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Unread 09-27-2003, 05:41 AM

Good Morning Ladies:

For all of you who took the time to respond to my scares and concerns and gave me your best support and encouragement, , here is my latest update:

My sister in AZ is home from the Castle now after having a TAH/BSO, for Stage IIC, OC performed by having two very large incisions, both horizontal and vertical as her tumor was so big.
She is having a pretty rough time, I am sad to report. She continues to have excrutiating gas pains which nothing seems to relieve. She is also having a problem with very painful urination (about every 15 minutes) which her gyn/onc say are both normal occurrences??????? She actually told me that if it wasn't for those two things, she wouldn't feel so bad. She stopped taking all of her pain meds as they were making her very sick.
I am so sad that she still refuses to allow myself or our other sister to travel from the east coast to AZ to be with her, however, I understand from all of the posts here that we must respect her wishes. On the rare occassion that I am even able to speak to her by phone (she's going thru the "shutting everyone out" period) I try so hard to give her much of the advise I read here from others in her situation. I am primarily concerned that she is not eating and she has 0 body fat to begin with. I know how crucial good nutrition is especially to prepare herself for her extensive upcoming chemo in an attempt to keep her strength up.
Any suggestions as to what more I can attempt to say to her?

I got my results back from my gyn/onc appointment for the 2 ultrasounds. Thank God, my news was good. My large cyst on my ovary is gone without treatment and 1 small fibroid was detected that also will require no treatment at this time. I now will be seen by him every 6 months for my exams and ultrasounds since my sister's cancer gives me yet another high risk factor. I am actually grateful not to have to be seen by my regular gyn anymore as they seem to be the last to detect OC in its earliest stages.

Finally, can anyone give me any suggestions as to how to locate support groups for both my sister and her primary caregiver in the Sedona, AZ area?

My prayers to all my hystersisters!

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Unread 09-27-2003, 06:37 AM

My thoughts and prayers to you and your sister. I don't know how old your sister is but she must be so scared and angry that she isn't coping well. Understandable so.

I had a TAH/BSO on July 31, and I had alot of pain with urination and bowel movements for the 4 weeks. I still have pain with urination sometimes.

I also had a urinary tract infection, so I had to go on antibiotics. A UTI is very common after a hysterectomy. She may want to call the DR and get a urine culture done.

I had endometriosis and alot of adhesions, and my uterus was adhered to both the bladder and bowel, so I know that is why I had some extra pain.

Our bodies have to learn to go through an adjustment period. Our organs have been removed and our body shifted around inside so it has to learn how to function again.

I am not sure how long it has been since your sister's surgery, but her lack of ovaries could be sending her into a whirlwind of emotions along with the OC situation.

Tell your sister to take Gas X, it worked wonders on me. I used to have horrific gas pains. And I was taking a stool softener also so my bowel movements weren't as painful. This really helped me too. I recently found a cereal that has 5 grams of fiber and has kept me regular the past week 1/2 . It's called Kellogs Complete Wheat Bran Flakes. It really does help.
But is she is not eating, her bowels are not going to be functioning well.

Drinking water is so essential after a hysterectomy. Tell her to drink ice water until she can't any more.

As far as seeing her. Maybe you need to just go. She is scared, and maybe trying to be brave or just isn't coping at all.

I would contact a local agency near you for advice. They may be able to help you get in touch with someone in your sisters town.

She definitely needs good nutrition with the course of chemo that lies ahead.

Please let me know how she is doing. I care!
Love and prayers to you both,
Unread 09-27-2003, 07:18 AM


I will pray for you and your sister!!

I know this is such a difficult time for you both.
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Unread 09-27-2003, 08:25 AM

Dear Heni,
How scary for your sister and you.
I have to tell you, the gas and constipation I suffered were just the worst part of the whole ordeal. I swear Gas-X and Senncot saved me from so much torture. Tell your sister not to take a laxative - it is too harsh for for her tender system right now - but a stool softener will have everything SO much better.
Who does your sister have with her right now? Does she have a hubby or kids, or is your Mom near her? I am just guessing here, but I think if there was not a support system I felt confident in, I'd fly out and stand by her bedside with water, Gas-X and Sennecot and the best face I could put on and get her thru the ****** at the world syndrome. (I wrote to you earlier about my Stage 5 friend who still swears it was the ****** off attitude she developed that made her able to battle thru all she had to face. This may be a really good sign - at least she's not giving in!)
I am glad you got a clean bill of health and a good baseline to use for future health checks. Take care of yourself and remember you have a whole bunch of Hystersisters that are thinking of you AND your sister.
Good luck and please continue to let us know how you are making out.

Unread 09-27-2003, 08:44 AM

For a number of weeks, after my TAH/BSO, I also experienced the need to 'spend a penny' - urinate about every 15 minutes too - including during the night. However, this need did end. It will for your sister, too.

Upon asking my gyn/onc about being constipated, he assured me that I could take laxatives, so I took the gentle, natural Senokat - made in the U.S.A. I was determined not to remain uncomfortable in this area. (Just as an aside, often for a few days after chemotherapy, constipation can occur - I've just taken 2 Senokat as I had a chemo just last Tuesday). Your sister needs to ask her doctor.

But, I need to say, that I took all the pain medications presecribed me. Did I want to? No. Did I need to? Yes. From a woman who never needed to take an aspirin, I now refuse to be in physical pain if I can medicate it, because after my first op., I was in tremendous post op pain for almost 6 weeks. Why? No pain medication, apart from the OTC Advil. In retrospect, I should have demanded it -(this was in my country - Canada, by the way). Your sister needs to ask her gyn/onc for other pain medications that will not make her feel so bad. They are there.

Hope that this is some help. Give your sister the time and space that she needs. On my journey, everyone who wished to accompany me, came. But, honour her now.

I am so glad that your ultrasounds reports were good!

to you
Unread 09-27-2003, 10:43 AM

Heni - I'm glad to hear about your clean bill of health andhaving a supportive dr! I am also sad to hear that your sister is having a rough time emotionally, and the only thing I can say is when I have had emotional rough times I tend to push everybody away when i really want them there. i don't know if this is true for your sister or not but maybe being a little more agressive could help her. There were times when I thought, " why can't everybody read my mind and know what I want?!" I will keep both of you in my prayers -

Unread 09-28-2003, 09:46 PM

Howdy - I am 11 days post-op for uterine cancer and have also had gas pain. I started drinking prune juice diluted with warm water in the morning and before bed. It helped with the stool - which ultimately helped with gas.
Hugs to you - and sorry I don't have any other hep with support groups in AZ. I am in WA.

Jan (Jads)

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