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needing to vent! needing to vent!

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  #1  
Unread 06-04-2003, 01:34 AM
needing to vent!

Hi everyone,
This week for me has been a real night mare and i am needing to vent if it is ok? A week last monday I was called into my doctors office to talk about the results of my biopsy. The doctor said that i have lymphoma of the cervix and said chemo was they only way to treat it and that she would hand my notes on to a group of MDM specialist that were meeting that Wednesday ( this alone tells me that she does not understand my case and does not want to be involved ). To cut a long story short it has been a week now since that meeting and i have heard nothing from my doctor . I tryed to ring her twice this week to talk about it all and i get the cold shoulder ruteen form her secertary....

At the moment i am feeling that no body cares ( At least the doctor could have done when she told of my diagnosis is to say if you need to talk here is my number or give me a number of a councalor) and that all my doctor wanted to do is to get me out of her office as quick as possible. At this rate the lymphoma could kill me before i get treatment. To make matters worse i can not even find any imformation on the internet to at least give me a understanding of lymphoma of the cervix....There is imformation on lymphoma but not in the cervix....... Am i a rare case? Does any body care that i am hurting and just want some reasurence?? At the moment i feel that i would be better killing my self than going through this all alone and having the feeling that i am a problem that no one wants to help solve....

Please someone tell that what i am feeling is not true and that it is going to be ok.....

Thanks for letting me vent everyone ....
Bunny_Rabbit
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  #2  
Unread 06-04-2003, 04:14 AM
needing to vent!

Hullo Bunny Rabbit... I am really sorry that your doctor did not help you more but there must be a cancer support service
you can get in touch with. Try looking in the phonebook or phone your doctor and demand a number to call... maybe a
friend could do this for you.
It seems to me that the system where you live is similar to here in the UK. All the information about you will have been
to a panel of oncologists , who will decide on the best treatment for you. The panel ,who discussed my case, met every
week. I'm sure you will here from yours soon.

Do try to get counselling now! You will have made a lot of friends on this board and we will all be here for you.

Sending you very best wishes Maggie.
  #3  
Unread 06-04-2003, 10:35 AM
needing to vent!

(((Bunny)))

I'm sorry that you are feeling so stressed at the moment. Cancer is a very frightening thing indeed, and you must be very frustrated at the lack of communication you are having with your doctor.

Lymphoma of the cervix is indeed rare. I would think you want to read lots of info about lymphoma. Lymphoma can affect different areas of the body--yours is the cervix. I found a very little bit of info about it, and it's a very difficult read (in other words, you might not get much from this--I do a fair amount of medical reading, and it was tough). It could be a good starting point for you though. I assume that they will do more testing on you to determine if there are other areas of involvement as well. Here are a couple of links for you to try:

http://eu.amershamhealth.com/medcycl...nvolvement.asp

http://www.cancerhelp.org.uk/help/default.asp?page=2758


I agree that a cancer support group could be very beneficial for you right now. Call your local hospital and see what they have to offer. And of course, all of us are happy to share our experiences and 's to try to help you along your way.

Keeping you in my 'ers that you are able to find good information and an oncologist that will help you understand your situation and treatment options.

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  #4  
Unread 06-04-2003, 02:31 PM
needing to vent!

Oh Bunny....

Getting the news that the diagnosis is cancer is terrifying and then not having the support of your doctor is outrageous and unacceptable. I certaininly would not allow this to happen.

I think it is time to get tough. I would call one more time and demand to see or talk to the doctor in charge of your case. If they fail to acknowledge your request I would call my insurance company and tell them that this doctor graciously accepted their payment but would not give you, the patient, the right time of day. I would also try calling the head of the department.

If still no satisfaction, time for a second opinion from a new doctor. I am from New York and we only accept the best!! Second best will never do with us!!

Good luck.

Rosalie
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