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ovarian cancer ovarian cancer

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Unread 09-14-2000, 08:44 PM
ovarian cancer

I have a strong family history, mother had uterine cancer,
breast cancer, 2 aunts with breast cancer, was diagnosed and
had lumpectomy myself 6 months ago. I had radiation and went on Tamoxifen 3 months ago. Last month I went to ob/gyn with
cramps (already menopausal) and the ultrasound showed twisted fallopian tube. This month the ultrasound showed a
"mass" had doubled in size and had papilla growing over it, so an oncologist was contacted and I'm having TAH/BSO next
Tuesday. CA-125 was normal last month and now. Is it possible to be cancer and the markers not be elevated? My
bc was estrogen positive, so I guess removing the ovaries
is a good thing, but I hear the hot flashes will be even
worse, and the Tamoxifen has to continue.
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Unread 09-15-2000, 07:22 AM
ovarian cancer

It sounds like you truly do need this surgery! If you are already menopausal, then look at it this way...you would have been experiencing this anyway, so atleast you will know that you are FREE of anything that could be life threatening! I don't mean to sound harsh, but if look at things from a different aspect, sometimes they are easier to accept. So many women take natural HRT. I am not sure if you could do that, but you may want to inquire. I wish you the best of luck and hope to see more posts telling us how you are doing. Take care!!
Unread 09-18-2000, 06:00 AM
ovarian cancer

Dear Wings,
I had ovarian cancer, and my CA-125 test was in the normal range. Some cancers cannot be detected through the blood. I had a tah/bso on June 12, 2000. Please email me at [email protected] if you want to discuss this further.
God Bless You,
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Unread 09-29-2000, 08:03 PM
cancer indicators

hi wings
I guess you could consider yourself lucky to have all the diagnostics that pointed to the need for surgery. I had no clue until I went for a second opinion about "possible fibroids". I had an ultrasound that showed masses that took up my entire lower abdominal region. No wonder I looked like I was three months pregnant! I thought it was middle age spread. I had no symptoms except some abdominal cramping that couldn't be explained. I had TAH/BSO on 8/29.
The ovarian tumors were each grapefruit size!What wouldv'e happened if I hadn't gone for that second opinion?!My doctor says they were borderline not malignant or benign. I don't have to do chemo but I do have to get a checkup every 3 months forever I guess. I am very nervous about this dubious good news but I am happy to be recovering with only instant menopause symptoms and not the additional
discomfort of chemo. I hope you are doing okay. Was your surgery 9/14? You are just now 2 weeks post op then. I hope you able to stay in bed and sleep a lot. I could've been kinder to myself so I recommend lots of self love and ask others for whatever you need! Best wishes for a successful
Unread 09-30-2000, 06:37 AM
ovarian cancer

Mary Beth,

I understand! I had my TAH/BSO on June 12,2000. My gynecologist found my tumor during my routine annual visit. She asked me if my distended abdomen was normal for me. I told her that I thought I was just getting fat!
My tumor was the size of a cantaloup. I had sonograms done within an hour, and they were saying "mass" which scared me! I told the sonographer so, and she told me she was sorry. The next thing I know, my Gynecologist was telling me that I had a tumor 15 cm tumor that had to come out sooner rather that later. I am thinking " ok, she'll take the tumor out, and I will be ok." I asked her course of action, and she said hysterctomy and removal of both ovaries. She proceeded to tell me that a frozen section of the tumor during surgery would give her the information she needed to know how invasive the surgery would be. At this point, I began to cry. She told me she was sorry. We continued our discussion. I walked out of that room in shock. I had to remain composed, because my 2 children were in the waiting room having been there for over an hour.

My surgery was set up 6 days later. An oncologist was there who actually did most of the surgery. They took 17 biopsies, and thank God they all came back clear. My tumor was diagnosed as a Granulosa Cell Tumor. It is a stromal type tumor, that engulfed my entire right ovary. My path report showed no evidence of healthy ovarian tissue.

I just had my first 3 month check up with my Oncologist this week. I was so anxious about this visit. It went fine, and was uneventful. I will see him every 3 months, the next one being December 20. Oh joy! I will have a yearly ct scan now, and that will be in June of next year.

I just want to get on with my life. I am relieved as you are that I did not have to have any chemo or radiation. I know how lucky I am. I would like to read more about your experience. You and I may be the "rare" cases, from what I have been reading.

Please email me directly at [email protected]

Unread 10-06-2000, 01:26 PM

Hi Mary Beth,

I was dx'd in July with ovca, and had my TAH, etc. in August. I have a strong family history of brca (Mom and sister). I won't take estrogen replacement for that (and other) reasons. So, from 8/17 to today I have been "cold turkey" in the hormonal department (I'm 41) and I haven't had so much as one "flash". I hope it continues!! I always thought I'd have brca...so the ovarian cancer was a shock, to say the least. I guess I'm waiting for the other shoe to drop now...my own personal "damacle's sword". *sigh* I was very lucky to have been dx'd early with an LMP tumor that does not respond to chemo or radiation, that appeared to have been contained on one ovary.

Regarding your upcoming surgery...please find a Gynecologic-Oncologist. That is extremely important for this type of surgery.

CA-125 isn't completely reliable. There are over 30 kinds of ovca, and different tumor types. My tumor is "serous" and can be monitored by CA-125, but other types, especially the "mucinous" type is better monitored by the CEA test. So, not all ovca is alike.

You can find a lot of information at http://www.ovarian.org. That's the National Ovarian Cancer Coalition. They will send out a wealth of info. There is also an ovarian problems support site at http://www.acor.org

My email address is [email protected] if you want to discuss anything with me.

Take care, I'll be thinking about you.

Kate in Illinois


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