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Back from the doc and........... Back from the doc and...........

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Unread 07-14-2003, 06:03 PM
Back from the doc and...........

it looks like I am going to be a again. My doc is suggesting opening me up, to get at those pesky little cancer cells. Partial Vaginectomy I believe is what she said.

I am so scared that I will come out with worse.

She is going to have a urologist doing the surgery with her, placing stents, and hopefully protecting my bladder as much as they can. I go to see the urologist next tuesday.

She wouldn't rule out a pelvic exonaration, I DONT WANT THAT!!!!! Please pray that it doesn't come to that. That is my major fear. I don't know if I could handle it. I am only 40 years old.

I am debating on getting a second opinion. But then I am afraid that their prognosis would be even worse. I don't know what to do.

I know that it would be an extensive surgery, due to surgical and radiation adhesions. I just hope and pray that everything will come out alright.

I will probably have the surgery some time next month. So that my son will be in school and won't have to worry about him too much. Makes it easier on me. I am sure that my mom will be down the first week or so after surgery, you know how moms are. I am her baby.

Thank you for all your prayers and continue to pray for me.

God Bless all of you!!!!!!
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Unread 07-14-2003, 06:30 PM
Back from the doc and...........

Hi Jane....

Here's hoping that the urologist gives you good news. You have alot going on right now. When trying to figure things out, sometimes taking baby steps instead of giant leaps will help.

The organized teacher side of me always says to take one project or problem at a time and solve it. As each little piece is solved, it begins to fit nicely into the whole project.

Sometimes, at the beginning, things seem alot worse than they really are.

I know that this is easier said than done but please try and take those baby steps.

Keep in touch

Unread 07-14-2003, 06:33 PM
Back from the doc and...........

Hi Jane,

I'm sorry that you are having to have another surgery. Hopefully all the bad cells can be dispensed of with the minimal amount of trauma to you. I think Rosalie offered some good advice, just try to take it one step at a time, you have proven yourself to be so stong time and time again! You will be in my thoughts and prayers.

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Unread 07-14-2003, 06:55 PM
Bummer on Surgery--But Best Wishes

I'm hoping that they can take care of this with this surgery and it'll be the last one you'll need. The idea of having a urologist in is excellent and hopefully you will not need the exoneration. I'll keep you in my prayers that this will get rid of the cancer once and for all. It's not the news you wanted. I wish I knew what more to sy. and
Unread 07-14-2003, 07:02 PM
Back from the doc and...........

s Jane

You mentioned the thought of perhaps a second opinion in regards to surgery. Why not? When there is the possibility that the surgery could be extreme, it is a very sound idea to see if another doctor agrees. Remember, cancer often means making choices so that we have the least regret in the future.
Then when you proceed you can do so with confidence in the plan and your decision.
You are an incredibly strong woman and one who is always in my thoughts and prayers.
Hope to catch you chatting tomorrow night.

Unread 07-14-2003, 07:29 PM
Second Opinion on Surgery & Pathology

Hi, Jane--

If it were me, I would definitely get second opinions on both the treatment plan as well as the pathology results on which your gyn-onc is basing the decision to do additional surgery.

I located a copy of an article from the Wall Street Journal (the date got cut off, but it was within the last coule of years). The title is "Risk of Error May Justify Second Opinion on Pathology Reports." If you want a copy, just send me your address and I'll send it. Here are a couple of highlights:

Most people know to seek a second opinion from a physician, but what about from the pathologist? There's growing evidence to support asking for a second opinion on your lab work when cancer is suspected or diagnosed. Although serious errors are still considered rare, mistakes that could alter treatment--such as determining how fast the cancer is growing or how much it has spread--may happen as often as 20% of the time depending on the type of cancer. . . .

The risk of mistakes varies depending on the body part and type of cancer. . . . Biopsies involving the female reproductive tract were particular prone to mistakes, with an error rate of 5.1%.
. . . Before deciding whether to seek a second pathology opinion, patients should ask their physicians whether he or she chose the pathologist who made the initial diagnosis. "If you're trusting him to make the right choice, it's often not his choice." . . .

If decisions about chemotherapy or surgery are based solely on the details of the lab results, it's usually a good idea to get a second pathology opinion.

Cost of second pathology opinions: approx. $80 to $150 and usually covered by insurance, but some may require advance notice.

Site mentioned: (Provides names of nationally known pathology specialists. They do not have any financial ties to the experts recommended).

WSJ Health Journal: By Tara Parker-Pope

Good luck to you!

Unread 07-14-2003, 08:03 PM
Back from the doc and...........

(((Jane))) I'm sure you're not looking forward to another surgery. I remember when I went off to my LEEP and I had asked the doc to fix a chronic vaginal tear. He removed an area of tissue about 2 cm wide by 3 cm tall (near the vaginal opening). I never expected it to come back as CIS. So when I went back in for my TAH he told me we needed to remove more of the vaginal wall to try to find clean margins (all that healing I'd just done gone to waste!). I dreaded that more than the TAH. I just cried. But all has turned out well. If getting a second opinion has crossed your mind, then you owe it to yourself to go get one (or two). In the meantime, I will keep my fingers crossed for you and I will keep you in my 'ers that all falls into place, your bladder turns out to be not a problem, and that only a small part of your vagina will be removed (and nothing else!). God will help you through--trust in Him.

Unread 07-14-2003, 08:39 PM
Jane, I am so sorry you have to have

another surgery. I feel that if you are thinking of getting another opinion, then you should get it. The more knowledge you have, the stronger you are. I wish I could give you a big fat hug. Hang in there and keep us posted.
Unread 07-14-2003, 10:11 PM
Back from the doc and...........

Dear Jane,

My heart goes out to you. Really. I was so, so sad to read that you might be facing another surgery.

I would definitely get a second or maybe even a third opinion. You will probably have to pay for them, but it's an investment in your life that I think is important. If you have to tap into savings, as I will, then so be it. Doctor and path opinions vary so much. Ultimately, it will be up to you to find out all the options available, and then determine which option you want to go with. And that's the hard part.

I don't want to beat a dead horse, but I keep reading about people who had reversed cancerous situations with raw or mostly diets. The amount of non-pharmaceutical-company sponsored published evidence is somewhat overwhelming, and I'm probably going to adopt a partially raw diet after my chemo (when I'm once again allowed to have raw food). Fruit for breakfast. A salad for lunch. And that's 60% of my day -- already healthier than processed or cooked food. Add in some veggie juices, and my body is bound to thank me.

Anyway, it couldn't hurt to try. Traditional medicine seems to be only part of the picture. I've spoken to three doctors at three different facilities lately, and all agree: One chemo is done, they don't know an awful lot about the best way to proceed. (I'll post another thread about this.)

If you do have to go through another surgery, I hope it will go well and that your doctors will do everything they can to leave you with as much of YOU as possible. As you said, you're only 40. You have so much life ahead of you! Keep fighting. You will get through this!

s! And God Bless You, too!
Unread 07-14-2003, 10:30 PM
Back from the doc and...........

I am sorry you are facing another surgery, but anything to get rid of those cancer cells. I agree with the others, that a second opinion would be good. try to be positive and don't expect the worst.

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