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IVP Test for fistula IVP Test for fistula

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  #1  
Unread 07-01-2003, 05:01 PM
IVP Test for fistula

Here's an update on what's going on around here.

I went to a urologist at the Cleveland Clinic today. I was referred there because the doc here said that the whole was too close to the urethral tube, and was too delicate of an area to fix.

The Cleveland doc thinks that the location of it is far enough way from the ureter and that he can fix it vaginally. YEAH! Something good, so far, out of a terrible situation.

I go tomorrow for an IVP test and a cystogram. Can anyone give me their experiences with this test. It's my understanding that it isn't too terrible.

My corrective surgery is scheduled for July 21. My LAVH/BSO was done May 12. I have stumped the docs because the leaking didn't begin until I was 5 week post-op. Leave it up to me to be the weird one. I guess I just want to keep them on their toes!
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  #2  
Unread 07-01-2003, 08:29 PM
IVP Test for fistula

Julie,

Glad you're getting a plan in place, that helps alot!

The IVP and Cysto are not painful (really!) just wierd feeling, that's all. The worst part for me was the prep the night before-YUCK!

Good luck and keep us posted.



Louise
  #3  
Unread 07-01-2003, 08:43 PM
IVP Test for fistula

I am a radiographer and often perform these tests on patients.

The cystogram is where they introduce xray dye into your bladder by way of a urinary catheter. The bladder is then filled. We look for leakage of dye out of the bladder (fistula) or for the dye to go backwards towards the kidneys (reflux). Most of the discomfort is from having a full bladder.

An IVP intoduces xray dye into your bloodstream by way of an IV into your vein. This dye is filtered out of the bloodstream right away by the kidneys. This way the kidneys, ureters, & bladder show up on xray as the dye courses through them. The exam shows how the kidneys are emptying and if the xray dye leaks anywhere it would show the tract of the fistula. This exam is usually well tolerated. Most patients say the bowel prep the night before is the worst One common side effect is a brief sensation likened to a hot flash. Others get a metallic taste in their mouth. Most side effects last only a few minutes.

Hope this helps from a clinical stand point. The tests should be well tolerated and will be well worth it if it helps to fix you up.
to you. And good luck!
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  #4  
Unread 07-02-2003, 09:12 AM
IVP Test for fistula

Sorry about your fistula. It's a long road although you seem to have a GREAT attitude!

My IVP wasn't bad but the night before prep was drainning (pun intended) My problem was is that I was too thin before the hyst. and so when I have the bowel prep I got real dehydrated and had problems from that. The IVP itself was interesting and didn't hurt....but because of the prep I was VERY weak....

The cysto felt just like a cath (foley) and didn't hurt either. I was real freaked out about it and took a valium before the procedure...

Good luck on your repair. I had to have mine done abdominally because it was too high up and big and the uro couldn't guarantee that he could reach it...so I opted for another abdominal surgery....3 months to the day after my TAH....

Still fatigued and still have pain and "other" complications....as I said it's a long road.

Please post or PM with ANY questions....

Renee<fistula sister>
  #5  
Unread 07-02-2003, 10:07 AM
IVP Test for fistula

Hi Julie,

Glad you are on the way to a fix of VVF and as Louise said- the tests are not bad at all. After everything else they were really very easy. The prep is the worst- but that wasn't even that bad.

Hey glad you can get a vaginal fix- that is how mine was done- even though it was very high and he had a hard time getting to it. It was alot better for the recovery aspect. Well good luck with the tests and thinking of you girlfriend!!

Let us know how you do..
  #6  
Unread 07-05-2003, 11:12 AM
doing ok here

I've made it through the IVP and cystogram. For me, the bowel prep wasn't too bad because I have ulcertive colitis as well. So things "go through" quite easily!

The worst part for me was the IV because of all the tests I have had recently, there wasn't many more veins to choose from. It took a couple of times, but they were finally successful, even through all my tears. I was a baby about it, but being worn out from it all make it understandable. At least that's what I tell myself.

The cystogram was interesting because, of course, when they filled the bladder, it just came right back out. What a feeling! YUCK!

I should hear from the doc in Cleveland next week about what he sees from the tests. I'm praying for a vaginal surgery. The doc said that if the whole is too close to the urethal tube, that he would have to disconnect it, repair the whole, then reconnect the tube. Has anyone had this experience?

I'll keep you posted on what I hear. Thank you all SO VERY MUCH for all your support and words of advice. It is very comforting!
  #7  
Unread 07-05-2003, 01:02 PM
IVP Test for fistula

Yes I had to sign a paper saying I was aware that if the fistula was too close to my ureter uro would have to reimplant them....I was lucky and that didn't have to be done. A lot of woman who have fistulas end up having their ureter involved. <sigh>

The doctor <at one point> wanted to fix me vaginally but I was the one who decided that I wanted it done abdominally because I feared he wouldn't be able to fix it because the hole was large and high up....so I went with another cut.

Good luck. I will hope for a sucessful repair. Ask any questions you may have.

Renee
  #8  
Unread 07-06-2003, 06:18 AM
IVP Test for fistula

Hi Julie,

I have been reading your posts but did not want to respond in case I scared you. Everyone kept saying how easy the IVP tests are but I have had at least 20 & none were easy. I now can no longer have them done. In fact any intravenous procedures will have to be done with a main line vein. I now have what is known as a loop-a-gram through my stoma. Both fistula surgeries my ureters were detached & placed aside for the repair & stents were then implanted in them before reattachment. Uncomfortable but necessary to keep the ureters from restricting. My bladder is still shot but my kidneys & ureters are going strong so far. Good luck with your repair. I am sure the vaginal repair would be much easier on your body but I have noticed in reading posts of some women having it done that way that their recovery time & pain seems about the same if not longer. With the abdominal you also have to deal with the incisional pain but I was quite active & walked my pain off most times. Right now my ureters attach to a piece of my small intestine & my bladder is just in limbo. I am feeling pretty good with little to complain about. Good luck with your repair.

Terry
  #9  
Unread 07-06-2003, 06:42 AM
IVP Test for fistula

Hi Julie

Hooray for getting thru the IVP w/out to much trouble. Hope the URO in Cleveland gets back to you soon so you can get moving right along!!

I had no ureter problems- but it is amazing what the Dr's can do these days and hopefully they can do you vaginally as I was!! I am keeping you in my thoughts and prayers and keep me posted as to how you are doing!! Have a great day!!!

  #10  
Unread 07-06-2003, 11:39 AM
IVP Test for fistula

Hi Julie,

I also wanted to tell you the motto of some of my ostomates. Many of us have had so many procedures & complications that we have a 2 try rule. We tell the nurses & radiologists that if they don't get it in 2 tries then forget it. I also make sure my husband is with me for any procedures. He knows my limits & makes them stop when he sees I have had enough. First they tell me that an IVP or whatever prodedure is the only way. But when I say forget it they have ALWAYS found another way. You will be surprised at how fast they summons the best vein invader! As far as detaching the ureters I understand from my fellow fistula buddies that it is standard procedure if the hole is near so that the ureters won't be damaged. My last appt my uro told me that if or when I decide to try again that my ureters can quite easily be reattached. Another little trick I have found that helps is I always go to records & pick up a copy of my previous procedure. That way whatever radiologist etc is doing the test has a guide to go by. Saves me a lot of time & heartache when they have written down such things as cathater size, contrast, how I tolerated & results. Good luck with future tests & so sorry your IVP was such a miserable experience.

Terry
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