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  #1  
Unread 06-24-2003, 08:17 AM
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Aloha all,

Well, yesterday I went to see the specialist re: my VVF. I had to fly to Honolulu. Boy, what a day! It was well worth the visit. I am very impressed with this female doctor. The first thing she did was pass a camera into my bladder and we were able to see the hole in my bladder and find out exactly where it is located. It actually formed a little tunnel or connection between the bladder and the wall of the vagina. She also put the camera in the vagina and we were able to see where the hole empties out.. The hole is very tiny, less than 1mm. Fascinating! So here's the plan...

My surgery is scheduled for July 7 in Honolulu to do the VVF repair. They will make the cut the bladder at the place of the hole to make it bigger, then sew it back together. They will sew up the portion of the vaginal wall also. Then they will take some fatty tissue from my labia and place it in between to cushion it to preven it from fusing back together again. This will all be done vaginally and I am supposed to get out the next day (depending on how well I recuperate, of course).

When I get out, I will have 2 catheters: the foley and a supra. They just want to make sure that my bladder will be completely rested, hence the 2 catheters. All of the follow up will be done here in Maui, so I don't have to go back to Honolulu.

That's it. I am very relieved and feel that a big weight has been lifted off of my shoulder.

I will let you know when I get more info from my Dr.
Hope everyone is doing good...


Maddy
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  #2  
Unread 06-24-2003, 08:32 AM
((((( maddy )))))

Aloha Maddy!!!!! Boy if I could think of a better place to recoup it would be where you are....I loved Maui when I was there 2 years ago... My sis has a time share in Keyhi. I am so glad your visit went well, and you learned what was going on... Sounds like a good plan... I came home after my hyst/bladder work with both caths.... Actually kinda nice to have that rest... I hope all goes well with you and your surgery... No one likes to have surgery, but it is something that you need to get fixed!!!! Good luck to you!!!! Enjoy your rest and be a good princess!
  #3  
Unread 06-24-2003, 09:58 AM
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Hi Maddy,

Sounds like a good plan! Love your picture, so pretty & live in Hawaii. You ROCK! Keep us posted! By the way, with my second fistula repair I had both the supra & urethral cath. Urethral was removed day or two after surgery because it was empty.
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  #4  
Unread 06-24-2003, 01:45 PM
Hi Terry,

Hmmm I don't understand that.. Why was it empty? I mean, doesn't the urine bypass the urethra and go straight into the cath? Just curious...


Maddy
  #5  
Unread 06-24-2003, 01:50 PM
Hi Suzie

Hi Suzie,
Well, to tell you the truth.. I don't feel like resting at all.. LOL I am just getting my second wind! Mind you, it seems I have been "resting" ever since my hyst day (4/16/03) .. Oh well, a few more days/weeks won't matter.. I am just happy to get this thing taken care of.. hopefully once and for all.. The Dr. said I really have to make sure I take ALL my bladder relaxers this time as failure to let the bladder rest may result in having to redo the repair, abdominally, next time.. UGH.. don't want to do that at all!!!


Maddy



  Quote:
Originally posted by SusieQM
Aloha Maddy!!!!! Boy if I could think of a better place to recoup it would be where you are....I loved Maui when I was there 2 years ago... My sis has a time share in Keyhi. I am so glad your visit went well, and you learned what was going on... Sounds like a good plan... I came home after my hyst/bladder work with both caths.... Actually kinda nice to have that rest... I hope all goes well with you and your surgery... No one likes to have surgery, but it is something that you need to get fixed!!!! Good luck to you!!!! Enjoy your rest and be a good princess!
  #6  
Unread 06-24-2003, 04:39 PM
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Well the uro told me that he would only leave the urethral cath in as long as I needed it to give the bladder a good rest. When it was empty both uro's said all the urine was going into the supra pubic which is what they wanted. When I said I am leaking they both replied I was leaking around the urethral cath so they took it out. I said I am still leaking & they said impossible we didn't just do a good repair we did a great repair. To make a long story short 4 weeks or so later they told me my fistula had repaired but had sprung a new leak. Latest uro's can neither confirm nor deny without further testing because my bladder is so scarred. Today had a long talk with my stoma nurse/oncologist specialist that told me my uro/surgeon I have now doesn't really care about my bladder or stoma as he is concerned with surgeries only! That is why I have her so she will meet me in radiology tomorrow to make sure procedure goes smoother than last time & to make sure my recovery is coming along. You need a specialist now for everything. My biggest problems now are constant diarreha (they don't know why) & a backache which will require 2 more specialists! These problems are not fistula related but from latest surgery.
  #7  
Unread 06-24-2003, 04:58 PM
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Well Maddy,

You sound very relieved to get some answers and a surgery date.
I'll be thinking of you for a sucessful repair. (((((((HUGS))))))

My V V F was fixed 3 months after my hyst. (both procedures done abdominally). The uro wanted to make sure I was healed enough from the hyst and had good tissue for the repair.

I had both cath's too. The foley came out at two weeks post op and the supra two weeks later. I had been cath'd with a foley (after hyst and fistula 10 days later) since the Monday before Thanksgiving so I was SO GLAD to be peeing like a woman again.

Now I sometimes hear myself complain that I have to go to the bathroom and then I bite my lip and am thankful that I had a succesful repair.

Terry you are in my thoughts STILL. Keep us informed.

Renee
  #8  
Unread 06-24-2003, 07:23 PM
Maddy!

You are right Maddy, make sure you follow the directions on this one... I have had my share of bladder troubles, and am 4 weeks post op from a bladder sling correction surgery. I had a bladder sling done with my hyster last year to help my incontinence... I came home with both caths as my bladder was weak and needed to rest. But perhaps not enough, and over the course of this year, I developed complications... But all is well now... I am glad it is over.... I know what you mean about how hard it is to rest, when you are starting to feel good from your hyst recovery.... Life is funny sometimes... I never would have guessed that I would have had to have 2 surgeries since my hyster last year... Let alone 2 weeks apart... Take care and good luck!
  #9  
Unread 06-25-2003, 07:20 PM
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Hi Maddy

How are you?? You sure look great in your picture!!! SOOO glad you have the PLAN as we call it and you are moving forward. I remember when I finally got my date and I felt so good about it I wanted to jump up and down.. there is comfort I think in at least moving in the right direction.

I had mine repaired vaginally also as I think I told you and your recovery time will be easier of course, but you still must not overdue anything. I had both cath's after surgery, but only came home with supra- as Terry said it was all going into the supra bag- I felt great with only the supra as I was so irritated by the foley by that point- so hope for the best and I am sure you will be fine in no time. I had a spinal to which was awesome and an easier recovery for me to. So one day at a time and your day is drawing near!!! Any questions or concerns please let me know and I will try and help as best as I can!! Well off to bed for me it was sooo hot here today I'm exhausted. Be well sister and lots of z to you!!
  #10  
Unread 06-25-2003, 07:32 PM
Hiya Karen,

Just curious...
How long did you stay in the hospital? I am staying overnight... Was it THAT quick? If it is, boy, that is GREAT to get that foley out that quick!

z,
Maddy
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