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Should the pelvic lymph nodes go too??? Should the pelvic lymph nodes go too???

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  #1  
Unread 06-10-2003, 12:17 AM
Should the pelvic lymph nodes go too???

The doctor wants to take the uterus, tubes, ovaries, cervix and all 24-30 lymph nodes in my pelvis. SHe says this is the safest thing to do. We know I have grade 1 adenocarcinoma, but we won't know what stage the cancer is in until after the surgery. She says that she won't know if I need radiation or chemo if she doesn't take the nodes out.

Have any of you encountered this???
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  #2  
Unread 06-10-2003, 04:09 AM
Gyn-Onc Took 30 of Mine

My gynecologic-oncologist removed 30 lymph nodes at the time of my radical hysterectomy, plus a section of tissue surrounding the obturator nodes because they were suspiciously enlarged. All nodes turned were negative for tumor cells, but I ended up getting internal and external radiation anyway because my pathology report determined that I had a number of other risk factors for recurrence.

Best of luck with your upcoming surgery.

MoeKay
  #3  
Unread 06-10-2003, 07:43 AM
Should the pelvic lymph nodes go too???

Alana
I was dx last July with a Stage 1a, grade 2 endometrial adenocarcinoma. I only required surgery and now have follow ups. My onc/gyn sampled lymphnodes, which were all clear. He used the word sampled so I am not sure if he removed the whole thing or not. I have numbing in my upper right groin area, which I assume is from the lymphnode sampling. It has gotten much better over the last several months, but it still feels funny. I haven't ordered my surgical or path reports yet....I don't think I am ready to read all the details just yet.
Grade 1 indicates that you have a slow growing cancer.....What were your symptoms?
Please continue to post any ?? or feel free to email or PM me. Chris
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  #4  
Unread 06-10-2003, 08:00 AM
yes

Hi Alana. I have stage IC grade I ovarian ca. When I had my tah/bso, my surgeon took pelvic lymph nodes. I forgot to ask her how many. Best wishes to you and let me know if you have any questions.
  #5  
Unread 06-10-2003, 11:27 AM
Should the pelvic lymph nodes go too???

I think they removed only four of my lymph nodes. Not sure if they "sampled" anything else. Some doctors remove more, some remove less.

According to a woman I met at the Wellness Community, the trouble with removing more is that you can end up with lymphdema later on. I asked why some people had so many lymph nodes removed while others had just a few, and she said it was doctor preference. Maybe they took just enough out of me to find one postive node, then stopped. I don't know. Three were clear, one was positive. And that's all I know. I'm going through chemo now.

Good luck!
  #6  
Unread 06-10-2003, 11:41 AM
Should the pelvic lymph nodes go too???

I had LMP OVCA and they removed 32 lymph nodes at my surgery. Seems to be something standard with cancer since it can spread so quickly thru the lymphatic system.
  #7  
Unread 06-10-2003, 12:52 PM
Why Gyn-Onc Took 30

Alana,

I did not mention in my prior post that I had endometrial cancer. Since 1988 endometrial cancer has been a surgically staged disease. In order for the pathologist to complete full surgical staging, pelvic and para-aortic lymph nodes need to be sampled and evaluated.

In addition to pelvic and para-aortic nodes, I had obturator nodes removed because the gyn-onc observed at the time of surgery that they were enlarged, and because of their size the gyn-onc suspected that the tumor had invaded the nodes (pathology later determined that it had not).

It is my understanding that the number of nodes your gyn-onc will remove (at least for endometrial cancer) will be determined during surgery based on the clinical findings.

Hope this helps.

MoeKay
  #8  
Unread 11-02-2003, 01:59 PM
should lymph nodes go

dear Alana
By the sound of it my op 2 years ago was much the same as yours. I had 30 plus nodes removed. I made a good recovery from the op, went back to work after 4 months, then unfortunately after 10 months developed lymphodaema in my right leg. There's no doubt it has changed my life - no more pretty shoes to say the least.

However i don't think the doctors have much choice in taking out the nodes -- better a fat leg than spreading cancer!

I was lucky from the point of view that treatment has been very sparse in this country but I had a choice of two clinics in my vicinity. I opted for the brand new one and started treatment 3 months after the onset of the Lympho. I get bandaging every couple of months but most important and again, I'm very lucky, the MacMillan Trust paid for a Sequential Therapy machine so I use it daily and keeps the leg from getting too grotesque.

I hope you will be spared any of this -- the statistics for getting the condition are much higher in breast cancer ladies. Despite the change to my lifestyle -- my mobility was already impaired with respiratory problems which predated the cancer -- I do not question that the surgeon had any choice but to remove the nodes.
All the best
Lydia
  #9  
Unread 11-02-2003, 04:19 PM
Should the pelvic lymph nodes go too???

My gyn/onc did not take ANY nodes. I asked her about it and she said that she did not feel it was necessary based on what she saw. This FREAKS me out...I am not sure what I shoud do. Am I the only one who hasn't had any nodes sampled for endo ca?
  #10  
Unread 11-02-2003, 08:26 PM
Should the pelvic lymph nodes go too???

Susanne - I am with you - mine also didn't remove any - they had told me they were going to then when they decided my cancer was confined to the uterus they decided my lymph nodes looked good so didn't remove any. I am particularly concerned after seeing a post yesterday from a sister who thought her endoCA was confined to the uterus and it was found in a lymph node. How would it get there it the cancer hadn't gone through the uterine wall? This is scary.

I had a benign tumor removed from a lymph node in my groin three years ago (surgeon said it was a tumor attached to the lymph node and he had never seen anything like it!) and I have lymphedema from it. I never regained feeling on the inside of my thigh - and the one leg/foot swells every evening. It isn't bad though.

Jan
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