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Factor V Leiden/No HRT Factor V Leiden/No HRT

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  #1  
Unread 06-07-2003, 03:57 PM
Factor V Leiden/No HRT

I am scheduled June 13th for LAVH. I have Factor V Leiden, I have never had a clotting episode. My mother had pulmonary embolisms in both lungs after a hip replacement, blood tests revealed the genetic clotting disorder. I can not use HRT. I'm 47, almost 48. My dr and hemotologist both recommend removing the ovaries "at my age". I can't decide which way to go. No family history of ovarian cancer. Dr's scare me when they talk about removing them to avoid cancer risk. I'm leaning toward telling them to leave them if they look healthy. Any advise or personal experience? I'm worried about immediate menopause.
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  #2  
Unread 06-07-2003, 05:11 PM
Factor V Leiden/No HRT

I had a LAVH/BSO on 05/07. I have the genetic tendancy to clot due to the cardiolupin factor (a lupus-like disorder). I had a deep vein clot in my leg when I was on BC pills over 20 years ago but I haven't had a documented incident since. During my surgery they gave me a 5000 mg shot of heparin and post-op I had the compression stockings and automatic leg massagers.

I was already in perimenopause and on oral supplemental estrogen for about two years before my symptoms developed where I needed a hyst. When my DR saw my cardiolupin factor she immediately ordered me off the estrogen. I was off for three months prior to my hyst and I was suffering! I decided to have my ovaries removed because they weren't doing much for me anyway. I really wanted HRT!

I'm now on the patch. My DR says I have less chance of developing a clot because the patch lets the estrogen by-pass my liver. I'm on prescriptions for high-cholesterol and asthma which also are metabolized by the liver so anything that by-passes it and gives it a rest is okay in my book. I'll sometimes cut my patch in half (I'm on the V-dot which can be cut, the other patches can't) or I'll give myself a day or two break from wearing the patch.

I'm still at risk for blood clots but it's a risk I'm willing to take. I am on asprin therapy and will probably go back to having 4 ounces of red wine each evening in hopes it'll keep my blood a little thinner. If I have to, I can start a prescription blood thinner later. There are new ones coming out all the time which are specific to keeping the platelettes from getting "sticky". I have my fingers crossed. As long as I don't ever have a clot or a stroke, I can keep the HRT.
  #3  
Unread 06-07-2003, 05:28 PM
Factor V Leiden

Hi, and welcome to Hystersisters. I have Factor V Leiden; however I wasn't aware of it before my hysterectomy. Three weeks PostOp I was admitted to the hospital with a blood clot in my leg (Deep Vein Thrombosis). I had already had my ovaries removed because of my age.

Maybe I would have benefitted from keeping them (I was 52 at the time) but I'll never know for sure. I think they would have helped had I left them.

I was getting hot flashes so severe and so frequently that my doctor put me on Effexor, which is a mild antidepressant which also helps control hot flashes. I still get them, but not as often. My hematologist said positively NO to HRT, even the patch.

If you ovaries are healthy why not keep them? Since you won't be allowed to start HRT, you will benefit from the hormones they produce. You will be able to go into natural menopause instead of being thrown into surgical menopause.

As I said, if I knew I wouldn't have been able to start HRT I would have asked to keep my ovaries. Ask yourself this question, "If I weren't having a hysterectomy, would I ask my doctor to go in and remove my healthy ovaries?"

It's a tough decision to make, but talk it over with your doctor, and together you will make the best decision for you.

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