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Precancerous cells - what does this all mean? Precancerous cells - what does this all mean?

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  #1  
Unread 06-06-2003, 12:00 PM
Precancerous cells - what does this all mean?

I know it sounds pretty self explanatory. But why then am I so confused? For almost a year now I have had "abnormal" paps. I have also had 2 colposcopies and one conization. After all of these my doctor reports that I still have abnormal cells. He recommends one of two options: Have another conization or have a hysterectomy.

Has anyone else been here before? Please help!
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  #2  
Unread 06-06-2003, 12:24 PM
I know what you mean.....

My first abnormal pap was just this past March. I had the colposcopy/biopsy and the conization. What my doctor told me was that it was "not cancer, but pretty close". Then he told me that the technical term was "carcinoma in situ". Well, I looked that up and it literally means "cancer in one place." So was this cancer or not? Yes and no - it was, but had not become invasive yet so no treatment (radiation/chemo) was necessary. He gave me the option of having a hyst or just being monitored through check-ups every 3-6 months. After talking to my husband, we decided that since we are done having children and we don't want to have to constantly worry about this returning, I would go ahead and have the hyst. I also have possible adenomyosis, so that was a factor in our decision. It's the best option for me, but you may be different. I depends alot on how old you are - I'm 39, whether you want to be able to have kids (or more kids), if you have any other types of problems, etc. Whatever you decide, I hope all goes well for you.

Hope this helps a little.
  #3  
Unread 06-06-2003, 04:57 PM
Precancerous cells - what does this all mean?

I had my first abnormal pap about 12 years ago. I had the colposcopy and then a cone biopsy and my paps were normal for the next 10 years. I went the same route with a colposcopy and a cone. When the pap done 3 months later my dr recommended a hyst.

Pre-cancerous cells of the cervix is called dysplasia and can be described as mild, moderate or severe. Sometimes called CIN1, CIN2, and CIN3. There has been a lot of discussion about "Carcinoma in situ" (CIS) and whether it is a cancer or a pre-cancer. I often see it described as a Stage 0 cancer but because there is no invasion it is treated as a pre-cancer. Did you dr tell you the severity of the abnormal cells?

As Purple said, the decision about whether to have the hyst depends on your situation. If your dr isn't a Gyn/onc I would suggest that you consider getting a second opinion from one. They deal with this condition all the time and are the experts.

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  #4  
Unread 06-06-2003, 06:13 PM
Precancerous cells - what does this all mean?

I had the exact same two options... I already have two children, so it is my choice to have the hyst, as I need to be here for them and do not want to take the chance of the cells becoming invasive and needing treatment later on... it is not an easy choice, weigh your options carefully. My first abnormal pap was in Feb of this year, and then a colpo and a LEEP procedure, and this came up quickly for me. I also wonder what your severity is, I am guessing the dysplasia is pretty well progressed if a hyst is being suggested.

Best of luck to you, let us know what you decide.
  #5  
Unread 06-09-2003, 11:44 PM
searching for meaning as well...

My first abnormal pap was at 19 - in the last 21 years I've had several abnormal paps, 3 colposcopys, 2 cones - that all started with paps showing as CinII & III... My son had to have surgery in January and will have to have another in July. My doc wanted to wait another 3 months and do another biopsy, but with all the son's surgery I was out of time at work and asked about having the hysterectomy now (teach school - so summer is the best time). I was scheduled for the hyst (TAH) 4 days later - first day of summer vacation - whoo hoo! It's been 1 week today!

The results came back from the TAH - and there was cancer found - noninvasive - I don't know anything else beyond that. I don't think I've come to terms with the "c" word yet. Don't really know what it all means either. I'll get the surgery report by mail soon - or I'll see the doc in 2 weeks for post-op permission to go to a "Search for Meaning" (myth & ritual) workshop (a week retreat - & very appropriate for me at this time of my journey I think). I'll share what I learn about the surgery results as soon as I get them.
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