another Sister can help me out with this one, too: some doctors, psychiatrists, I think, can rx meds to help restore libido quashed by hormonal therapies.

To sum up, anyone with endo who is unaware of any accompanying autoimmune disorder may want to consult a rheumatologist for screening. It is scary but, I believe, a good idea in the long term. And let's not allow endo daughters to go through what we have! Please excuse my adamant feelings about that...it's my pet peeve when young girls - many of us were among them, I'm certain - are not believed when they complain of crippling cramps.

Painfree wishes to all,

Hannah
  #19  
Unread 05-30-2003, 04:39 PM
I'm an 88%'r fer sure!

You're as much a wimp as I, Jude. I've been walking around with a broken arm for 8 months and didn't know it. The thing is...it doesn't really hurt. I never noticed it until AFTER my surgeries!

Glad to say though, I'm much better since my last 2 surgeries!

That's when I noticed the arm pain...how funny is that?!
  #20  
Unread 05-31-2003, 07:13 AM
A Little Off Topic Here...But I Need Your Help With Eczema

Thanks sweet Sisters

((Hannah)) I it is so very interesting to me that even eczema is linked to the Endo...in a way it totally makes sense, and at the same time it boggles my mind! I have known for years that the immune system is the key...and I have seen several Rheumatologists. All we need now is for some brilliant Doc to make the connection to save us all...and the daughters that follow. I took the BCP when I was in my twenties...and it was blissful. My cramps were minimal...and my cycle was like clock work. I had to go off of them because I had/have vericose (sp?) veins. They worked great for a while though....<sigh> Thanks for your post my friend...

((Anj)) It's so good to 'see' you! A broken arm eh?! It just goes to show what kind of pain threshold you have - amazing! I'm sorry you are dealing with a broken bone...but at the same time I am over joyed that you are feeling so much better - You deserve it sister....as you have been through so very much. I love you sweetie...and I'll be in touch once I know exactly what's going to happen next.

I had a test this week and my doc wants to start me on a med for RLS. He said that this med has even helped some of his patients with pelvic pain. So we'll see...He believes that part of my pain could be neurological...and even related to the RLS.

**I will probably post this over in the jungle...but for any sister that read this I need your advice. I saw an Endocronologist this week and she really wants me to start on some sort of HRT therapy. I haven't been taking it for almost a year now...so I thought I'd give it a try (with the blessings from all of my other specialists). This new doc prescribed the patch (estradiol -sp?) I did put one on....but it just wont stay on Any ideas on how I can get this thing to stay put??? I truly appreciate your input sisters...Thanks!

Well I've done it again...Planned something that I am dreading due to the amount of work involved. DH and I are having a small Jack & Jill Shower at our place tomorrow. So lots of shopping and cooking to do today. Hopefully I'll get through it...and everyone will have a good time. I am usually a good care taker of my own body...but sometimes you just have to live life - if ya know what I mean...no matter what the price is...

S to my lovely sisters on the road...
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