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Scared.....follow up with uro tomorrow morning....... Scared.....follow up with uro tomorrow morning.......

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  #21  
Unread 08-05-2003, 07:59 PM
Scared.....follow up with uro tomorrow morning.......

(((Gidge))),
It is documented that Kegals can help Grade 1 Prolapses Do you do these?? It's worth a try..anything less invasive than surgery, IMO, is worth exhausting. There are several diff't alternative treatment options that are available in treating these. Are you able to see a Uro-Gyn? That is what I'm seeing for my prolapses.
While consulting w/ your GP is great, as he is your 2nd best Health Advocate as he oversees & keps records on all ones dx's, Specialist ect but unfortunately this area is outside of he realm of expertise I hope he can send you in the right direction to get some more in-depth insight to your treatment plan
Good Luck (((my friend))), pls keep us posted....((((hugs))))
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  #22  
Unread 08-06-2003, 08:50 AM
Scared.....follow up with uro tomorrow morning.......

Oh (((((Gidge))))) I'm so sorry that this return appointment turned out to be such a disappointment Believe me, I know the feeling: I had one doctor 1st tell me I have arthritis, just don't know which type, at several appointments then, the next appointment, she goes: Oh no, you don't have arthritis, because all the tests were negative. She even went as far as to ask me: Who told you you have arthritis? I just looked straight at her and said "You!!".

Regarding the prolapse: the "going up and down" feeling you describe is exactly what I was having when I was dealing with the rectocele, pre-op. Except that, most of the time, mine could be felt at the opening of the vagina. I agree that, without an exam or tests, it would, indeed, be pretty hard for her to verify the rectocele and vaginal vault prolapse Maybe your GP can shed some on this and follow with your uro.

BTW, where the incontinence is concerned as well as the 1st Grade Cystocele, yes Kegels can help. Furthermore, especially if your vaginal muscles have weakened, like mine, I've learned that it's best to do them lying down, simply because it takes more energy, and ability, to do them standing or sitting.

Furthermore, you might want to ask about Perineal Physio Therapy. I've just started mine, on the 22nd of July and am going for a second session next week. It's expensive: $80.00 a visit, plus $30.00 for the bio-feedback device and the Quebec Provincial Health Plan doesn't cover it the visit. However, most Group Insurance Plans will cover it, providing there's a prescription. Even if there's a repair involved, you might want to investigate this possibility, as my therapist told me that my current problems might have been avoided if I'd been referred to her after my hyst.

Wishing you the best of luck and sending lots of s your way.
  #23  
Unread 08-06-2003, 09:40 AM
Scared.....follow up with uro tomorrow morning.......

thanks for all your hugs and words of wisdom....what would I do without my sisters?

I have done kegels religiously since my hyst and can stop my flow of urine....however, when I get the leaking with sneezing or bending over nothing stops it.....it just happens.....the uro said it's involuntary and there is not time to stop it it just goes "whoosh"......I tried pelvic physio prior to my last surgery and she said I didn't need it AND it ended up bringing out my GERD for some strange reason so I'm not in a hurry to rush off for that again~~

after thinking about it all last night it seems clear that what she was saying that although she will do surgery on all types of prolapse she is only willing to diagnose a cystocele.....I mean she knew when she did the cystoscopy and cystogram that it wouldn't show the bowel prolapse and isn't offerring any other further tests to show that........not even another examination.....so I feel as though she's saying "go get someone else to figure this out" unless of course it just so happens to fall down during office hours, and I happen to be downtown and she happens to be in and free and can look at it

does that sound right or am I still confused? And Dany, how were they able to dx yours ?
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  #24  
Unread 08-06-2003, 10:43 AM
Scared.....follow up with uro tomorrow morning.......

((((Gidge)))) You know something? I kind of makes sense that uro would only be interested in repairing a cystocele Maybe a uro-gyn or a general surgeon would be the best specialist to consult for rectocele and vaginal vault prolapse

The GP I consulted at the time diagnosed a cystocele while doing an internal... however, my ob/gyn, when I was sent to him for the surgery, did another exam and explained that it wasn't a cystocele, that it was a rectocele.

My rectocele was 3rd grade and he was able to diagnose it in a "regular" internal, lying down. Sometime, however, rectocele's can only be diagnosed standing up and I know that, for those cases when even that won't show a rectocele, there is a test that can be done.
  #25  
Unread 08-06-2003, 10:52 AM
Scared.....follow up with uro tomorrow morning.......

well that's the bizarre part of the appt Dany, while she said she didn't have a test that could tell her what the other part of my prolapse was (vaginal or bowel) she could fix it if it were diagnosed as she does all that type of surgery, even use to hysts in the US but in Canada uro's aren't allowed.....so that's what confused me, "I can fix it but I can't find it" sort of attitude

after asking 3 times she did say that there was one test they could do but she would leave that as a last ditch effort she would rather we wait and see if occur naturally if possible? Why not just do the darn test?

I asked originally to see a urogyn and my GP told me that we don't have any here.
  #26  
Unread 08-06-2003, 11:07 AM
Scared.....follow up with uro tomorrow morning.......

Hi Gidge
I am in BC also but I have seen a GYN for my prolapse. And then had surgery. I had two GPs urge me to do the surgery also. My GYN could see the bladder prolapse in any position - but then so could I!! When she checked me internally she told me the bowel was prolapsed a little also. I could not tell at all. So I think the bladder prolapse was hiding everything else. I have had my uterus and cervix removed, ovaries remain and anterior and posterior repair almost 5 weeks ago. And now I am learning to sit as I must have compensated for these little problems in odd ways. My GP had to refer me to the GYN. I think you may have to go that route also. I know nothing about URO. Hope this helps a little.
  #27  
Unread 08-06-2003, 11:12 AM
Scared.....follow up with uro tomorrow morning.......

thanks Ann Always nice to talk to a fellow Canadian never mind someone right in the same province!!

I guess that's the next thing....who is the appropriate doc to be getting "in there" next and feeling around to find this bowel prolapse.....a gyn, another uro, a bowel doc? Since we have no urogyns I'm not sure where to start...and can't figure out why she said she could feel it last time and now says that's not good enough.....hmmm maybe a read thru my chart scared her off?

I'm finding it increasingly hard to have a full BM as well it seems like I can't get it all out, did anyone else have this with their bowel prolapse?
  #28  
Unread 08-06-2003, 04:29 PM
Scared.....follow up with uro tomorrow morning.......

well something nice happened this afternoon to me, and in my excitement I jumped up and down about four times, which seemed to cause whatever organ is prolapsing inside me to move down quite abit (not all the way but more) so when I go home tonight I'm going to try and muster the energy to hop up and down alot and see if I can recreate this prolapse for her on demand.....never heard of such a thing but since she's asking for the impossible I may as well try and provide it......(how's that for fighting spirit...either that or I've completely lost it not sure which)

thanks again for all your support on this....it just shouldn't be this hard, but then again it wouldn't be the "road" if it wasn't!
  #29  
Unread 08-06-2003, 06:43 PM
Scared.....follow up with uro tomorrow morning.......

Hey, Gidge, try to do a bit of rope!!! Hey, whatever works, go for it sister!!!

Seriously, I remember that my Gyn warned me against jumping, lifting and straining when I was pre-op, in order not to aggravate the rectocele, so jumping very well might be one way of "naturally" forcing the prolapse down.

BTW, I remember that it was hard to fully empy, both the bladder and the bowels, when I was pre-op. However, since I was also dealing with a very large fibroid and extremely enlarged uterus that was pressing on both the bowels and the bladder, it's hard to know what was causing the discomfort.

Hang in there, sweetie, there's bound to be a way to fix you up.

  #30  
Unread 08-07-2003, 09:26 AM
Scared.....follow up with uro tomorrow morning.......

thanks Dany

well I did try jumping up and down last night and all I caused myself was alot of pain whatever is coming down from the top of my vagina didn't seem to come down much further.....

I talked to my Mum last night and told her about the weird feeling I get when I have a BM and she said next time you have one get out the hand mirror and see what happens so (gross out alert here) I did this morning and as I push to go something does poke out of my vagina....it looks like it's coming from the floor or bottom of my vagina when I feel it, does anyone else get this and is this what this defocography test will show? Does it sound like a rectocele or vault prolapse? Anyways again i wasn't completely able to finish and it never went completely back in whatever it was......

I just want to walk around and be able to sit without something weird being in there...basically my uro has said to me she knows there's another type of prolapse going on and if "I" find it let her know........
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