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Vaginal Tumor Found, need any info possible Vaginal Tumor Found, need any info possible

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  #11  
Unread 05-31-2003, 07:47 AM
Just a thought...

If you would feel happier about a second opinion in your own language.... how about hopping on the Channel Tunnel/Ferry and seeing an oncologist here in the UK? We may have an NHS system but pretty much all the consultants also see people privately. I know my gyn/onc does.

You could take copies of the results of any tests you have already had. They may not need anything more.

Lydia
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  #12  
Unread 06-01-2003, 09:24 PM
Vaginal Tumor Found, need any info possible

Hi Maria,
Have just been though a similiar thing, tumor was about the same size also.
They missed the vaginal tumor at first and thought I had cervicial CIS, then they found CIS in the uterus. Had a hyst for that and they didn't find the vaginal (which was the primary) for a few months.
First they tried inter-vaginal chemo, but I had a systemic reaction, so they stopped that after 3 weeks. Then I had a partial vaginectomy followed by 5 internal radiations. And yeah, everything still seems to work, shorten twice and nuked, but it still works.
And yes again, there is nothing out there about vaginal cancer. That drove me nuts. Just "surgery, radiation" no explaination as to what kind or how it would feel after the fact.
Feel free to e mail me, don't know if I have anymore info than you already have, but we can compare notes.
Wishing you the best,
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