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Well, it's invasive Well, it's invasive

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Unread 07-22-2003, 06:30 PM
Well, it's invasive

My gyn onc called me today to tell me the results of my cone bx. She said there are cells that are invasive and a radical hysterectomy is needed. I asked what the stage was, she said stage 1. What does that mean? She didn't say any dimentions of any tumor size. So how do they know? I have noticed everyone has abbreviations for their diagnosis, such as CIN I or CIN II. What do these mean and what do I have? I also forgot to ask if I needed a MRI or a CT Scan. Are these necessary? And also what exactly is a radical hysterectomy? Do they take out lymph nodes? The one ? I did remember to ask was do I need radiation. She had said she would be very surprised if I did, but she was the person who also said a cone bx would probably be all I would need after she went in and had a look. So I don't know what to think. Sorry for all the ?'s This is all very new to me and I am nervous. I am having Sloan Kettering to review the slides also. But, I am taking it for what it is, it's said it was invasive and that is all I need to know to make a decison about having a hysterectomy.

Thank you in advance.
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Unread 07-22-2003, 07:01 PM
Well, it's invasive


I'm sorry to hear that your cancer is invasive. Here's a link to a website that will give you some information both on staging and on the different types of hysterectomy that are performed:

Cervical Cancer (Click here).

CIN stands for cervical interepithelial neoplasia and it is a category of precancers, subdivided into 1, 11, 111, CIS, depending on the percentage of cells that are involved in the "skin" of the cervix.

Any further treatment will be determined after your surgery and after the final pathology is back. If you fall into the 1A category, no other treatment is usually recommended. Some of the 1B's are treated, and some not. I'll keep my fingers crossed that you are in the 1A group.

Is your doc a gyn/onc? I'm glad to hear you are having your slides reviewed by another facility as well. It's always good to have at least one gyn/onc's opinion when cancer is involved.

Good luck, Lynn. Please let us know when your surgery is scheduled.

Unread 07-22-2003, 08:26 PM
Well, it's invasive


I am sorry to hear that the cancer is invasive. Please keep asking questions, this can be a very overwhelming time and getting some answers I think will help. I think Jeanine's link will provide the information that you need. As she said, if you are stage IA you shouldn't need any further treatment. Unfortunately, it is a waiting game for the pathology results from your surgery, and that can sometimes be the worst part of the process.

In a radical hyst. they will remove your lymph nodes and examine them to make sure that the cancer hasn't spread. Hopefully the hyst. will be all the treatment you will need. As for a CT scan or MRI, some docs do them, some don't at stage I. If you would like to have them done you can request them, but it is not a definite. If you would like more info. on the depth of invasion and the size of your cancer, definitely get ahold of your path report. That is how they decide the stage.

I was a IA so I had the radical trach. and needed no further treatment. I'm hoping the same for you. Best of luck and let us know what Memorial says. My thoughts are with you,

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Unread 07-22-2003, 09:00 PM
Well, it's invasive

If it makes you feel better, I think that
stage 1 is actually known as microinvasive. You have a lot of good questions. A radical hysterectomy I believe involves removing the cervix, uterus, and the tissue around it, the upper part of the vagina, and some nodes. I would call the gyn oncologist and ask all of your questions. Stage 1 is still really early. Your prognosis is good. I am so sorry that you have to go through all of this!
Unread 07-23-2003, 12:50 PM
Well, it's invasive

Thank you all for your concern,good thoughts,well wishes and all your knowledge. This website has truly been helping me through a hard time and I don't know what I'd do without you. I have called my onc gyn to ask further questions and am waiting to hear back. Now I have to worry about my boys during my surgery and recovery, that is the worst part in all of this.

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