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Ovarian Cancer Ovarian Cancer

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  #11  
Unread 07-19-2003, 07:08 PM
Ovarian Cancer

  Quote:
Originally posted by karenann
s Ardeth. Kudoos to you for being proactive in your own health. Especially when having vague symptoms and your Gmom's history. Furthemore for prevention: take birth control pills for at least five years daily aspirin.
Hi Karenann! Hugs backatcha! I'm simply tired of not knowing, of not feeling 'right,' ya know? The OBGYN did put me on birth control pills. I had never taken them in my life until now. Daily aspirin? What does aspirin do?
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  #12  
Unread 07-20-2003, 10:31 AM
You are very wise

You are very wise to make the appt. to get a CA 125 test. It will settle your mind.

In my case, there had been no known familial ovarian cancer, but the key word there is 'known'. But, now there is - me. Ovarian cancer was just not talked about in generations past. But, I think that's how I got it; not sporadic. (But, I've just read Dr. Brodie's website that Siren Song provided, and went 'hmm' re: "cancer personality"). When I asked my gyn/onc about females in my family getting a CA 125 test, he responded by saying that what they need to do is more than that - they need to visit an ovarian cancer center (there are a number in Canada), and give my history and my paperwork.

Here's to good news on your CA 125, Ardeth.

Big
  #13  
Unread 07-20-2003, 10:56 AM
Re: You are very wise

  Quote:
Originally posted by wild rose
But, I've just read Dr. Brodie's website that Siren Song provided, and went 'hmm' re: "cancer personality."
Is that website URL still lingering around somewhere???? I'd be interested in looking at that myself. Thanks a lot, wild rose. You guys are truly amazing!
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  #14  
Unread 07-20-2003, 01:02 PM
Ovarian Cancer

Hi, new here also. My grandmother also passed away from ovarian cancer at age 40! My mother was diagnosed with ovarian cancer 5 years ago at age 53. She is still on chemo.
My mom had genetic testing done and confirmed that she carried a BRCA1 gene responsible for ovarian and breast cancer. I too, was then tested and had a 50/50 chance of carrying the gene. I do carry it and because of that fact and large fibroids I had my hysterectomy on 7/15/03.
You should look into testing to see if you are a carrier of genetic cancer genes.
swagsswags
  #15  
Unread 07-20-2003, 01:19 PM
Ovarian Cancer

The thing with my grandmother was that, according to my mother, a surgeon discovered her cancer after rupturing a tumor. What brought her into the hospital was severe abdominal pain and they immediately diagnosed her as having a ruptured appendix. At that time, I wasn't born yet. I don't know how long my grandmother had actually been ill before this surgery occurred. I would have to guesstimate that she was around 53 when she had the surgery. Anyway...genetic testing is a thought and a good idea for follow up.
  #16  
Unread 07-21-2003, 02:00 AM
Ovarian Cancer

Ardeth:

Here's the link to that page specifically:
Cancer Personality. He has some very interesting things to say there (some of which sound VERY familiar to me!).

I'm in the same boat as you are: suspicious symptoms, strong family history, and history of complex cysts. My concern is that no one can tell you that you don't have endo on just an ultrasound...endo is one of those things that often requires direct visualization to identify. And it can certainly cause, not only large complex cysts (been there, done that ) but can also elevate the CA-125.

Generally, it would require CT (with both types of contrast) and/or MRI to define your ovarian anatomy better. And, frankly, I'd want a GYN-oncologist consult with this. They are the experts in tricky surgeries...even if this isn't cancer, it could be complicated by endo.

However, the imaging and CA-125 should help...you may also want to consider seeing a gastroenterologist, as some of these symptoms can also be due to intestinal problems (related to endo, sometimes). Colon cancer is another one, related to ovarian, which can present sometimes in some very subtle ways.

My , bless her heart, took my concerns in this arena seriously. Even though I've had a hyst with ovarian removal (and the previous mass turned out to be an endometrioma, with my CA-125 going from 200 down to 9) she still drew another CA-125 and I go for a transvaginal ultrasound tomorrow, with C-T to follow depending upon the results. She has said that it's highly unlikely that my new symptoms are cancer, but at least was willing to go the distance to prove that it wasn't...and to uncover what the problem may really be.

Good luck with this. When do you get the results of your CA-125? That's far from perfect, BTW -- it can be elevated in endo and in colon cancer, among other things. And there are those who have low CA-125 levels but who are still dealing with cancer. But it's a start toward giving you some idea of what's going on!

I can definitely relate to the delay in seeking treatment; I'd probably had my giant cyst for a couple of years, but moving from state to state and losing our Kaiser insurance caused me to put off the inevitable. Also, something struck me in your original post where you said that you'd seen your GYN for "excruciating painful periods". This can, in fact, be endo (no fun either) and not cancer at all.

BTW, your dad's "early" prostate CA also can be a good argument for being assertive about getting care. Prostate and colon cancer can be related to ovarian.

When are you getting that CA-125? I do hope it's soon. My lab where mine have been done does take as much as 5 days to return to me with results, and waiting is soooo hard. I hope you find out soon, and can get more in the way of studies than just the ultrasound. It's pretty good (I should know, I'm a sonographer -- though of hearts, not bellies). But ultrasound is far from perfect in diagnosing endo. Hopefully some other testing will lead them to an answer to what is bothering you!

Audrey
  #17  
Unread 07-21-2003, 09:05 AM
The thanks go to Siren Song

Ardeth

It is SirenSong who provided info re: Dr. Brodie's website. She's #1 in research! I just hit the website she provided! www.drbrodie.com
  #18  
Unread 07-21-2003, 04:18 PM
Ovarian Cancer

  Quote:
Originally posted by Audrey S.
Good luck with this. When do you get the results of your CA-125? Also, something struck me in your original post where you said that you'd seen your GYN for "excruciating painful periods". This can, in fact, be endo (no fun either) and not cancer at all. BTW, your dad's "early" prostate CA also can be a good argument for being assertive about getting care. Prostate and colon cancer can be related to ovarian. When are you getting that CA-125? I do hope it's soon. My lab where mine have been done does take as much as 5 days to return to me with results, and waiting is soooo hard. I hope you find out soon, and can get more in the way of studies than just the ultrasound. It's pretty good (I should know, I'm a sonographer -- though of hearts, not bellies). But ultrasound is far from perfect in diagnosing endo. Hopefully some other testing will lead them to an answer to what is bothering you!
Thanks a lot, Audrey. I can tell already that you are a wealth of information! My periods weren't painful until April of this year, so I was very stunned when I had such horrendous pain [so bad that I couldn't eat, sit, walk, stand, etc.]. I don't have the CA-125 until this coming Monday [July 28] and then they'll have to send it off to a lab. And as you said, waiting is the worst! The one thing I did appreciate over everything else was the fact that the sonographer who worked on me flat out told me the truth. "Yup, you got a cyst...a big one." I've had tons of people tell me all this is in my mind. I certainly hope it is, but lemme tell you, I'm getting answers regardless!!!! Thanks again!
  #19  
Unread 07-28-2003, 05:30 PM
CA-125

Well today I had my CA-125. I was prepared to listen to my PCP lecture me about 'panicking,' or being a 'hypochrondiac.' However, he surprised me. He listened to what I was saying and actually asked why the OBGYN didn't perform the test. Of course, my reply was 'I have no idea.' Anyway, had it done but won't get any results for five or so days!
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