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Post op diagnosis Post op diagnosis

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Unread 07-14-2003, 11:14 AM
Post op diagnosis

I had my hyst due to prolapsed uterus and the pathology report found endometrial cancer afterwards. My gyn doesn't seem to up on it, or at least doesn't seem concerned. Has anyone else had a hyst and then they found cancer. They left my ovaries and tubes and didn't do a node check. I'm a little concerned that he is taking this so cavalierly (after all its my body!). I just had my 3 week check and after checking my insides he basicly washed his hands. I said "OK, now what about the rest of it, you know, my pathology report?" He said, "oh yeah, that..." like he'd forgotten all about it. I don't know what to do. He said he'd refer me but I haven't heard anything.

I sure could use some reassurance.
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Unread 07-14-2003, 11:44 AM
I would definitely contact an oncologist -

gynecologist. They are the specialists that deal with these cancers all the time. I, too, have endometrial cancer. I had a TAH/BSO on March 7th and am now undergoing chemo. I also finished 29 rounds of radiation (external). It is in your best interest to seek out a oncon-gyn.

I will keep you in my thoughts!
Unread 07-14-2003, 12:25 PM
Post op diagnosis

To put it bluntly your Dr needs striking off. Get yourself to a specialist asap with all your reports. I had endo cancer diagnosed when they removed a cyst and ovary. I then was straight back in for a total hyst including remaining ovary, cervix. Everything they took out including some lymph nodes was tested.
As it was at the beginning stages i required no chemo/radiation. I I cant stress enough the importance in getting to a specialist. Im sorry i cant be more reassuring but you need expert advice.

Good luck to you
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Unread 07-14-2003, 02:10 PM
Agree--need second opinion

Cancer is serious and you need to get a Dr. who takes it that way. A gynecological/oncologist is the best. If there is none in the area, then minimally get another gyn to look at this. This brush-off is unwarranted.
Unread 07-14-2003, 03:17 PM
Post op diagnosis

Hi Cindy....

Please get copies of all your medical records from your gynocologist including all surgical reports and pathology as soon as possible and take them to an oncologist gynocologist. They are the experts in this field and know all the answers to all the questions.

How dare your doctor just brush off even the slightest chance of cancer. In my opinion, this is nothing to fool around with.

Let us know how you make out.

Unread 07-14-2003, 05:48 PM
YES!!!! Do get a second opinion

I agree with all the rest...Get a GYN/ONC, or at least another GYN if no GYN/ONC's avaliable in your area. You at least need to be followed closely, which would be the case for "ANY" cancer. You may not need any further treatment, but it is nice to have an Oncologist on board to tell you that.
Unread 07-14-2003, 06:21 PM
Here are Gyn-Oncs In Your Area

Hi, Cindy--

I strongly recommend that you see a gynecologic oncologist as soon as possible so that he/she can review your pathology and surgery reports to see if you need further surgery to treat and/or surgically stage your endometrial cancer properly. My gyn-onc also wanted me to bring the actual pathology slides from my biopsy to my appointment so he could review them also.

I did a search on the Women's Cancer Network and plugged in the zip code for Mesa, Arizona, where I see you are from. The site lists 5 gyn-oncs within a 15 mile radius of Mesa. Here's the site:

Before my radical hysterectomy for endometrial cancer, I saw two gyn-oncs. I went with the one who was Board Certified in gyn-oncology and who had more than 25 years experience. To say the least, I have been extremely pleased with the quality of care I have received from him since my diagnosis in 1999. When you're dealing with cancer, you need to see a cancer expert.

Good luck and let us know how everything turns out.

Unread 07-14-2003, 06:27 PM
Gyn-Oncs Near You--Part 2


When I tried to access the site in my post, it did not give me the list of 5 gyn-oncs. It does give you the website, so you'll need to hit "Find a Doctor" at the top of the screen, and then fill in your zip code. That should replicate the list of 5 gyn-oncs in your area that I located.

Unread 07-14-2003, 07:04 PM
Post op diagnosis

s Cindy

I am sorry that you ended up hearing a cancer diagnosis when it was not at all suspected. But it now time to get control of the situation.
If your gyn is the doc that would refer you to a gyn onc, I would be in his office tomorrow morning to pick up the referral. And don't you dare take no for an answer. Gyn oncologists are the experts with gyn cancers.
Keep in touch.

Unread 07-14-2003, 08:41 PM
Post op diagnosis

Cindy, although I am early-early in this process, I agree with the others who say go to a gyn-oncologist.

I went to my first apt with the gyn-oncologist today after deciding to be referred by a gyn that I really liked. The oncologist seemed so much more realistic. My gyn said there was no need to sample lymph nodes because of my stage 1, highly diferentiated diagnosis. The gyn-onc says that the diagnosis will be done when they do the hyst and cross sect of the uterous, then they will decide whether to sample the nodes.

Hugs, Best wishes and blessings Cindy, Lorit

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