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16 months post hysterectomy.......need some advice. 16 months post hysterectomy.......need some advice.

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  #1  
Unread 07-14-2003, 10:13 AM
16 months post hysterectomy.......need some advice.

I am 16 months post op from a hysterectomy for endo. I had an LAVH and left ovary removed (right ovary still intact). My problem is for the last several months I have been having occasional right upper qaudrant pain. It's just under my ribs and feels like something squeezing inside......the pain last for about an hour/two hours and comes a couple times a week. My doctors can find nothing wrong with me.......I have had an ultrasound and a CT scan. We found a 1 inch cyst on my kidney (apparently harmless) and a kidney stone in the left kidney (no pain there either). Everything else looked normal.......did a gallbladder scan (Hida Scan) which was also normal. So my question is what is this!? My doctor seems to think it may be adhesions/endo again........he mentioned doing another lap to take a look inside. What would you do? Would you do the surgery? I've spent so much on various test with no answers already.......I'm about ready to give up. Please advise......what step would you take next? Is it possible the pain is a result of adhesions?

Thank you.
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  #2  
Unread 07-14-2003, 11:33 AM
16 months post hysterectomy.......need some advice.

((((Shelli)))))) I'm so sorry you're dealing with this persistant, recurring pain

I do not have experience with either Endo or Adhesions, but, unfortunately, I know that several Road Dwellers are dealing with these monsters and I'm sure they'll be around soon.

While you wait for input, here are links to valuable resources on both Endo and Adhesions, and those readings might help you decide on your next course of action:

Endo Resources
https://www.hystersisters.com/vb2/for...hp?forumid=161

Adhesion Resources
https://www.hystersisters.com/vb2/sho...threadid=76142

Also, since you seem to be reluctant to have this suggested surgery, please do not hesitate to consult another doctor in order to get a second, even a third opinion.

Sending lots of gentle s your way. Please keep us posted.
  #3  
Unread 07-14-2003, 12:45 PM
16 months post hysterectomy.......need some advice.

Shelli
I don't have experience with endo and only a little with adhesions. I had an incision revision and neuroma removal about two years ago. The doctor removed, has he said, TONS of scar tissue from within my incision.

I continued to have almost constant abdominal bloating and pain, along with pelvic pain. After undergoing MANY tests and finding basically nothing, I had an exploratory lap last November and nothing was found. So for me, I guess adhesions isn't the problem. Although I have read that they can hide very well, so if the doc wasn't looking in the right places or deep enough he could've missed them. But I guess I have to go with the diagnosis of adhesions not causing my problems.

Anyways, I wanted to let you know that you're not alone. Their are many of us still fighting problems many many months after our hysts. Unfortunately for some of us, the hyst didn't fully solve our problems.

I really can't advise you one way or the other as to have the lap or not. To me, surgery is surgery. I have found with each successive surgery I have had that it has taken me longer and longer to fully recover. It is up to you and your doctor to decide if the risks are worth it.

Whatever you decide, your sisters here will support your decision 100%!
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  #4  
Unread 07-14-2003, 03:32 PM
16 months post hysterectomy.......need some advice.

I'm curious as to why they are so sure it isn't the 1 cm cyst on the kidney or the kidney stone - unless you are talking the left kidney rather than the right. Have you seen a urologist and he concurs the pain is unlikely from the kidney??

Since you've had endo in the past and have had surgery so adhesions are a possibility, still I wonder why they are so sure it isn't the kidney cyst or stone.
  #5  
Unread 07-14-2003, 03:35 PM
16 months post hysterectomy.......need some advice.

The kidney stone is in the left kidney. The cyst is on the right kidney but the doctor claims that these are usually painless.
  #6  
Unread 07-14-2003, 06:03 PM
16 months post hysterectomy.......need some advice.

And are you comfortable with that advice? If not, until things makes sense to you and you are comfortable with the advice given you seek another opinion. A urologist and a gyn.

You are the one who endures the discomfort, you are the one who undergoes the tests, you are the one who will endure the surgery, you are the one who will live with the consequences of any surgery or decisions made. You are also the one paying the bills whether out of hand r thru insurance.
  #7  
Unread 07-15-2003, 09:09 AM
16 months post hysterectomy.......need some advice.

Thank you all for your responses....I appreciate it. You have given me some good info to think about..........
  #8  
Unread 07-15-2003, 11:32 PM
16 months post hysterectomy.......need some advice.

Shelli:

HIDA scans do not visualize the exterior of the gall bladder. There was a sister (Meanie) who had all these GB symptoms...they finally went on to diagnostic lap and sure enough, found endo on the exterior of her gall bladder . If you do a search for "gall bladder" and "Meanie" you'll find her story.

HIDA scans are not perfect; ask your doctor about some labs to check your enzyme levels (pancreatitis defies most imaging techniques). And other conditions might be uncovered this way as well. Although you could be describing adhesions or recurrent endo, there's also a remote possibility that what you're dealing with is some referred pain which actually originates elsewhere but is felt in that diaphragmatic area. Since you still have a right ovary, and the pain is on the right, adhesions still sound like the first thought that comes to mind. Also, certain gall bladder conditions, as I said above, cannot be detected on HIDA scan.

This is a tough decision to make. I hope that another opinion might help you come to an informed choice about your options here...

Good luck, and a prayer...let us know what you decide, OK?

Audrey
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