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Spasmodic Pelvic Floor Spasmodic Pelvic Floor

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  #1  
Unread 08-01-2003, 03:51 AM
Spasmodic Pelvic Floor

Hi,

Had appt w/new uro/gyn yesterday. He said everything looked in place & clean as a whistle (no infections). I thought gravity was pulling everything down. He said I am having pelvic floor spasms. When I sleep the muscles relax hence waking up feeling well. By afternoon I have discomfort in my vagina. He could feel the muscles contract when he was in there. Answer: I start Physical Therapy next Tuesday to retrain the muscles & will be on increasing doses of Doxepin for pain (discomfort). Reason is equated to Post Tramatic Stress Syndrome (sometimes happens after a difficult delivery during child birth or rape). I have had so many unwanted vaginal invasions-surgeries, foley cath, procedures that the muscles on my pelvic floor have provided a defense mechanism & has thrown them into a panic where they are constantly tense waiting for the next painful entry. This would also explain why cystoscopies, cystograms etc. that others have said are not painful are for me. He also changed me from Climara to Vivelle Dot. Does this make sense! My dad had heart surgery yesterday but he had a good laugh last night when I explained this to him & he made an off color joke about it! Very tired today from all that has gone on but relieved to know no more surgery for the time being.

God Bless,
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  #2  
Unread 08-01-2003, 09:37 AM
Spasmodic Pelvic Floor

Hi, Terry, I hope that now with the new treatment at least this problem will be solved. I am om Vivelle Dot too and I love it !. No hot flashes , no night sweats it works for me very well. How is your dad doing ?

Maria
  #3  
Unread 08-01-2003, 09:43 AM
Spasmodic Pelvic Floor

Hi Terry,

I hope you get some relief soon from pain. I too have PTSD from all *I* went through. I am talking to a shrink about my fears. I actually have nightmares and I wake up in a pool of blood from "something" rupturing. YIKES!

I hope your Dad continues to get well. My thoughts are with you and your family.

Hang in there girl.

Renee
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  #4  
Unread 08-01-2003, 11:15 AM
Spasmodic Pelvic Floor

Thanks all,

I don't know if my PTSD is the same as yours Renee as my pelvic floor is suffering from it but I don't have any knowledge or at least memory of it. Thanks for asking about my dad. He had cardiac cath done yesterday & on blood thinners for a month before they can remove lung. It is a risk to wait but more of a risk to remove right now. Lympnoids are swollen so that is a worry. Some family doesn't want him to have surgery at all & didn't even go to hospital yesterday in protest. He will die without surgery but could live another 20 years if successful. He thinks it is over & already signed his house over to my brother & plans on living with family. If he gets through surgery hopes to stay with me for awhile. I have some hope but feel drained today & my vagina is very sore from all the probing. Waiting for my prescription to be filled & maybe some relief then. As someone said it doesn't rain it pours . Wondering if anyone has had the physical therapy to relieve muscle spasms on pelvic floor so I would know what to expect?

God Bless,
Terry
  #5  
Unread 08-01-2003, 01:03 PM
Spasmodic Pelvic Floor

I went to several sessions of physical therapy where the therapist worked on my pelvic floor muscles. I went because I have what seems to be myofascial trigger points in my pelvic floor muscles (tight knots of muscle tissue that are very painful).

I do not know if you will have the same type of therapy since your problem sounds different than mine...but what she did was all internal massage. It was sort of like a pelvic exam except that she would work her way along the pelvic floor muscles from the inside of the vagina and do (what she thought anyway) was gentle massage of the muscles to try to get them to relax.

To be perfectly honest with you about what I had done... it did not help me, and in fact it was very painful and seemed to make everything flare-up. I stopped a couple weeks ago but had gotten to the point where I absolutely dreaded going. The doctor who sent me said that the fact that it wasn't helping was an indication that the problem likely had some neuropathic mechanism causing it (maybe pudendal nerve damage or referral pain mechanism from another primary pain source (endo) etc.)...

I hope you are able to find relief with your PT. I know the therapists who do this have specialist training on that part of the body.

Sblumen
  #6  
Unread 08-06-2003, 06:23 AM
Pelvic Therapy seems to help!

I had my 1st session at a womens health clinic specializing in pelvic therapy. I was taken into a quiet room with my husband. They are teaching him this technique since we live so far away. After the session where she located the tight muscles & gently put pressure on them I felt immediate relief. As she informed me it would the pain came back almost before I left the clinic. It will take a while. I am scheduled for 2 sessions a week where I will also be taught pilates (excercise/stretching). After I learn to do this I will do it at home with the help of tapes & my dh. Before we went to sleep last night he tried the gentle pressure to the muscles of my pelvic floor at 9 o'clock position & the pain subsided. I was very skeptical when I went in which therapist said all her patients are because she is usually a last resort. She also showed me how to massage vitamin E oil into my scars to break up knots. Today I am more sore then usual but I see the light at the end of the tunnel. I was also relieved to learn that I will do this at home because they were excited my insurance paid 100% as that is unusual. I loved that this did not hurt because everything they do to me hurts but she said let me know if I hurt you. It was like having your back massaged but just exactly on the right muscle. Also my dh resisted all his smart a--ed comments but unloaded them all on me on the way home so he wouldn't explode. During the session I just kept saying keep it zipped. This may not be longterm relief but I just take it as it comes.

God Bless,
Terry
  #7  
Unread 08-06-2003, 07:46 AM
Spasmodic Pelvic Floor

Dear Terry,
I am so glad to hear that the PT may be working for you! That is great. I am glad they were able to show your DH too so he could help.

I haven't been back to the PT. I am too afraid because it hurt so much... I didn't find any relief and it just seemed to make it hurt more... Also, the doctor who prescribed it suggested I stop too.

That is interesting (for me and as a reference point for me) that you felt immediate relief even though it came back shortly after. I didn't find any relief when she pressed on the bad spots and it hurt even more when she "released". I wonder what that could indicate.

Please keep us posted. I am so hoping this works for you. I have some hope it may work for me eventually - maybe I just didn't find an experienced enough therapist - or maybe it will just take longer.... I went 6 times though.

SBlumen
  #8  
Unread 08-07-2003, 06:25 AM
Spasmodic Pelvic Floor

Yes, I too thought it interesting that I had immediate relief. I am very hopeful this will work. I am sore today but she did tell me it would take awhile. I am usually in bed at the latest by 7PM but managed 11PM last night & attended a city council meeting. I am a little angry that dr's do not warn you ahead of time of this when you have vaginal surgery. The only one that hinted of this was my uro that performed my ostomy. I think that everyone thinks because it is vaginal surgery & they won't have to suffer with an incision that it is a safer route. Surgery is SURGERY no matter how it is done. I am not having problems with my urostomy & my incisions are completely healed but now this. I thought it would be my bladder that would give me a lifetime of grief not my vagina. I am very greatful that the pain is really discomfort & not like my bladder spasms. I see that some of the fistula women still suffer with bladder pain long after & that is horrible & have been told that some fistula's have even reopened after being repaired. I would be beside myself had I gone through the agony of my fistula being repaired & then to reopen later. Talk about false hopes! I chose this route because of that very reason. I have another session with therapist Friday afternoon & will keep you posted.

God Bless,
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