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Endometrial carcinoma grade 1a Endometrial carcinoma grade 1a

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  #1  
Unread 06-03-2003, 06:52 AM
Endometrial carcinoma grade 1a

Hiya

I was diagnosed with the above in January and i had my 6 week check up for my hysterectomy and i see my gyne again in September. What is starting to concern me is that im not having any follow ups for the cancer diagnosis. I was told that with a grade 1a endo cancer the treatment is full hysto with lymph nodes tested. I had all that done on my second operation and everything was negative. My dr said 'go home and forget about it' but i cant help wondering whether i should be being monitored?? Thanks for answering.
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  #2  
Unread 06-03-2003, 09:41 AM
Endometrial carcinoma grade 1a

i go for the checkups every 6 mths. some go every 3 mths. sounds like you're on the 6 mth plan.

if you're concerned, call your doctor. we need to not feel badly for calling our drs. and getting answers. i no longer care what they think. if i have a concern or a question, i call.

ginny
  #3  
Unread 06-03-2003, 09:46 AM
Endometrial carcinoma grade 1a

Sheila,
Glad to hear that the cancer was in such early stages. I had the same cancer, but instead of stage 1a, I was 1b (still early too!) I am very closely monitored, I have check-ups every 3 months. I did not require any post-op treatment & the surgery was without complications. Is your doctor a regular gyn or is he or she a gyn/onc? Maybe that's the difference?! If it were me I would demand to be monitored, early detection is the key, as we both already know! Feel free to e-mail me if you have any questions that you want answered, the ladies on this site are also excellent at answering questions that you may have. Let me know what you decide& good luck!

's
Paula
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  #4  
Unread 06-03-2003, 12:00 PM
Endometrial carcinoma grade 1a

Hiya

Thanks for replying. My gyne is not a gyn/onc. Could you please tell me what exactly they check every three months. Perhaps i should go and see my GP and ask to see an oncologist. My gyne discussed my case with the oncologists. My slides were looked at etc and the oncologist told my gyne that i was to have lymph nodes looked at etc and if everything was clear then no treatment. Now that im a few months down the line im not sure im satisfied with that.
Thanks
Sheila
  #5  
Unread 06-03-2003, 02:43 PM
Don't worry

There's no need to start worrying. Unlike some other cancers, endometrial cancer tends not to be aggressive and does not spread easily. It also tends to be slow growing. I have read in several places that for stage 1a they often don't even bother to sample the lymph nodes, only if it has spread further.

Stage 1a means that it was present only in the endometrium - the lining of the uterus. It had not spread into the myometrium (muscular tissue just beneath the endometrium) or the cervix. They would probably even have washed out the pelvic cavity and tested the fluid for any abnormal cells. They even did that for me during my endo treatment.

I am sure that you would be seen earlier if they felt it was necessary. If it was me, I think I would be more worried if they wanted to see me more frequently. Rejoice in the fact that they DON'T need to see you sooner! But I know where you are coming from. Sometimes you just want to talk to the gyn NOW so they can take all your worries away and tell you everything is going to be fine.

Lydia
  #6  
Unread 06-03-2003, 06:38 PM
Endometrial carcinoma grade 1a

go to an oncologist. you had cancer. you should see a cancer specialist, even if your cancer was in the very beginning stages. they know what to look for - this is what they do every day and it'll also make you feel better. you've got to trust your instincts and your instincts are telling you that you're not satisfied and want to see a specialist. i know that's what i ended up doing. my gyn. wanted me to continue with her, but i felt better following up for the next 2 years with an oncologist.

hope this helps you a little.

ginny
  #7  
Unread 06-03-2003, 07:00 PM
Question for Lydia about endo cancer...

I was told by my oncon gyn that mine was aggressive - but my cancer had gone through 1/3 of the uterine wall and 4 out of 10 lymph nodes had "microscopic" cancer cells - I am guessing that is what made it aggressive? I will ask her anyway, but thanks for any insight.
  #8  
Unread 06-03-2003, 08:37 PM
Endometrial carcinoma grade 1a

Sheila,
I had stage 1b, grade 3 endometrial cancer; caught early, so the only treatment was TAH/BSO. Follow up is a pelvic exam and pap every three months for 2 years, and every 6 months for the following 3 years. That was the follow up recommended by my surgeon (a gyn/onc). I was going to my regular gyn for checkups, but I recently moved, and am going to a gyn/onc now--he concurred with that follow up schedule. I'd highly recommend that you see a gyn/onc. Both gyn/onc's said that the grade 3 cancer was aggressive, and I was very lucky that it was caught early--so even though endo ca is usually slow growing and not a very aggressive cancer, there are exceptions. Don't want to scare you, but early detection is really important, and you should have frequent follow up, especially for the first 5 years, which is the period when most of the recurrances happen. Please, go see a gyn/onc . . . and get the follow up you should have!
  #9  
Unread 06-03-2003, 10:09 PM
Endometrial carcinoma grade 1a

I was diagnosed on December 30th (my husbands bday, of all days) after having a D&C on December 27th. My hyst was on January 10th. I was staged at 1a, grade 1.

I go every three months first year, every four months second year and then every six months forever.

I'm the only person I know who has had cancer and never saw an oncologist. My gyn keeps telling me she considers me "cured". Everytime I get a pain my first thought is, "Is it coming back?".

The WORSE thing that has happened since the surgery is that I had the first check back last month. I kept expecting one of those little cards telling me everything was normal. Well, it didn't come. Instead I received a voicemail at the end of the work day from the nurse telling me to call the doctor the next morning. For 14 hours I cried and thought the doctor was going to tell me the cancer had come back. Nope. When I called the next day the nurse said everything was normal. I asked her as calmly as I could to please note on my file that this kind of message may be left on my answering machine.

Some well meaning people tell me I'm lucky the cancer was caught early. Being the sacastic person I am, I choke back the reply, "Gee, I wouldn't call having cancer and getting your uterus ripped out when you're trying to get pregnant for the first time, lucky, would you." I think the best word I have come up with is, THANKFUL. I am thankful that the cancer wasn't any worse than it was.
  #10  
Unread 06-04-2003, 06:33 AM
Endometrial carcinoma grade 1a

I've only just seen your post, Sheila. I too am in the UK and had my hyst for endo cancer in March 2003 (also grade 1, stage 1).

Iu the UK, it often seems to be the case that treatment depends on which hospital you are under. I was checked every three months for the first year. Now, in year two, I am checked six-monthly.

I wouldn't worry too much though - they didn't really do much at my checks, apart from having a little feel around inside to see if they can feel anything abnormal and ask if I have had any problems. The really important thing is to report anything abnormal (especially any bleeding from either the vagina or the bowel) to your doctor immediately. If you do that, you will be okay.

I was told that, on the rare occasions that this cancer comes back, it usually does so in the first year. By the time you get to the 2-year stage, you are virtually considered cured!

By the way, I am not under a gyn onc either. With our NHS in its present state, I would have had to have waited much longer for my op if I had wanted to be under one - and the important thing to me was to get the cancer out as soon as possible! I am one hundred per cent happy with the doctor I was under anyway! He was fantastic and do not wish I had seen a gyn onc at all!

Hope all continues to go well for you,



Chris.
http://www.geocities.com/christine_neal/
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