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Hole in bladder Hole in bladder

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  #1  
Unread 05-24-2003, 10:34 PM
Hole in bladder

Aloha everyone,

Well, yesterday I went for my 5 week post-op check up. Since 2 weeks post-op I was "leaking" and I had told the Dr. about it. I spent the whole day at the clinic doing tests and sure enough, I have a tiny hole in my bladder, which, when full, empties into my vagina. So now I wearing a catheter, which I am supposed to wear for 4-5 days (maybe longer) to try and give my bladder a rest and try to heal on its own. If it doesn't, I will have to get it surgically repaired..

I was doing so well, too! Oh well...
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  #2  
Unread 05-25-2003, 04:18 AM
Hole in bladder

HI Maddy

Aloha girl- hope you are feeling better..I to had a hole like yours and have since been repaired. It is called a vescio-vaginal fistula or as we call it here a V V F. I am so sorry it took so long for your DR to diagnose you and for you to find some answers. Please keep us posted as we are here for you and I just want you to know I am thinking and praying for you and sending a big from CT. Be well sister!!
  #3  
Unread 05-25-2003, 05:23 AM
Hole in bladder

Hi Maddy,

I have a fistula that is not fixable. Hopefully yours will heal nicely. I wish I was in Hawaii instead of Kansas!

God Bless,
Terry
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  #4  
Unread 05-25-2003, 11:47 AM
Hi Karen

How did you get yours fixed? I mean, did you have to get it surgically repaired or did you need to wear a catheter also? What is it caused by? I had had a previous surgery (appendectomy) that left me with lots of scar tissue.
Thanks...
Hugz,
Maddy

  Quote:
Originally posted by KAR1
HI Maddy

Aloha girl- hope you are feeling better..I to had a hole like yours and have since been repaired. It is called a vescio-vaginal fistula or as we call it here a V V F. I am so sorry it took so long for your DR to diagnose you and for you to find some answers. Please keep us posted as we are here for you and I just want you to know I am thinking and praying for you and sending a big from CT. Be well sister!!
  #5  
Unread 05-25-2003, 11:51 AM
Hi Terry

How come yours is not fixable? So what do you have to do? Wear a catheter all the time? How awful! Mine hurt like heck just to put it in!!! And they had to do it twice on Friday..

Hugz,
Maddy

  Quote:
Originally posted by redapple
Hi Maddy,

I have a fistula that is not fixable. Hopefully yours will heal nicely. I wish I was in Hawaii instead of Kansas!

God Bless,
Terry
  #6  
Unread 05-25-2003, 02:19 PM
Hole in bladder

Hi Maddy,

I have had 2 failed attempts at fistula repairs. I was supposed to have a 3rd repair last Tuesday but wasn't treated very nice by the hospital. Besides it was an iffy surgery. I have been reassured that the surgeries were all done properly. I wore a urethral catheter for 8 1/2 weeks then a supra pubic catheter for 4 months. Now I am having a bladder diversion (urostomy) or I guess they call it an ileal conduit.

When I first developed my fistula I was lead to believe it was very rare but actually there are a lot of women with fistulas that are unrepairable for different reasons. I have not as yet been diagnosed as to the reason why mine didn't heal. I had a lot of endometrosis growing in my bladder. Possibley just weakened it or they say cut off the blood supply to my bladder. I am still reading the hundreds & hundreds of pages of dr's notes as I track them down.

Most fistulas are repaired the first time. The second surgery is considered 100% effective (if you believe all dr's tell you). There are a few on here that have had successful surgeries.

Good Luck,
Terry
  #7  
Unread 05-25-2003, 05:54 PM
Hole in bladder

Hi Maddy

Good to hear from you!! Yes, My fistula was repaired vaginally on the 1st attempt, which almost always is successful. I did wear a cath until it was repaired which was about 6 weeks until surgery and then I wore a supra-pubic cath for 3 1/2 weeks after surgery. I have had a good repair thus far and my URO told me I am completely out of the woods for anything to go wrong at this point. It is a tough road - I will not tell you otherwise and you will need all the strength you can muster, but the outcome was good for me. I did listen and did EVERYTHING the Dr's told me to do and am still doing that.

My life now is pretty normal- I pee well and feel almost back to my old self- you must make sure you have a very competent Dr. who has performed these surgeries before and is very familiar with the female anatomy. My URO deals specifically with women and this can be a hard specialty to find. So I hope this helps and if you need anything else, please let me know!!

I have been where you are and I know how much all the help I got here from my sisters aided in my recovery and treatment. Have a great weekend and I hope to hear from you soon.

  #8  
Unread 05-25-2003, 06:06 PM
Thanks, Karen

Well, according to both my OB and the URO they say it's a very tiny hole and it only leaks when my bladders gets full. So they conferred with a woman who specializes in these types of surgery and they all agreed that they want to see if my bladder will heal up on its own as long as it is given rest. So I sure hope so.. If not, I will have to fly to Honolulu and go through that corrective surgery by this woman Dr., whom I have heard nothing but good things about.

You have a great weekend, too and God Bless!!
  #9  
Unread 05-25-2003, 06:17 PM
Your Very Welcome!!

Hi

You go girl- sending bladder healing thoughts your way!! Hopefully it will heal by itself- we are due for one of those around here!! I wish you the best and please keep me posted up here in the cold Northeast!!

  #10  
Unread 05-25-2003, 07:28 PM
Hole in bladder

Hi, Maddy!

I am , like Karen, a recovering V.V.F. gal. I had an abdominal repair of my fistula Jan 15 and am doing well. My fistula was small also, I would go for days with no leaking and then it would start. I went through the cathatars therapy but ended up needing the surgery. Like Karen says, it was tough but you can do it if you have to. Most of us were fixed the first timeand that seems to be what all the stats say, just take one day at a time-that's the best way.

Take care, and there are alot of old threads you can read by typing in "fistula" or "vaginal urination" on the search menu of this site.

Best wishes to you,

Louise
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