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Unread 06-25-2003, 09:17 PM
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Hi ya Maddy,

I had my repair done abdominally and was in the hospital 4 days. Came home with 2 caths. I'm still recovering. Just take it slow and listen to YOUR body.

Take care, I'll be thinking of you....and YES we are here is you have ANY questions.

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Unread 06-25-2003, 11:24 PM
OK another stupid question

How is that supra cath connected to your bladder? the whole thing kinda creeps me out.. but oh well, whatever it takes, I guess.. Thank God I will be asleep when they do it..

Unread 06-26-2003, 06:50 AM

It is put into the bladder just above the pubic bone, and anchored to the skin with stiches... When done they just pull it out. The part that goes inside is tiny.... I was scared the whole thing would hurt coming out... But it didn't... My bladder was happy to be rid of it....
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Unread 06-26-2003, 08:57 AM
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Just like Susie said. The surgeon will make a hole just above you pubic bone. Mine is about an inch from the bikini cut(s) abdominal surgery. The tube comes from your bladder so urine will empty and not put any pressure on the bladder so your fistula repair can heal. I had the supra in for four weeks after the surgery. I had both foley and supra for 2 weeks....they both drained into one U-bag. I was like a faucet!

I was so use to the foley that after a while it didn't bother me. Had it for sooooo long before the repair surgery......

For me the supra was uncomfortable. I found it pulling as I was never able to keep it taped down to my body so it didn't tug. I found that wearing overalls or lose dresses (nothing around my belly) was the most comfortable and at night while sleeping I just must of stayed real still so it didn't tug. I have a picture of me with the supra in IF you want to see it....PM me and give me your email addy and IF you want to see it I'll send you a remember I had been "sick" for a long time.... I look better now!

I was also so scared when they were going to remove it. I even took a valium to relax but to my surprise it didn't hurt at all removing it....felt "funny."

I know you have a lot ahead of you. Take each day (or hour) as it's overwhelming. Drink a lot of fluids to keep the cath drainning well. My pee looked like water most the time until there was scabs or blood it it....the fistula would try and repair on it's own and then break open again and that's when I'd see blood, mucus, skin....YUKINESS in my bag.....(that was BEFORE the repair when I just had the foley)

Ask ANY questions....they are NOT stupid. I wish I had known of this site before my repair. I didn't find it until I was recovering from the second surgery....which btw I STILL am although I am having way more better days now than bad days....

Take care and I wish I were in Hawaii....I'm in California and daughter & I took doggy to the beach yesterday.....

Unread 06-26-2003, 11:20 AM
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Hi Maddy,

I prefered the supra to the urethral cath. I had the urethral for 8 1/2 weeks & was quite irritated in the vaginal region by the time it was removed. Had problems with the supra until Louise told me about neosporin around the site. It helped & I was quite active. I had it in for 3 months or so before it fell out on it's own & then I was totally incontinent. Loop-a-Gram I had yesterday shows my left ureter not working so it may be dying out. I have so much scar tissue that it chokes it off. Don't know what they will do if anything. Plumbing is working great now so not willing to change anything unless I have to. I have no energy now but remember with my fistula repairs I always felt better in the mornings after a night of ambien induced sleep. I always velcro strapped my cathater tube to my thigh & placed it over my right leg. My hubby packed pillows around me so I wouldn't turn on my left side. It was a process.

Good Luck!
Unread 06-26-2003, 03:02 PM
Supra 2

Oh yeah I forgot how uncomfortable that darn thing was... I used to tap the tube to my abdomen so it wouldnt tug or pull.... I had mine in for 2 1/2 weeks... I used to joke that I gave it a name... I called it Petie, since I could stand and Pee with it....LOL.... Cant say I miss it though.
Unread 06-26-2003, 03:06 PM
Funny how everyone's different

Just thinking how funny it is that everyone has their own different reactions to the caths. Anyway, thanks again, everyone, for me.. I hope they are BOTH tolerable

Unread 06-27-2003, 02:50 AM
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Hi Maddy,

Just wanted you to know that I have books on different types of appliances. I always wore the traditional Bard bags with my cathaters but have found that there are special bags that attach to the supra site at the stomach. I don't know if they are better but the pictures sure look more comfortable. I know that with my stoma the wrong bag can be very uncomfortable. When you have a urostomy every company sends you samples cause they want your business. It is just a thought that you could talk with a medical supply co if you have to wear a cath for very long. The Belly Bag is made by Life-Tech International. You can search & order directly from Company if interested or you can email me & I can give you the telephone number of a supplier I use if you like.

Thinking about you!
Unread 06-27-2003, 06:34 AM
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Hi Maddy

How are you sister?? Well as for the castle stay, I was originally scheduled for just 1 night, but did stay 2 nights as castle was 45 minutes away and it was easier to just stay. Anyway it helped because as I said I only went home with supra as foley wasn't doing anything anyway- don't be scared of supra- I had NO problems with it at all and it didn't tug or anything where it was inserted thru my skin. What did bother me was the tape issue on my leg- I moved it around as much as I could and wore the big bag at home as it did not need to be taped to my leg. Get alot of the extra tape at the castle- the 1 1/2 inch paper tape I found the best and they will give it to you as long as you ask.

I also had a hospital bed at home to keep my legs elevated. I didn't want it at first, but my Mom insisted and it was well worth it. I didn't sleep in my own bed for 3 months. DH wasn't happy but I sure was to be comfortable!! I was sad when it went back because I could get real comfortable to read and watch TV. Just an for you to think about. You will do fine and there are no silly questions here. The more you know and can tell you DH to help you with the better!! Well off I go to camp with the kids- I will chat with you soon. Be well friend..
Unread 06-27-2003, 07:25 AM
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Hi Maddy,

Wow, have to agree with you about everybody being different. Just reading some of your replies. One enjoys the hospital beds while I wanted to burn mine. The main reason I wanted out of the hospital was to get back to my own comfortable bed to snuggle up with my hubby, dog & cat. But then I didn't spend anymore time in bed then normal. I walked my pain off (walking also rids the anesthia sooner) & if I remained seated or still for very long my ankles & legs would hurt. Nurses always told me I was the talk of the hospital because I walked without them forcing me to get out of bed. That was a little tip I learned from this site preop hysterectomy. After last surgery, day 3 dr warned me that was the high risk time for pneumonia & blood clots to set in & wanted me up & moving. He didn't have to remind me of that. I never used tape because my skin was so sensitive but did strap tube with a wide band velcro strap that could be purchased at medical supply store rather cheap. I still use them for my night bag at home & they are washable. If you were going to have the bags for very long I could give you lots of tips but why go to the expense when it should be a short time thing. I have some really neat things to tuck leg bags in, bag covers blah, blah, blah. Most of which I don't use because the goal of having my pouch is to appear as normal as possible. Noone would know to look at me that I have a urostomy & I go to the bathroom & empty when I feel it needs it. I am 4 weeks post op today & feel really good. Dr's appt this afternoon will probably ruin that. I don't lift anything heavier then 10 lbs or push the vacuum, lift the dog etc. but plan on walking further with dr's approval. The worst thing about fistula repair for me was the bladder spasms. Now I take no medications other then to sleep & my calcium. When I hear how people are months away from surgery & still have pain I realize how lucky I am. 4 times cut open abdominaly within 6 months. Last surgery had a 4th surgeon called in to save life halfway through & can say that I am tired & sometimes uncomfortable but pain free in fact yesterday I spent all day cooking. I suppose you will have to wait & see how you feel after the first couple of weeks as everyone heals at a different rate. I do have to say that my health care professionals are quite impressed & never imagined how far I have come in such a short time. 3 weeks ago you couldn't have convinced me that I would ever recover & I was ready to throw in the white flag. Anyway better end this book, just wanted to crow a little. Hope you feel as good as I do even sooner post op.

God Bless,

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