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Pleomorphic-sarcoma mixed malignent mullerian tumour. Pleomorphic-sarcoma mixed malignent mullerian tumour.

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Unread 07-01-2003, 05:05 AM
Pleomorphic-sarcoma mixed malignent mullerian tumour.

Hello Everyone,
I do hope you are all COPING in your own way and that things are not too bad.
I have had my 4th chemo now. Had a C.T. Scan last Thursday but haven't had the result yet. I ask my consutant what he was expecting to find. He gave me the same answer as all the other times.......'If the disease is worse he will discontinue the chemo and if there is any improvement he will carry on with it'.
Would any of you find this comforting because I don't. When he talks like that I have nightmares in between broken sleep.
I even ask if there is another chemo regime he would try if this is not working. He didn't answer me, just waffled on about wait and see. He saw I was upset(surprise surprise) so stepped back to my bed and told me I was looking well, that my bloods were looking good so I should remain opptomistic.
How do you do that when your'e feeling like crap?!!!!!
I have telephoned his secretary, the nurses on the ward, the radiologists and no one knows when or how I will get the result of the scan. Are they all robots made of metal and steel?
Some feed back from my sisters here would be nice right now.
Thanks for listening.
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Unread 07-01-2003, 05:27 AM

About now would be a good time to take better care of yourself ... whatever the results are going to be, you will be in a better state to face it. You can't change the results and you probably can't change the doctor. There are many ways to boost up your immune system - how you manage your stress, what you eat, your level of activity. You have control over these. Act now, don't wait for the results. Take care, Jo
Unread 07-01-2003, 06:14 AM

Hi Hun

I can feel your pain and fears. As we all say, the waiting is just awful. Right now, I'm going though chemo and radiation treatment. I just finished the first one yesterday. I know that I have 5 weeks of this and a bit more to go through until I know something as to whether or not it's working. I think a major problem the doctors have is there is no good answer to any of this. Will it work or will it not. Sadly it's not the same as having a headache and taking an aspirin. (but even with that, will the one aspirin help, or will it take more...? or another alternative?) My heart goes out to you as does everyone else's. Keep positive, write on the board too! It helps tremendously. I know about the anxiety, I don't want to sound like a pill pusher, but when I couldn't sleep, I asked for a little something to help. I take a light sedative, it does not numb me out, but does take a bit of the edge off. I'm sure more sisters will come along with their thoughts.



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