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Stage I or II ?  Uterine/Endo Cancer? Stage I or II ? Uterine/Endo Cancer?

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  #1  
Unread 05-28-2003, 11:35 PM
Stage I or II ? Uterine/Endo Cancer?

I'm still putting question marks....maybe after my visit tomorrow with the OB/GYN specialist (new to me) I'll be more certain and accepting of my diagnosis. Not knowing what and when is the worst part so far. Will he recommend immediate hysterectomy? Or will it be when he comes back from vacation later in the month?

I've always had normal Paps, including the one a few months ago. Mammograms have been normal after a "scare" about microcalcifications about 10 years ago.

After going through a time of irregular menstrual periods, I stopped having periods about 2 years ago -- menopause at age 53. I have taken natural progesterone (cream) and monitored my hormone levels for years.

Went through a couple difficult years of Graves' disease (auto-immune hyperthyroidism) which resolved with natural remedies (herbal, lifestyle changes, etc.) this spring. I was so pleased that I was able to avoid the immunosuppressant drugs, radioactive iodine, or thyroid surgery! I will have to deal with "severe osteoporosis", maybe partly resulting from the high metabolic activity.

When the thyroid function was improved and I was able to get off the beta-blocker medicine since my heart was no longer going into fibrillation, I finally decided to have an endometrial biopsy. I had had months of intermittent spotting (I even had to wear a pad for a week or so recently) -- I thought it was from too much hormone supplementation. Three doctors looked at the biopsy -- said I have Stage I endometrial adenocarcinoma due to the cellular types and arrangement. Sort of a borderline case between hyperplasia and cancer.

Now the ultrasound has showed a "mass" which involves the cervix. After looking through some of the links from this site, I've come to accept the fact that I may even have Stage IIB, that I do need a hysterectomy, and now am wondering whether I'll be faced with radiation recommendations. Unbelievable! Well, perhaps I won't know that until after surgery. At least the resource material says "highly curable" !!
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  #2  
Unread 05-29-2003, 05:16 AM
Stage I or II ? Uterine/Endo Cancer?

Hi there!

Welcome to Hystersisters!

I found your post in the read-only 'stories' forum and thought it might serve better here in this forum. There is so much support and care here; you will not be alone in your journey.

Wishing you the best with lots of s,
  #3  
Unread 05-29-2003, 06:49 AM
Stage I or II ? Uterine/Endo Cancer?

Dear Hawk,

Please try not to jump to the worst case conclusions. It may not be that serious. Your Dr. will probably order a CT scan, and some blood tests, before recommending a hyst. Maybe it is just benign mass. Even if iy is cancer it may be at a very ear;y stage. You will find much support and info hea. Please post again after yoyr dr. visit.
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  #4  
Unread 05-29-2003, 09:19 AM
Stage I or II Uterine/Endo Cancer

Hawk Woman, I know the fear you are going through. I was diagnosed with Endo cancer in November 2002. Did a lot of research on it. Hope you are seeing an OB/GYN Oncologist. I had Grade II and it only had pentrated 10% of the Uterine wall. I required a complete radical hysterrectomy but no further treatment after that. Did not have the results until about a week after surgery, but my physician was somewhat postive after the surgery.

I also had good paps etc until I started spotting and being post menopausal knew that was not good, so got in right away.

I had the surgery New Year's Eve and continue in my recovery, and doing very well. Stay with this web site as it was a great source of help to me after surgery and saved a few calls to the doctors office. Hope all goes well for you and will keep you in my thoughts and prayers.
  #5  
Unread 05-29-2003, 11:15 AM
Stage I or II ? Uterine/Endo Cancer?

I'll be keeping my fingers crossed for you in the hopes that you get some good news. Please come back and let us know how you make out.

  #6  
Unread 05-29-2003, 11:49 AM
Stage I or II ? Uterine/Endo Cancer?

I too was taken by surprise. Started with a couple abnormal paps, colposcolpy and then cone biopsy. After all of these still coming out abnormal the recommendation is a complete hysterectomy.

I also recommend that you try to see a oncologoy / gyn my general gyn went ahead and referred me, but you can also contact a oncology/ gyn yourself for a second opinion.

Best of luck to you!
  #7  
Unread 05-29-2003, 09:30 PM
uterine/endo cancer

Dear Hawkwoman,

Having just gone thru a similar situation my heart and prayers are with you.Please , if you don't have a gyn/onc find a good one ! They are the experts. My gyn felt that after results of a hysteroscopy and D & C that the pathology results warranted a gyn/onc.

After a TAH/BSO ( she also check lymph nodes from my pelvis to almost my diaphram) on Feb 18th, path came back with adenocarcimoma, mixed endocervical-endometroid type... they couldn't really tell but the tumor seemed to them to be more of a primary endometrial cancer.but being in the cervical transformation zone they could not rule out a cervical primary. I had a clean PAP this past Aug,,,,, had some premenopausal stuff happening and wanted to check it out. That was in Aug. and in Feb. after banging my head against several brick walls. i finally got an answer to why I was feeling so bad.

I have just finished 25 external radiation treatments and 1 internal..It has been a hard and scary time but don't forget to ask all of the questions you need to ask of these medical people. I brought a friend. with me to all appointments and she took snotes of all questions and answers. Ididn't ask family members, it was just too stressy for them.
There are so many wonderful women at this site who have been there and done that....helped make a bad time for me alot easier. If it would help , please PM. I see you are Ca. Not to far from Ore.

Am keeping you in my thoughts and prayers.Also, my gyn/onc was very hopeful and so am I .!!!!!
Take care.
  #8  
Unread 05-30-2003, 09:48 AM
Been there.. recent surgery-endometrial cancer

I too had a endometrial biopsy done after some prolonged bleeding that came out of the blue. (Thought I was thru all that stuff).. first my doc ordered an ultra sound that showed a "thickening"in the endometrial lining.. I think they feel more than 5 mm is abnormal in post menopausal women.. mine was 17 mm. Then they ordered the biopsy which came back as adenocarcinoma endometrial type 1 and complex hyperplasia. My gyn said that indicated to her that it was a very early cancer. She asked if I wanted a referal to a gyn/onc. and I asked if she (I really liked this doc) thought it best to go to one... she said the "cure" would be surgery and that she would have a gyn/onc on backup during the surgery if the lymph nodes would need to be biopsied. They take everything out and send it down.. if it hasn't invaded the uterine lining more than just a bit, they don't need to go thru all the lymph nodes.....

I was good with that. As it turns out, she was right, everything was clean, all the pelvic washings, and some biopsied nodes... she didn't call the back up and the final path report was spotless.

I believe surgery is the answer, hard to avoid and mine was scheduled 5 weeks out. I figure it must not have been that "serious" in my doc's mind to rush it. The waiting was horrible.. so go for it right away if you can.

Josie11553
  #9  
Unread 05-30-2003, 11:02 AM
Stage I or II ? Uterine/Endo Cancer?

I believe that I owe my current good health to the good fortune of having a highly-competent gynecologic oncologist perform my surgery. My endometrial cancer turned out to be much more advanced at surgery than prior testing and examinations had indicated. My tumor had invaded 80% of the thickness of my uterine walland I also had extensive lymph-vascular space invasion, (another risk factor for recurrence). The gynecologic oncologist performed a radical hysterectomy--which regular gynecologists are not qualified to perform--because he noticed a bump on my cervix at the time of surgery. He also removed a section of tissue containing suspiciously enlarged lymph nodes.

A hysterectomy is major surgery, and although gynecologists perform them, they do not have the surgical training that a gynecologic oncologist does in operating on women with gynecolgic cancers. Even if I did not have cancer, I would want someone with extensive, high-quality experience to avoid surgical complications. Despite the extent of my surgery, I have almost no long-term effects. A gynecologist might say they will call a gynecologic oncologist at the time of surgery if one is needed, but despite best efforts and best intent, may not recognize the significance of a certain situation because of lack of knowledge or experience. And your life may depend upon it.

I also had to have both internal and external radiation because of a number of risk factors for recurrence. I completed treatment in August 1999, and I am thankful every day that I was fortunate enough to receive such high-quality care from both my gynecologic oncologist and radiation oncologist.

Good luck and good health to you--

MoeKay
  #10  
Unread 05-30-2003, 12:38 PM
Stage I or II ? Uterine/Endo Cancer?

You are right about the extra precaution of the gyn/onc. I agree, if it looks ok before going in, it sometimes doesn't end up that way. I was a bit concerned and talked at length with my gyn. She was very qualified for the surgery.. I too had a radical TAH with all the parts removed. I think because the path report from the biopsy was a mix of complex hyperplasia (pre-cancerous) and a small mix of adenocarcinoma I felt inclined to trust my doc in believing that it was caught just as it was turning. She did do a thorough check of everything, biopsied some lymph nodes, did the pelvic washings etc. The final path report was clear.

I would advise anyone with any question of cancer to go for the gyn/onc. If I didn't have the confidence in my surgeon that I did I would have gone directly to the gyn/onc. She was taught by the gyn/onc. we had on backup.

Waiting is the hardest and asking alot of questions, doing some research on the docs and hospitals etc. can help fill the time constructively.

I found xanax to be a huge lifesaver while waiting!!!

Josie11553
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