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Uterine Cancer questions Uterine Cancer questions

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Unread 09-26-2003, 08:20 PM
Uterine Cancer questions


I am 34 yrs old and been diagnosed with Uterine Cancer. I have PCOS (polycystic ovarian syndrome) and trying to make heads or tails of this. I am beginning to really understand the PCOS and what is needed. Then in August '03 my doctor thought I has cervical cancer. After a D & C, confirmed I have Uterine. It is in the myometrium - but how far is unknown at this time. My Gyn/Onc states he cannot grade uterine cancer until he performs a hysterectomy. WOW. No one likes to hear that. Kinda scary thought. My doctor states that radiation would be a waste of time... so TAH/BSO scheduled for 10/21/03. Hmmm...unsure about Chemotherapy, HRT, blah, blah...
Does anyone have any insight ? Did anyone (I know someone has) gone through this.?.. Felt helpless and anxious, angry and sad?
Maybe I just needed to vent. I have done soooooo much research and just looking for someone who has gone thru this.

Thanks, Jana
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Unread 09-27-2003, 08:12 AM

Hi, Jana--

Welcome to the Cancer Concerns message board. Yes, I've "been there and done that" as they say. I'm a four-year survivor of uterine (endometrial) cancer. Had a radical hysterectomy and both internal and external radiation, which I completed in August 1999. My life now is light years above what it was B.C. (before cancer) and I had a great life before. These days I am enjoying life and having more fun than I ever thought possible. I have my cancer diagnosis to thank for that. Given the choice, I would never go back to my life before cancer, as I wouldn't want to give up who I have become and all the additional adventures and joy that cancer has brought into my life.

I am thankful every day that I had the good fortune of having a highly competent and compassionate treatment team. There are many women who are not nearly as lucky as I was. I do recall that one of the the worst times in the cancer process, and there were a few, was the week I had to wait to have my surgery. Once treatment began, I felt like I was doing something constructive to eliminate the cancer. I also experienced a lot of anxiety, some of which was due to the hormonal changes of being thrown into instant menopause by the radical hysterectomy, and the rest of which was due to receiving a cancer diagnosis and the feeling of loss of control over my life. I eventually sought medical help for my anxiety, and in hindsight should have done it a lot sooner!

You'll have to trust me on this one, Jana, but things are going to get a lot better for you. I see from your message that you are being treated by a gynecologic oncologist. That is the first important step for any woman with known or suspected gynecologic cancer. So you've definitely started out your cancer journey on the right path.

I'm sure other women with a history of uterine cancer will be along shortly to to say hello and to offer their advice and support.

Best wishes to you.

Unread 09-27-2003, 10:39 AM
Hi Jana!

It's great if you are doing your own research. I had my TAH/BSO on August 13th for ovarian cancer but the pathology came back that I also had endometrial cancer! Greedy me, wanting two cancers. :-) I really have found that all the research I have done has made me a participant in my own healing and much more knowledgeable about the decisions I have. And you do have the right to make decisions, even though doctors tend to just tell you what to do. I have definitely learned that medicine is an art and not a science!

Endometrial cancer has an excellent prognosis when caught early so I will pray that yours was caught that way! I am struggling much more with the instant menopause. My doctor doesn't believe that endometrial cancer survivors can take HRT, though I've sent him two scientific studies that shows that there is no proof to support that. My family is full of cardiovascular disease and osteoporosis so I'm trying to build a case to take it. My appt is Tuesday, so we'll see!

If you have time, you might want to start researching your options in that area as well. Though to tell you the truth, I did tons of research but nothing prepared me for the reality!

Bless you, sister!

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Unread 09-27-2003, 10:40 AM
Uterine Cancer questions

Hi: I found out I had uterine cancer 2 weeks after having a LAVH with everything remove, supposedly for complex hyperplasia, a pre-cancerous condition. At the time, my dr. stressed it was not cancer. I'm a bit older than you, but I sure don't feel any wiser. After the pathologist report came back, my dr. consulted with a gyn/oncologist, who said that a hysterectomy is usually the only treatment needed to "cure" this cancer. He assures me that this will not be the reason why I die. I guess that is supposed to reassure me, it doesn't. Last Tues. I went for a CAT scan, which they say is just a precaution, and am waiting for the results, quite tearfully and with much anxiety. Some of our fellow sisters have been very supportive, and I hope with their help to get to the point where I can feel like I will have a life to enjoy. It seems like time helps, but after being 7 weeks post-op and 4 weeks knowing I had cancer, I'm sure a long way from being where I should be. My husband thinks I should just be positive and happy that it was caught early. I don't feel happy or positive yet. I wish you the best of luck, and you'll be in my prayers.

Nancy Ann
Unread 09-28-2003, 09:39 PM
Uterine Cancer questions

Hi Jana -

I am 11 days post-op for uterine cancer - Stage I grade 1a. My Dr told me before the surgery I was a grade I - but that wasn't confirmed until the path report came back.
You will do just great. I can't say I feel great yet - because I have had some minor problems (mostly due to my bladder repair) but my prognosis is excellent. Generally you don't need radiation for a Stage I uterine cancer - although this will depend on personal/family history. I will find out mid-Oct if I have to have radiation.
You are in the right place. This is a great supportive group. I am 40 - didn't fit the profile for uterine cancer either - there seem to be quite a few of us in the same boat.
Keep us posted and ask lots of questions!
Big hugs,
Jan (Jads)
Unread 09-29-2003, 04:50 AM
Uterine Cancer questions


Msnanch im now 8 months post op and i can now finally say that i am much more positive than i was a couple of months ago. You are right time does help and you will be able to move on and put your diagnosis out of your mind. Let us know how you are getting on. Oh yes and ..........guess what................my sex drive has come back!! I dont know how but its back!! yahoo!

Unread 09-29-2003, 08:44 AM
Uterine Cancer questions

Hiya Jana

The waiting is the hardest part but since your dr stated that radiation would be a waste of time hopefully they think it is just contained in the myometrium?? I felt anxious, sad etc but just take it a day at a time and i know that perhaps other sisters wont agree with me, but sometimes ignorance is bliss and it doesnt help reading about all the worst case scenarios. Of course once you have your diagnosis then read, read and learn and you will learn an awful lot from this site.

take care

Unread 09-29-2003, 05:21 PM
Uterine Cancer questions

I had a TAH/OBS because of endo cancer. I had breast cancer surgeries in 99 and 00.

I feel very fortunate because I didn't need radiation or chemo. Everything was removed. My cancers were found early.

My gyno said that uterine cancer is the best cancer to get because in early stages it can all be removed. They don't know level and extent until the surgery. Mine was early and not in the muscle. I didn't need my nobes removed either. My gyno/ onlogist was in the surgery if that was necessary. Actually he closed because my gyno was called to an emergency c-section. My incision is really nice and healing beautifully.

I am about 13 weeks post op and cancer free.

I am really starting to feel good. Just hot flashes and night sweats which are beyond annoying.

My gyno also believes it's a bad idea for someone with estrongen feed cancers to have HRT. My mom did terrible on HRT but she also never took them right. She did later die from other cancers.

I'm still trying to find some more information on what I can do for the surgical menopause, although I am 54. I was paramenopausal and now I .

I am just so grateful the cancers were found so early. I am being guided. I have a grandson who will be one the 10th of October. I have so much too live for.

Kasaha Kitty
Unread 10-01-2003, 12:33 AM
Uterine Cancer questions

Hi Jana, It is good that you are having surgery soon so that any cancer is not allowed to progress. While I was dx with complex hyperplasia with atypia, generally a precancerous condition, my Gyn advised surgery soonest and she also had a oncologist on standby. My doc certainly knew best since path. reports done during surgery indicated stage I endometrial cancer; therefore, the oncologist surveyed lymph nodes and did a surgical wash and concluded that only the TAH/BSO was necessary with follow up check ups of course. He also concluded that radiation or chemo were not necessary in my case but per both docs I will need to be monitored by followup checkups and will learn how often/ types tomorrow at my 6 week checkup. BTW, I had had a catscan and blood tests including the one for cancer a couple weeks before surgery and they all were good. This was my first surgery and believe me I was so scared but thankfully have had a complications free surgery and an easy and relatively smooth and fast recovery.
I will keep you in my prayers for a successful surgery and a smooth, complications free recovery. Blessings, peggiesue
Unread 10-01-2003, 09:25 PM
Uterine Cancer questions

Nancy Ann, was your uterine cancer a complete surprise or did the Dr. suspect a cancer?
Did you have any symptoms that now look like "red flags"?

I'm asking cause I had no-idea that they could find uterine cancer after a hysterectomy (sounds silly) but I just figured that with yearly exams and ultrasounds, that they would know if someone has that prior to surgery.

I sure hope and pray that you and everyone else here is doing well. God Bless


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