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Almost back to normal :) Almost back to normal :)

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Unread 07-25-2003, 05:14 PM
Almost back to normal :)

Hi Guys

So glad to hear you are well ((((Maddy))))- and congrats for getting the supra out!!!! ..are you able to pee OK- it is the best feeling, I remember going in and peeing every 30 minutes- just to make sure I wasn't leaking!!!!

(((Maria))) - I am so sorry you are not feeling well- hopefully the CT scan will shead some light- they might be adhesions making there presence known...I hope you feel better soon!!! Hope you have a great weekend in Florida...

((((Julie)))) I hope you are getting along better everyday...hope #2 is starting to work ...I tell you though- have you told URO you haven't gone??? I would see if you could take something..I took Milk of Magnesia(yuk) and a Citrucel tablet everyday and it worked great... I also did not eat much in the beginning and that doesn't help either..I will pray things get moving and you get some relief...

hope everyone has a good weekend- I am off for a well deserved girl's night out!!!! Be well fistulasisters
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Unread 07-26-2003, 05:43 AM
Almost back to normal :)

So glad to hear you are doing so well Maddy! My dr's (there have been many) have also said the same thing about fistulas. I have said it here before that no 2 bodies are the same, unless you are a clone so you don't be hard on yourself if your experience isn't the same. I knew I would have problems when the first time my gyn looked in me & yelled "Oh My God", except we expected cancer. I was relieved it wasn't but then dr said sometimes there are a lot worse things out there then cancer. Don't know about that but this has been life changing. Not all has been bad. I have met many people all over the world with fistulas & stomas that I would have never met otherwise or even known about. Yesterday found out one of my friends now has a fistula in her stoma & my heart is breaking for her but yet I know she will survive.

You go celebrate Maddy & hopefully you will have no further problems with your bladder. Just remember to drink your water!

God Bless,
Unread 07-26-2003, 10:43 AM
Thanks so much, Terry

I always remember to drink my water... I drink anywhere between 2-3 quarts a day! I have always loved to drink water..
You have a good attitude. Make sure that doesn't change. Because attitude IS everything. Just wanted to quote you something that I've found:

"The longer I live, the more I realize the impact of attitude on life.
Attitude is more important than facts.
It is more important than the past, than education, than money, than circumstances,
than failures, than success, than what other people think or say or do.
It is more important than appearance, gift, or skill.
It will make or break an organization, a school, a home.
The remarkable thing is we have a choice every day
regarding the attitude we will embrace for that day.
We cannot change our past.
We cannot change the fact that people will act in a certain way.
We cannot change the inevitable.
The only thing we can do is play on the string we have, and that is our attitude.
I am convinced that life is 10% what happens to me and 90% how I react to it.
And so it is with you.
We are in charge of our attitudes."
- Charles R. Swindoll

Thanks so much for have gotten to know you a bit.. Hang in there...

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Unread 07-26-2003, 11:43 AM
Almost back to normal :)

Hi Maddy,
Just wanted to second the impact of Attitude when dealing with these problems. I found the paragraph on Attitude by Swindoll several years ago (when I was 34 - I'm 41 next week). It helped me so much to deal with the chronic pain I had/still have... the idea that while I may not have much power or influence over the doctor or the endo or some of the other things that happen... I had complete control over how I CHOSE to react and that, for me anyway, was very empowering. It turned things around for me. There are no guarantees in life... no guarantee that I will not have pain, no guarantee that there is always an answer to the problem, no guarantee that I will even be here tomorrow,... so I might as well make the best of what I have while I am here and the root of that, for me anyway, is to try each day to have a good and constructive attitude.

I am trying to help each of my kids realize that they really have a choice how they react to things and the attitude that they choose to "wear"... I don't want it to take them until they are 34 hee-hee!

Anyway, I think you have a great attitude and outlook on things. You are an inspiration.

I hope your bladder keeps on working!!

Unread 07-26-2003, 02:16 PM
Almost back to normal :)

I really admire all the contributors who have gone through so much and still have a positive attitude. As a teacher, I always kept positive sayings in my classroom. One that I always liked was "You can't control the wind, but you can adjust your sails." It sounds like many of you have done a wonderful job adjusting your sails.
Unread 07-26-2003, 02:46 PM
Almost back to normal :)

Hi Maddy,

When you go to website that is exactly what they have quoted on their opening page & is so true. I don't always have such a good attitude but some of them have. There are so many people on that website that have diseases without cures but they are so happy for each & every day they are alive. 2 weeks after my last surgery I really had a bad night but they all talked me through it & of course morning brought the light. I have also had a tremendous amount of inspiration & advice on this board also but unfortunately at a time when I needed help the most I also had a lot of criticism as to my treament & paths I chose. At one point I turned my anger & frustration toward my dr's partly in due to some of the second guessing of 3rd parties. I have even been accused of not taking care of myself post op to the point of dr's assuring me that my healing was not do to anything I had done wrong. I was very frustrated when quoted 2% get fistulas & they always heal when treated right & such only to find out that there are so many people like me that have not healed. I am always relieved when a fistula is fixed but so worry about all the ones we never know about or don't. Anyway time for dinner.

God Bless,
Unread 07-26-2003, 06:56 PM
Almost back to normal :)

This is all new to me. What is a fistula?
Unread 07-26-2003, 07:10 PM
Hi everyone,

Terry ~ Wow, that's so cool!! It is hard to keep the right attitude going..

Lynelle ~ Welcome to the group! A fistula is a hole, in our case, a hole in the bladder. It was a result of the hysterectomy. defines it as:

An abnormal duct or passage resulting from injury, disease, or a congenital disorder that connects an abscess, cavity, or hollow organ to the body surface or to another hollow organ.

Sarah ~ You are so right in that our attitude is the ONLY thing we can and should have control over...

Unread 07-27-2003, 03:28 PM
Almost back to normal :)

Hi yall,

It is so much your attitude....Great post and I will refer to it and read it often.

I want to add though that it's hard to remain "positive" all the time and it's okay NOT to be okay all the time.....I still can't get rid of UTI's. AND I know it's not the worse thing in the world.

Renee<one who is STILL having a hard time...even if *I* choose it>
Unread 07-27-2003, 03:35 PM
Almost back to normal :)


I am so glad to hear that your SP has come out. I am looking forward to that day.

Yesterday was a great day for me....I went POOPIE! LOL How sad is that? Doing a happy dance over #2. Oh, well, I knew you guys would understand. My 10 year old DD thought I had lost my mind walking around the house announcing "I went poopie!" Too funny!

Unfortunately, I think overdid a bit yesterday. We went out and did some garage sales. Had a lot of fun, but I've not gotten out of bed today. I know better, but I was tired of the house.

I pray that each day is getting better and better for you. Here's to a normal and dry life! Take care of yourself!

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