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stressing hard about INR results! stressing hard about INR results!

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  #1  
Unread 09-26-2003, 05:26 PM
stressing hard about INR results!

Oh ladies! The coumadin was going so well.....until I got a call from the nurse today. She said my INR was at 1.0. That is where a normal person NOT on blood thinners is at. On blood thinners, I should be between 2.0 and 3.0. Now I am stressed! I feel like a walking time bomb that's going to go off at any moment! I am so freaked out about the blood clots in my lungs and I feel so much better (emotionally) when my blood is thinning the way it's supposed to on coumadin. So, my dose has changed and I go back on Monday for more blood work.

Any of you who know anything about blood clots and coumadin, please give me some encouraging words. I want to know that I am going to be okay. Am I out of the woods now that it's been 3 weeks since the blood clots formed? I don't feel like I am out of the woods since they are keeping such close tabs on me with my coumadin. I know vitamin K can really interact with coumadin, and I think vitamin C, right? I haven't had much of either. The only change in my diet since my surgery is that I have added chocolate back into my diet I am eating a few solid things, but I still have so much trouble swallowing, that I don't get too many solids down yet. Can exercise affect the INR results? I have picked up the pace in the last week or so with taking my kids to school, going to my school classes(1 class each day) and teaching ballet. I am still being very cautious when I teach, but I'm wondering if exercise makes a difference.

Help!!! I'm freaking out!
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  #2  
Unread 09-26-2003, 05:35 PM
Hi Pasdechat........

I don't have any wisdom for you but it does seem encouraging to me that your Dr's are keeping close tabs on you.

We have been on this road together for so long now that I just wanted to post and let you know that I am thinking of you and keeping you in my prayers.

I hope someone comes along soon who can set your mind at ease and good luck at getting your INR where it needs to be. Keep your chin up girlfriend.



Dawn
  #3  
Unread 09-26-2003, 07:30 PM
stressing hard about INR results!

Take a deep breath. Coumadin is difficult to regulate. Even when you think you have the right dose, have several good readings, the next draw, the INR may be off. I have been on 3 mg daily since my chemo was over. My INR every month is a little different. When I was on chemo, I was tested weekly and my INR was all over the map (from 1..2 to 5.9).

You're right that an INR is not in therapeutic range so the Coumadin dose just needs to be adjusted. You will find this will happen time to time. I have had patients on the same Coumadin dose for years and suddenly one INR will be high or low. Coumadin is not a precise drug. It can be unpredictable. But it is the best thing we post PE & DVT people have.

Make sure you follow whatever guidelines your doctor gave you concerning diet and other drug interactions. I have never heard of activities influencing INRs.

Coumadin therapy is serious business. But there are many people on it for long term leading normal lives.

Did you have a Greenfield or other Vena Cava filter placed? If not you may want to discuss that with your doctor. I had one placed shortly after my PE (I too had bilateral PE). The filter helps prevent further clots from reaching the lungs.

Please continue to check with your doctor until you are comfortable with your anticoagulant regime. I understand your concerns. Surviving a PE makes one wonder why did I survive when others have sudden death. A scarey thought to say the least.

Ruth S
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  #4  
Unread 09-26-2003, 07:49 PM
stressing hard about INR results!

Thanks Dawn and Ruth for your replies. I've calmed down a bit since I posted last. I just want it to all go so smoothly. I NEVER want to go through the scare of blood clots again! It was probably the most horrifying time of my life! And you're right Ruth, I question why I did survive, but am so unbelievably thankful that I did survive. I have 4 young kids that I need to be here for!!!

No I do not have a Greenfield in place. In fact, I've never heard of it. None of the doctor's ever mentioned anything like that. My wonderful gyn(who I saw 2 days ago) is sending me to genetics to see if we can figure out why the blood clot's formed in the first place. He also told me that the Kaiser anticoagulation clinic(our insurance is through Kaiser Permanente) was named the best(or one of the best) in the country, so that makes me feel good. I know I will get through this....it's just all so scary!

Thanks again for your replies. I will keep everyone posted as I go through this little journey!
  #5  
Unread 09-28-2003, 07:28 AM
stressing hard about INR results!

(((((((((((((((pasdechat))))))))))))))0

Oh gosh- I have been away and you were so ill...I feel so bad and I just want to wish you the best and a very speedy recovery...you have been sooooo wonderful to all of us and know I am praying and thinking of you Dear Sister...please keep me posted and I am sending a big warm your way!!!!
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