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Urostomy not that uncommon for Fistulas! Urostomy not that uncommon for Fistulas!

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  #1  
Unread 05-23-2003, 05:19 AM
Urostomy not that uncommon for Fistulas!

Hi All,

Since deciding to have a bladder diversion instead of trying to fix my butchered bladder I have joined a couple of ostomy websites. I have learned that fistulas are not as uncommon as I once thought. There are many ladies out there that developed fistulas on their bladders for a variety of reasons. Botched hysters, radiation treatment for cancer. I am not alone! Some even manage with the supra pubic cathaters for years before trading in for a stoma. Yet others have urostomies in order to let their bladders heal & then have them reversed. My bladder will not heal but if it is left dormant who knows what strides could be made in the next 10 years or so in regards to bladder repair. Already they are experimenting with artificial bladders. My bladder is very sore & I am anxious to have something done to help. I am hoping to get my strength back today because all I want to do is lay around & feel sorry for myself. For some reason that seems to take a lot of energy.

God Bless all my sisters!
Terry
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  #2  
Unread 05-23-2003, 06:05 AM
Urostomy not that uncommon for Fistulas!

I am so happy to hear that you are joining support groups to help answer some of your questions. The more support and info you have the better you can understand and cope with what you have..

It is sad however, that it is so common. You would think that they would have better methods ALREADY. I am so sorry you are suffering from this so much. I that can get through this with no more complications.

Sending you a warm
  #3  
Unread 05-23-2003, 10:22 AM
Urostomy not that uncommon for Fistulas!

(((Terry))) I'm so glad you are finding support and information on the ostomy websites too. I believe it that fistulas are more common than we know. Look at how many we have had here, and I'm sure there have been many more who have just not posted.

My own surgeon told me I was very lucky I didn't develop one last year because of how my colon abscess was lying right up against the bladder. It seems it's probably pretty easy to get a fistula and harder not to!

I think it's very healthy for you to think of this ostomy as the best solution for you right now, and keep in mind that there could be other options down the road which you are not ruling out. The artificial bladder could be a reality. And what about bladder transplants from animals with a similar urinary system to ours? Sheep, maybe? All these things could make it possible for you to ultimately have your ostomy reversed, and meanwhile you will be more comfortable than you have been for a long time.

Of course it takes a lot of energy to feel hopeless and despairing. I hope that you will find that coming to terms with your decision now will free you to have more energy to turn towards the future.

We're here with you all the way, Sweetie.
s,
-Linda
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  #4  
Unread 05-23-2003, 10:31 AM
Urostomy not that uncommon for Fistulas!

Terry,

You have EVERY right to have no energy and feel sorry for yourself. Allow yourself ANYtime you need.

I am here (as all the sisters are) for you. You are so in my thoughts. ((((((((((((((TERRY))))))))))))

Renee
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