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7th chemo out of the way... 7th chemo out of the way...

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  #1  
Unread 06-07-2003, 07:43 PM
7th chemo out of the way...

but I'm so bummed... I don't think this mixture is going to work. I still have pain, and I thought by now, it would be gone, since I had my chemo on Wednesday. So, now I'm beginning to think it's not working either.

I didn't have as much bone pain this time, nor the tiredness. But maybe cause it's NOT WORKING!!

That adriamycin, is some weird stuff. Okay, maybe not weird but different. It is RED, and it comes in a big huge giganic syringe that they push through the IV. Really weird... And my nurse (well she wasn't really my nurse, my real nurse had a Dr apt, so this was a temp nurse) said it will come out of my urine, so I have to make sure I flush twice if I have small children or pets at home, which I do. So now, I have to wait and flush twice, everytime I go potty...

And to top this all off, my Dr is on vacation, so on the 18th when I have my Dr apt, I will be seeing someone else. How am I going to explain my pain, and the fact that I don't think my chemo is working to a complete stranger. Oh well, I'm thinking I can get my point across, if I really try.

Anyway, back to taking my pain meds again. This time, though one pill seems to be working, which in my mind is way better than taking two pills, PLUS, I don't have to take them as often, so maybe this chemo is working some, but very little in my mind.

Anyway, thanks for listening or reading to me....

's and ers to everyone...
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  #2  
Unread 06-07-2003, 07:58 PM
7th chemo out of the way...

Hi Tammy,

I just wanted to say I'm sorry you're having such a frustrating time with everything.

However, I'm so glad this site is available for all the venting needed to make us all feel better, it really helps doesn't it?

Feel free to vent anytime, I'm sure I'll be doing my share in the next few weeks. :-)

Take Care,
Kristine
  #3  
Unread 06-07-2003, 09:00 PM
(((((((Tammy)))))))))

I am sorry that you are feeling so down with this new drug. I do hope that it is working. I will continue to pray for you. Take care and God Bless.
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  #4  
Unread 06-08-2003, 11:56 AM
((Tamy))

I know it's frustrating--I've hit frustration in both series of chemo to the point of almost quitting this last time. Just hold on. I know nothing about Adriamycin--are you getting it with or without the taxol/carbo? Adriamycin is used as first line in breast cancer. The women at ivillage.com on the breast cancer support board would be able to discuss Adriamycin with you. Ellen
  #5  
Unread 06-08-2003, 11:56 AM
7th chemo out of the way...

I don't understand why pain would mean the drug isn't working. My pain has decreased a bit with each subsequent chemo, but I understand that this is common. Now I have fun Neupogen pain.

I'm curious, though, as to why you would think the drug isn't working. Is pain actually linked to a drug's working vs. not working? (I honestly don't know.) I know that people tolerate various chemo drugs in different ways, and that they have different side effects and levels of pain. But I'm not aware that these things are linked to a drug's working or not.

Think positive, Tammy! Don't lose hope! My recent schedule setback depressed me (more than I thought it would) for two days (chocolate ice cream helped -- seriously). But I know that I have to keep my sunny, happy, positive personality up and running to get through this and make it work. So don't despair!

I know it's hard when doctors go on vacation. My chemo doctor is also on vacation. Is your doctor checking messages? Adriamycin is a strong drug, and I know it's proven successful for a lot of people. Keep your hopes and faith strong, Tammy!

I love that you had to discuss your new "potty" habits. That just cracked me up. There's one chemo drug that makes you pee blue. Not sure which one. ;-)
  #6  
Unread 06-08-2003, 02:08 PM
7th chemo out of the way...

Sirensong, the pain isn't from my chemo, it's from the cancer. When I had my last surgery, I found that I was having pain near my tailbone area, and at my tailbone area. Well, at the time, I didn't think it was pain, it was more of a nuscance (sp?) just something that I felt in the back of my mind. It only really bothered me at night, I guess cause there was nothing else to think about but that. Anyway, I discussed it with my Dr, who told me that that was the cancer. He said sometimes the cancer does create pain, and since that was the area where my cancer was, it was the cancer that was creating the pain, so he prescribed me some pain meds. (darvocet)

Well, once I started my chemo treatment, the pain went away, so I gathered that the chemo was getting rid of my cancer since it was taking the pain away.

Everytime he told me the chemo wasn't working, I knew it beforehand, because my pain would come back before the next treatment. But this time, it hasn't gone away at all. It would usually go away for at least a week, before coming back, but this time, it hasn't. So, that's why I'm guessing it isn't working this time. Every other time, the pain vanished. So I wanted to call my Dr and tell him all of this, but he is on vacation. And I don't think they could just give me other drugs just like that anyway. I probably will still have to wait my three weeks.

Anyway, that is what I mean when I talk about the pain, and my pain meds, which by the way, he now prescribed vicodin, since the darvocet wasn't allieviating the pain any longer.

Sorry, for this long speech...

's & ers to everyone....
  #7  
Unread 06-08-2003, 02:19 PM
7th chemo out of the way...

Oh, Tammy. I am so sorry. I hate to think of you being in pain. I guess I didn't even realize that that's what you were talking about.

In light of your prior experiences with pain and chemo not working, I can see whereas you might think that this chemo isn't working. But if it's new, give it a chance. I'm trying to be super optimistic from afar. :-) You've been through so much, and you have such a fighting spirit! If for some reason this drug doesn't work, they'll find one that does!

You. Will. Get. Through. This.

I am *so* sorry that you're experiencing pain, though. Add some chocolate Haagen Daz in with the Vicodin. Maybe that will help. :-)

I sent pics for your journal to your other e-mail address. :-)
  #8  
Unread 06-08-2003, 06:26 PM
7th chemo out of the way...

Oh Tammy,,,

I am sorry that you are feeling sooo down. This will sound silly but go have a great big hot fudge sundae!!!!

Whenever I felt that way, and many times i did, my husband and I would go to Friendlys and order the gooiest most fattening thing they had...

We then felt soo guilty eating all those calories that we forgot about the rest of our problems..
Try It!!!

Rosalie
  #9  
Unread 06-08-2003, 10:23 PM
7th chemo out of the way...

s Tammy

I can imagine how frightened you are right now. But try and give the adriamycin and cytoxan a bit more of a chance to do their duty. And in the meantime ask for some stronger pain meds. There are so many good pain meds out there, that you need not feel sedated to be rid of the pain. Perhaps a pain management doc could be of help to you? I still hold much optimism for your future, but at the same time, you need to be pain free during treatment.
My thoughts and prayers are always with you.

karenann
  #10  
Unread 06-09-2003, 11:52 AM
tammy, I am so sorry to read that you

are in pain. Hopefully the new pain meds will start working right away. My thoughts and prayers are with you!!!
Hugs!
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