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BCP's not working BCP's not working

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Unread 06-01-2003, 09:16 PM
BCP's not working

Hi ladies!

I am feeling so depressed right now! My doctor put me on BCP's about 2 months ago. He said if they didn't work for my cyclical pain that we would talk about taking my ovaries out. Well, the first packet of pills was horrible; My face was breaking out like crazy and I was in pain most of the time. Then I started my second packet of pills and I started feeling great.......until the end of the packet. Now I am on my third packet and my face has broken out, my breasts are sore and I am having pain. I am skipping the inactive pills, so really I shouldn't have a cycle. I am sure that if I had a uterus that I would be on my period right now. I feel like the pill really isn't helping me at all. I don't want my ovaries taken out.....I don't want to go into menopause. I am also dealing with so many other medical problems...interstitial cystitis and stomach and esophageal problems. We are not doing so well financially at the moment and I had to choose between buying my BCP's and buying my many bladder medications. I went with the BCP's since my gyn JUST prescribed them to me. I am so overwhelmed by everything that is going on with my body and the fact that I can't even pay for my medications right now. I was really making progress with my bladder problems, now I'm going to end up back where I was because I am running out of my meds and don't have enough money to buy more!

Anyone have any success stories about taking BCP's after a hysterectomy????? I need to hear something positive about it. So far it's not working for me. I am on Levlen right now, maybe I need a different pill????

Also please wish me luck...I have to have two medical procedures done this week for my stomach and esophageal problems. I am so nervous about it. I don't want anything to be wrong, but at the same time, I want answers.

One more thing. I am not telling anyone else about this.....I used to have an eating disorder and I am so depressed about my weight right now that I am having serious thoughts about doing whatever it takes to lose weight! I'm about a size 9/10 and I know that's really not big, but for me it is! I feel so depressed about it! I truly believe that an eating disorder stays with you forever! The only thing keeping me from doing the horrible things to my body that I used to do is my kids. I feel like if I did those things I would be hurting them and I can't do that.

Ladies, I feel so hopless right now. It all gets better, right?
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Unread 06-02-2003, 07:55 AM
BCP's not working

Perhaps you can get some samples of your meds from your doctor to get you through. I used to do that alot when I had trouble with my asthma. Doc always gave me a little bag to carry out filled to the brim with samples. He would do the same thing with antibotics as there were so many I couldn't take and he didn't want me to spend the money only to take a few pills.

There are many different brands and levels of doseages for BCPs. Perhaps a different one with a different level of hormones will work out better for you. If you're putting on weight, breaking out, sore breasts, etc that sounds like you may be getting too much estrogen. I would call the gyn and see what he has to say.

I'm so sorry you're having a difficult time sweetie. Yes, things can get better. Unfortunately being on this Road isn't easy, but somehow we make it thru. You have many friends here who care and who can relate.
Unread 06-02-2003, 09:16 AM
BCP's not working

Thank you so much, Kim, for your reply and just for caring. I think you are right that it might be a good idea to call my gyn and try another BCP. I will check into getting samples from my uro. That reminds me, it's time to make my follow up appointment with him. I have a few more of my bladder pills to get me through a couple more days and then I might have enough money to buy refills to get me through until my appointment with him. Better yet, maybe my gyn will give me samples of another BCP since that's the medication that I have to mess around with until I find the right one.

I am trying to deal with the weight issue the best I can. I guess being called "full figured" yesterday sent me over the edge. My husband told me being full figured is a good thing But I took it as being called "fat." Oh well. All I can do is keep trying to be healthy and not fall into my old ways.

Thanks again!
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Unread 06-02-2003, 10:45 AM
BCP's not working

Oh (((Pasdechat))), my goes out to you!!! I wish I had some magical advice to give you. Unfortunately, all I can do is sympathize with you in a BIG way.

I am taking bc pills too (Ortho Tricyclen Lo) and am having MAJOR PMS symptoms every 3 weeks. This is my first packet on the Lo ones and I was hoping the decrease in estrogen would help. It hasn't and I know I simply can't deal with another "cycle" like this.

But, with no insurance and no $$, I don't even know where to turn. I know the feeling of trying to decide which meds to spend those few $$ on all too well. I have hypertension and MPS/FMS and am suffering from depression too so, I have several meds and trying to figure out which ones I can do without (which is really none) just brings on more stress. I applied for Medicaid and was told that I have too much income ($600 a month child support for 3 kids is too much -- go figure). My GP did give me samples of the Effexor which has helped. I agree with Kim on asking for samples of anything you take. You never know!

I have never dealt with an eating disorder, but have gained 60 lbs. since my hyst and am so depressed about that. I'm not full figured....I am FAT! Several years ago I was like this and lost 90 lbs and I swore to myself there was absolutely no way I would ever be there again......yet, here I am. And that, too, adds more stress to deal with.

Sweetie, hang in there! Do whatever you can (healthy things only of course) to take care of YOU. I am always, always here if you need to talk...just PM or e-mail me!
Unread 06-02-2003, 01:23 PM
BCP's not working

Wow, vbjacks5! Thank you so much for your very encouraging words! It means the world to me! It's nice to know someone else understands exactly what I am feeling, but I don't wish this stress on anyone! Today I went into work.....I teach ballet(which explains the body image issues!) and went in to record some music for our two weeks of performances that we are going through right now. Normally they have our checks by the 1st and the 16th of each month. Well, today I was told we'd have them tomorrow.....the 3rd. I won't be there tomorrow because I will be at the doctor getting a tube stuck through my nose and down my esophagus that I will have to wear for 24 hours! So on Wednesday I have to make a special trip to work (30 min away) to get my check because I won't be able to go another hour without it! So this stresses me out even more! I'm sure this stress only adds to all my symptoms, but hey, that's okay. When I have that thing stuck in my nose and down my esophagus, I'm supposed to do anything I can to bring on the symptoms so they can have some idea of what's going on in there......so bring on the stress....and the chocolate cake
Unread 06-03-2003, 06:02 PM
BCP's not working

I don't have any words of wisdom regarding BCP's post-hyst. Although, I took them for years prior to the hyst. I will say that I've had alot of bladder pain, cycle-related pain, and pain in general since the hyst. I've had every test done except the test for interstitial cystitis, which I'll have done after July 4th. My doc also wants me to try Lupron to see if my ovaries need to come out. I cannot bring myself to try the Lupron. I've read too many horrible things about it. I guess what I'm trying to say is, this road can be torture..hang in there! I too have had to choose between which meds to fill, AND which doctor to see. My co-pay for a specialist doctor went up to $25.00 per visit, and I take Bextra everyday to help my pain, and that is now $30.00 even with my insurance. As you know...a specialist here..and a few prescriptions there can really add up!

I had a brief bout with anorexia in high school, and I know just where you are coming from on the body image topic. I am only about 5 pounds more than I was b/fore my hyst, but my hips feel wider and my tummy is definitely more poofy. My clothes fit different b/cause I can't work out like I used to. I have to work really hard to not obsess over my body right now...especially with these gorgeous scars etc. I was wearing a size 5 or 7 b/fore the hyst..and I'm 5'7". Now I have to wear a 9/10. Bummer. I keep telling myself, the last thing my body needs right now is for me to throw up and/or starve myself. I am just trying to eat as healthy as possible for healing power. I am right there with you...I'm hanging onto my ovaries like a life raft right now. I don't want to go into menopause either, on top of all this other hoopla that's going on. I just wanted you to know I can relate to everything you are saying and, I wish you luck on your upcoming procedures. Hang in there....................and here's a !!! Oh, and Kim was right on about the samples from the doc. They are usually pretty helpful and will give them out if you tell them your dilemma.
Unread 06-03-2003, 07:20 PM
BCP's not working

jlculp....I am also 5'7" and as I said a size 9/10. My lowest size as an adult was a child's large!!!!! I would NEVER want to be that thin again, but I would be thrilled with being a size 7/8. I think I mentioned that someone referred to me as being "full figured." That was hard to deal with. I really try to keep a positive attitude though. One of my friends told me just yesterday that it doesn't matter what size you are, if you have confidence, you are hot! I think she is right. When I see large women that have confidence, I look past their weight and see how beautiful they are.

Anyway, an eating disorder does stay with you forever and I think it will always be a struggle. I'm glad you can understand what I am dealing with, but sorry at the same time that you are dealing with the same problems as me...it's no fun!
Unread 06-04-2003, 05:06 PM
BCP's not working

Hi Pasdechat,
I have been following all your unfortunate events since we were in the post op board last year (my surgery was 8/5/2002). I remember you since I think you said you had pelvic congestion and that was also my biggest problem on my right side and nothing helped it until I had my right ovary removed. I can totally relate to not wanting your ovaries out. I had the doctor leave in my left since it wasn't bothering me at the time and I was worried about struggling with major surgery, trying to get HRT right, and four little kids all at once. I thought that if I eventually have to have my left ovary out I would do it later so I only have to deal with "minor" surgery and HRT at the same time.

.... well I am now having trouble on my left side that is like my right side was. The pelvic pain specialist I saw in Denver wants me to have a pelvic venogram to check to see if I have pelvic congestion again. He also said that it is possible to have the varicose veins in your pelvis even after having everything out. If it does turn out to be pelvic congestion he will refer me to try some sort of vein embolization to see if the symptoms can be relieved without surgery. Right now my pelvic tissues (everything - muscle, bladder, vaginal cuff, etc.) are so tender and painful that he thinks surgery would be the worst thing to add in... something about the nervous system in the area (specifically the Sacral S3 joint) loosing it's ability to moderate "pain" messages so it thinks everything hurts.

I am so sorry that you have to deal with all the financial stress in addition to all the medical problems. I can only imagine it doesn't help. I am fortunate that my husband has good health insurance through his job... but I told him he can't leave or quit or get fired because I would probably never be able to be covered at a new place.

As far as the BCP goes.... I had a terrible time on Levlen... and have also had a terrrible time with indigestion and reflux while I was on several BCPs. The pelvic pain specialist is having me try the Ortho Evra patch. I don't know if that will help reduce the effect of the progestin compound on my tummy but it is worth a try. I really think that if you have just started having tummy trouble and just recently also started the BCP it could be related. MINE definately was. since it went away two weeks after I stopped the BCP and I had had terrible trouble for 10 months with multiple tests done by the GI doctor.

Please keep posting. I hope you start feeling better.


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