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MS post hyst? MS post hyst?

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Unread 06-12-2003, 07:05 AM
1.5 years ago...

I got it checked out Dec 2002. however they lost my CT scan and CT with contrast results. The neuro guy did a full workup and then sent me for those specific tests.

Her surmised that it was a 'mini stroke' and sent me on my way. I made an appointment for asap with the same guy. I don't want to go with someone else just yet. He has my history.
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Unread 06-12-2003, 07:27 AM
MS post hyst?

dear anj,

I'm glad you made that appointment. I hope you have faith in that guy. It does bother me a bit that they lost your results. Why didn't he repeat the tests, then?

In addition to MRIs and the other tests I mentioned above, you might want to ask him about an MRA, since he felt that your earlier episode was some kind of stroke. You should maybe get a work-up for vascular disease in addition to the MS tests.

The tests I went through weren't painful, but the waiting and the anxiety were just awful...I really feel for you.

Keep us posted...
Unread 06-12-2003, 07:40 AM
Thanks C...

I had the results at another hospital a few months later (march) 2003 and they did read those for me. He said that since there wasn't a subsequent espisode he held true to the stoke episode. I was sent for more tests during Jan-Mar 2003. I saw a gastrointerologist, a uro guy, a cadiologist, and the neurologist again.

They found a heart murmer and "suspicious findings" in some of my results. It was about that time that I had to have surgery again so I let it all go. I never followed up on the heart tests. They want me to have a stress test and some other blood tests. The neuro guy wanted me to come back for a follow up but of course I didn't go because I was hoping it was just the problems prior to surgery causing it all.

Oh well, back to the castle again I suppose. I'm so tired of all of this. I'm so deep in debt too it's pitiful. grrrrr.
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Unread 06-12-2003, 08:18 AM
MS post hyst?

Oh (((Anj))) sweetie, my goes out to you because I know you have been through so much already.

My DBF has had some "episodes" much like you described. During them his heart rate increased dramatically and he also gets pain in his jaw. When it's all over he is so fatigued that he can barely move. Stroke, heart attack, seizures are all things that his GP thought might be going on. He had some tests done (CT or MRI of the brain, EEG, EKG) and nothing showed up. Then he lost his insurance and stopped going to the doctor. He had been doing well. No episodes (that I know of anyway) for about 8 months. Well, my oldest DS graduated from HS on 5/23 and he stood in that gym having an "episode"....scared the daylights out of me yet again.

I'm glad that you've made an appointment to see the nuerologist. PLEASE pursue this matter until you get some answers!!! You know we are all here for you in spirit. And I am less than 2 hours from you physically....if you ever need anything just holler!
Unread 06-12-2003, 09:09 AM
MS post hyst?

Hi Anj,

Obviously we've missed you here. I'm sorry to hear you're still having problems. As a person who has been chronically ill with mysterious symptoms for nearly 25 years, I can certainaly relate to the denial and wanting things to just resolve all by themselves. However, you know now that it isn't going to happen. I think you've had good advice here. The only thing I would add is that it is crucial that you be TOTALLY honest and complete when relating all this to doctors. Make a list now and add to it when you think of things. Keep it on the computer and revise it as necessary. I sometimes organize mine differently for different doctors. But don't leave anything out. Get your pride in check. Your life is at stake here.
Unread 06-12-2003, 09:45 AM
MS post hyst?

Anj, we all certainly know you're a trooper and there is no reason to tell us that you aren't a person that dwells on things (although some people do interpret things that way sometimes) it sounds to me that you , like alot of us here, have some mysterious things going on , and this is, afterall the place to come and compare ask away!!!

I know before I got put on my thyroid med, I was having weakness and trembling on my left side only....left arm and hand mostly......right side was fine.....started the synthroid and for the most part except for the odd time, it's gone......go figure?

please don't let anyone make you feel like you are over reacting or a malingerer.........pursue it.....tell the doc's about your symptoms....who knows what it could be, I always feel it's better to know and treat it (if it can be treated) then to sit and suffer!!

hang in there baby!!!
Unread 06-12-2003, 11:34 AM
MS post hyst?


Sorry Love, this will be short as I'm running a fever, and my gut is acting up...But I just had to respond to your thread.

I am so sorry that these symptoms didn't go away. I remember you posting about this months (years?) ago about this I do have many of the symptoms that you do...and most of my docs blame it on the FMS/CFS. But you have much more going on...and I hope and pray that you will be seeking out medical attention. The strangest thing for me is the the docs say it's RLS? I dunno...I find it strange that so many of us here on the road have so many symptoms in common.

Please know that I'm here for you...and if you want to chat, you know where to find me I will keep you in my prayers, and I will also be looking for updates from you. You have been there for me (and so many others) over the years, so please let us be there for you now....


Unread 06-12-2003, 12:20 PM
MS post hyst?

Hi Anj! I haven't been on the board in ages. I just wanted to tell you I hope you get some answers. I have been having loads of very strange symptoms and my b/p is high again.

I just had an MRI of the T-spine and C-spine with and without contrast (2+ hours in the tube) plus a chest X-ray for pleurisy. I find out the results on June 18th. My Rheumy ordered the tests stating he was looking for early MS.

Sigh......this road never ends....

Much love.....Lisa
Unread 06-13-2003, 10:58 AM
MS post hyst?

((((Anj))))) Dear friend, I'm so sorry you have yet another thing to deal with I know that it must be hard ... and scary to come to terms with: on the one hand, we do want our pain and symptoms to be validated, on the other hand, we certainly don't want it to be something serious

I can fully understand to your desire to hide from this and to hide your symptoms from other, simply because I'm the same way: If I ignore it long enough, certainly, it will go away, right? Wrong!!! It usually only gets worse :cry:

((((Sweetie))))) I have neither insight nor answers for you, but I did want to let you know that we're here for you... as we've always been... and as you've been for so many others... so don't you dare stay away from the boards again: we miss you too much when you do so

I hope you hear from the neuro guy soon.. and that you can start addressing those symptoms... who knows? Maybe you'll be off this road, once and for all.
Unread 06-14-2003, 04:36 PM
MS post hyst?

Hi, I am almost 4 weeks post op from a TAH-BSO surgery. I have had MS since 1995. MS is not easily found for most can have symptoms for many years and not know for sure. It is determined (or mine was) by symptoms and a MRI. I have relaspe-remitting kind which flares often like other types of MS by stress on the body such a surgery. It was true in this post-op problems is compounded by my MS. I feel for others that battle a chronic to answer your question it may be that one who is told that they have MS might have had it for quite some time.

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